Veronica,
If you want more of an active esarcoma email group go to http://listserv.acor.org/archives/e-sarcoma.html there is a lot of
people on that list that will be able to help with questions. Also
go to www.cureourchildren.org a very informative website on ewings.
I hope that helps.
Kayce
I like the idea of having this chat room. As we need to ask questions we can each answer them on=line as well.Could idea! Lesa(wife to Michael dx August 21/00...
hi group sorry that I have not been on for a while. I had my surgery at UCLA. It went well there is no cancer in the bone they took out!! Take care,<br>Kayce...
I'm glad the surgery went well and you had your drain tube removed today. You are coming along nicely. I know this is a tough road but you'll get through it....
Hi. I just added a few pics. Hope all of you are doing well.<br>Charlie (Dad of Bill, dx'd Jan, '01--tolerating treatment very well--getting 8th round of chemo...
Hello!<br><br>I am 20 and was just diagnosed with Ewings Sarcoma. Mine is outside the bone. I had surgery July 13th to remove the mass from my right hip area ...
Rachel,<br>Hi I am sorry you got diagnosed. It is all really scary and overwelming at first. Do you know what chemo you are starting? What hospital do you go...
I don't know what kind of chemo I will be on. But I am beginning it on Wednesday. I'm pretty creeped. It's going to be busy til then. Monday I have more tests....
Hi Rachel,<br>I am sorry to hear about your diagnosis.<br>My son Bill is 18 and was dx'd with ES in his proximal right femur (no metastases). He starts his 9th...
Hi!<br><br>Glad to hear your son is doing so well! We are all trusting I will come through as well. ... I'll be in the hospital a couple days. My mom is ...
hi Rachel--i was diagnosed with ewings sarcoma back in 1997. after chemo (which i started at Cedars-Sinai) radiation, and surgery, i'm doing great. so much ...
Hi everyone--i'm just figuring this yahoo club out. Wanted to leave a new message string, but i think you just reply to the last message.<br><br>Thanks to ...
Hi Chris, My daughter aged 11 has a Ewings Sarcoma in her left iliac bone.she has been on chemo for the past 6 months and was due to have radiotherapy as her...
Veronica, If you want more of an active esarcoma email group go to http://listserv.acor.org/archives/e-sarcoma.html there is a lot of people on that list that...
Hi welcome to all the new members! Charlie I am glad Bill's chemo is almost done! Tell him congrats!! I have started college a few weeks ago. So I have been...
Hi Kayce. Thanks for the kind words for Bill. He had to have a transfusion on Monday but is very happy that that was probably the last one he'll ever have to ...
Hey Charlie,<br>I bet Bill can't wait till he has his hair back. I was so excited when I got my eyelashes and eybrows back. My hair is coming in slow for me I...
Chis,<br>Hey if you wanna join an email list for ewings sarcoma. Go to www.acor.org Then sign up for the ewings sarcoma list. There is a lot of people with ...
Hey everyone. I am new to this club but recognize some of the peolple from the e-sarcoma list that I am on.<br><br>A little about my story. I don't have cancer...
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