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Soft Tissue Ewing Sarcoma   Message List  
Reply | Forward Message #287 of 519 |
Re: Soft Tissue Ewing Sarcoma

Olga, sorry you have to be here. We all had to learn a lot really
fast as we went through our various ES experiences, so keep asking
your questions, it's the right thing to do!

You asked "The thing is, I can't understand how they can start my
chemo if they didn't finished with my test that need to be done
with!!!??"
It's not uncommon for the docs to schedule the first chemo before
all the "staging" tests are done. If they've made a definite
diagnosis that your tumor is one of the Ewings Family of Tumors
(EFT), they already know enough to start treatment. They want to
start as soon as possible, because ES tumors can grow very fast, and
you don't want to give it a chance to spread. The test results will
help them determine how quickly surgery should be done and whether
you need radiation (usually not started till after the 4th round).
They want to get scans of your whole body now so they can use them
to compare to future scans, and not be quibbling over whether a new
spot was there before you started treatment or not. The result of
the bone marrow test will help them decide whether you're a good
candidate for stem cell or bone marrow transplant down the road.
They just need a lot of information to develop your treatment plan
and document exactly the state of your body at this specific point
in time. NOT FUN, but necessary.

The range of treatment options for a new dx of ES is small, and most
involve adjusting amounts and timing of the chemo agents. I read an
article in the Washington Post last year in which they described the
lack of progress made in treatment options for childhood cancers and
it was shocking. As Melize posted (I hope I got the name right!),
there are 5 main chemo agents used today and that list hasn't
changed much. More gains have been made in radiation therapy than
in chemotherapy. By the way, if you hear a reference to VP-16,
that's just a combination of Ifosfomide and Etoposide. It took me a
long time to figure that one out.

I don't know where you live, but there's a very promising clinical
trial at MD Anderson in Houston using a new agent ImmTher, which
shows promise of reducing the rate of recurrences for ES. Here is
the site:

http://utm-
ext01a.mdacc.tmc.edu/dept/prot/clinicaltrialswp.nsf/Index/ID97-198

Good luck to you - Elizabeth







Mon Aug 21, 2006 6:11 pm

egr2058
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Message #287 of 519 |
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Hi. I'm a 40 year old male that just had a 2cm tumor removed from my right cheek that pathology says is a soft tissue Ewing Sarcoma. MRI and PET scan show no...
scottbernice1
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May 21, 2006
1:24 pm

Obviously every situation is different. The usual treatment for Ewings is alternating treatments of different types of chemo. My wife had extreme nausea during...
Daniel McCarty
elliesman2001
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May 21, 2006
4:04 pm

Yes you can beat this, but you have to hit it hard at the beginning. It is very time consuming. I would not say you could have a full time job, but my...
Melissa Medley
melimed1232002
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May 23, 2006
4:08 pm

Hey Scott, I am a 36 year old who was diagnosed with Ewings Scarcoma in 2004, I beat it, however my treatment consisted of 3 and 4 day cycles of chemotherapy...
mdplumbdoc
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May 27, 2006
3:09 pm

Hi, My name is Olga. And I'm 28 years old. I'm diagnosed with Ewing's cancer just 2 days ago. Of course I'm shoked, and what I know that I'll have chemo,...
katochek13
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Aug 18, 2006
9:45 pm

Hi olga. Sorry you've had to join us. Many people here care. I'm like you, an adult with a childhood disease. I'm 40 and i have the soft tissue variety of...
Bernice/Scott Alcott
scottbernice1
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Aug 19, 2006
1:29 am

Thank you for your response. Where is your tumor? Lower area in the leg. How big was it? I think that I so on X-rays, that it looked as 25 cents(quater) Have...
katochek13
Offline
Aug 19, 2006
2:31 am

Olga, I think you will learn soon that this is quite serious and will take most of your full time attention for about a year. It is generally not something you...
Bernice/Scott Alcott
scottbernice1
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Aug 19, 2006
1:11 pm

Hi Olga-- My name is Meliza, I'm 31 and I have another type of Ewing's Sarcoma called Desmoplastic Small Round Cell Tumor (DSRCT). My type of cancer is located...
omeliza
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Aug 20, 2006
10:05 am

-Dear Meliza and Scott! Thank you very much for your time, support and explanation. All this information of course is new for me!! I hope, I really hope that...
katochek13
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Aug 20, 2006
10:42 pm

As far as dieting, you won't be allowed any kind of fresh fruits or vegetables b/c your body's immune system won't be able to fight off any kind of germ that...
Randi McIlwain
randimcilwain
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Aug 20, 2006
11:27 pm

I agree with everything randi says below. His points are most important during white blood cell nadir period especially. On diet in general, there is SO MUCH...
Bernice/Scott Alcott
scottbernice1
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Aug 21, 2006
12:26 am

Olga, sorry you have to be here. We all had to learn a lot really fast as we went through our various ES experiences, so keep asking your questions, it's the...
Elizabeth
egr2058
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Aug 21, 2006
6:12 pm
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