Olga, sorry you have to be here. We all had to learn a lot really
fast as we went through our various ES experiences, so keep asking
your questions, it's the right thing to do!
You asked "The thing is, I can't understand how they can start my
chemo if they didn't finished with my test that need to be done
with!!!??"
It's not uncommon for the docs to schedule the first chemo before
all the "staging" tests are done. If they've made a definite
diagnosis that your tumor is one of the Ewings Family of Tumors
(EFT), they already know enough to start treatment. They want to
start as soon as possible, because ES tumors can grow very fast, and
you don't want to give it a chance to spread. The test results will
help them determine how quickly surgery should be done and whether
you need radiation (usually not started till after the 4th round).
They want to get scans of your whole body now so they can use them
to compare to future scans, and not be quibbling over whether a new
spot was there before you started treatment or not. The result of
the bone marrow test will help them decide whether you're a good
candidate for stem cell or bone marrow transplant down the road.
They just need a lot of information to develop your treatment plan
and document exactly the state of your body at this specific point
in time. NOT FUN, but necessary.
The range of treatment options for a new dx of ES is small, and most
involve adjusting amounts and timing of the chemo agents. I read an
article in the Washington Post last year in which they described the
lack of progress made in treatment options for childhood cancers and
it was shocking. As Melize posted (I hope I got the name right!),
there are 5 main chemo agents used today and that list hasn't
changed much. More gains have been made in radiation therapy than
in chemotherapy. By the way, if you hear a reference to VP-16,
that's just a combination of Ifosfomide and Etoposide. It took me a
long time to figure that one out.
I don't know where you live, but there's a very promising clinical
trial at MD Anderson in Houston using a new agent ImmTher, which
shows promise of reducing the rate of recurrences for ES. Here is
the site:
http://utm-
ext01a.mdacc.tmc.edu/dept/prot/clinicaltrialswp.nsf/Index/ID97-198
Good luck to you - Elizabeth