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Soft Tissue Ewing Sarcoma   Message List  
Reply | Forward Message #281 of 519 |
Re: Soft Tissue Ewing Sarcoma

Thank you for your response.
Where is your tumor?
Lower area in the leg.
How big was it?
I think that I so on X-rays, that it looked as 25 cents(quater)
Have you had a PET scan/CT scan...do you know if you have any visible
metastasis?
Not sure about that!
Are you being treated in a hospital with a dedicated Sarcoma
Unit/where?
I'll have my first appointment with oncologist only on Tuesday.
My question is: How did you feel after first chemo treatment??
I'm wondering because I'll have first treatment and then in 10 days
after that we will go for vacation to Mexico for 5 days, and I'm
wondering how I gonna handle this???

Best regards,
--- In ewingssarcoma@yahoogroups.com, "Bernice/Scott Alcott"
<scottbernice@...> wrote:
>
> Hi olga. Sorry you've had to join us. Many people here care. I'm
like you,
> an adult with a childhood disease. I'm 40 and i have the soft
tissue variety
> of ewing's with no relation to any bone. I've done the surgery and
4 rounds
> of chemo and i'm starting radiation therapy followed by 4 more
chemo
> treatments. I'm happy to share what's been and what will come. It
won't be
> fun. You have hard treatments to do and it will all last close to
a year if
> it all goes well. You can beat this completely, or beat it for
awhile and
> have a recurrence, or unfortunately, too many people fail
relatively
> quickly. We all remember the first few days. It is beyond words.
>
> Where is your tumor?
> How big was it?
> Have you had a PET scan/CT scan...do you know if you have any
visible
> metastasis?
> Are you being treated in a hospital with a dedicated Sarcoma
Unit/where?
> With these answers, many of us can offer you constructive and
useful advice
> and lots of experience and emotional support.
>
> Best regards,
>
> Scott (dx 3/06 with tumor on cheek, clean scans so far)
>
>
>
>
> >From: katochek13 <no_reply@yahoogroups.com>
> >Reply-To: ewingssarcoma@yahoogroups.com
> >To: ewingssarcoma@yahoogroups.com
> >Subject: [Ewings Sarcoma] Re: Soft Tissue Ewing Sarcoma
> >Date: Fri, 18 Aug 2006 21:44:10 -0000
> >
> >Hi,
> >My name is Olga. And I'm 28 years old. I'm diagnosed with Ewing's
> >cancer just 2 days ago. Of course I'm shoked, and what I know that
> >I'll have chemo, surgery and then again chemo!!! And I don't know
too
> >much about cancer and I don't know that even I want to know. I
just
> >pray and hope that everything is going to be fun. And I'll
survive!!!
> >May be you remember your first couple days and you can share with
me
> >some helpfull advices!!!
> >
> >thank you!!
> >have a great day!
> >
> >
> >
>








Sat Aug 19, 2006 2:28 am

katochek13
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Forward
Message #281 of 519 |
Expand Messages Author Sort by Date

Hi. I'm a 40 year old male that just had a 2cm tumor removed from my right cheek that pathology says is a soft tissue Ewing Sarcoma. MRI and PET scan show no...
scottbernice1
Offline Send Email
May 21, 2006
1:24 pm

Obviously every situation is different. The usual treatment for Ewings is alternating treatments of different types of chemo. My wife had extreme nausea during...
Daniel McCarty
elliesman2001
Offline Send Email
May 21, 2006
4:04 pm

Yes you can beat this, but you have to hit it hard at the beginning. It is very time consuming. I would not say you could have a full time job, but my...
Melissa Medley
melimed1232002
Offline Send Email
May 23, 2006
4:08 pm

Hey Scott, I am a 36 year old who was diagnosed with Ewings Scarcoma in 2004, I beat it, however my treatment consisted of 3 and 4 day cycles of chemotherapy...
mdplumbdoc
Offline Send Email
May 27, 2006
3:09 pm

Hi, My name is Olga. And I'm 28 years old. I'm diagnosed with Ewing's cancer just 2 days ago. Of course I'm shoked, and what I know that I'll have chemo,...
katochek13
Offline
Aug 18, 2006
9:45 pm

Hi olga. Sorry you've had to join us. Many people here care. I'm like you, an adult with a childhood disease. I'm 40 and i have the soft tissue variety of...
Bernice/Scott Alcott
scottbernice1
Offline Send Email
Aug 19, 2006
1:29 am

Thank you for your response. Where is your tumor? Lower area in the leg. How big was it? I think that I so on X-rays, that it looked as 25 cents(quater) Have...
katochek13
Offline
Aug 19, 2006
2:31 am

Olga, I think you will learn soon that this is quite serious and will take most of your full time attention for about a year. It is generally not something you...
Bernice/Scott Alcott
scottbernice1
Offline Send Email
Aug 19, 2006
1:11 pm

Hi Olga-- My name is Meliza, I'm 31 and I have another type of Ewing's Sarcoma called Desmoplastic Small Round Cell Tumor (DSRCT). My type of cancer is located...
omeliza
Offline Send Email
Aug 20, 2006
10:05 am

-Dear Meliza and Scott! Thank you very much for your time, support and explanation. All this information of course is new for me!! I hope, I really hope that...
katochek13
Offline
Aug 20, 2006
10:42 pm

As far as dieting, you won't be allowed any kind of fresh fruits or vegetables b/c your body's immune system won't be able to fight off any kind of germ that...
Randi McIlwain
randimcilwain
Offline Send Email
Aug 20, 2006
11:27 pm

I agree with everything randi says below. His points are most important during white blood cell nadir period especially. On diet in general, there is SO MUCH...
Bernice/Scott Alcott
scottbernice1
Offline Send Email
Aug 21, 2006
12:26 am

Olga, sorry you have to be here. We all had to learn a lot really fast as we went through our various ES experiences, so keep asking your questions, it's the...
Elizabeth
egr2058
Offline Send Email
Aug 21, 2006
6:12 pm
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