Hi olga. Sorry you've had to join us. Many people here care. I'm like you,
an adult with a childhood disease. I'm 40 and i have the soft tissue variety
of ewing's with no relation to any bone. I've done the surgery and 4 rounds
of chemo and i'm starting radiation therapy followed by 4 more chemo
treatments. I'm happy to share what's been and what will come. It won't be
fun. You have hard treatments to do and it will all last close to a year if
it all goes well. You can beat this completely, or beat it for awhile and
have a recurrence, or unfortunately, too many people fail relatively
quickly. We all remember the first few days. It is beyond words.

Where is your tumor?
How big was it?
Have you had a PET scan/CT scan...do you know if you have any visible
metastasis?
Are you being treated in a hospital with a dedicated Sarcoma Unit/where?
With these answers, many of us can offer you constructive and useful advice
and lots of experience and emotional support.

Best regards,

Scott (dx 3/06 with tumor on cheek, clean scans so far)




>From: katochek13 <no_reply@yahoogroups.com>
>Reply-To: ewingssarcoma@yahoogroups.com
>To: ewingssarcoma@yahoogroups.com
>Subject: [Ewings Sarcoma] Re: Soft Tissue Ewing Sarcoma
>Date: Fri, 18 Aug 2006 21:44:10 -0000
>
>Hi,
>My name is Olga. And I'm 28 years old. I'm diagnosed with Ewing's
>cancer just 2 days ago. Of course I'm shoked, and what I know that
>I'll have chemo, surgery and then again chemo!!! And I don't know too
>much about cancer and I don't know that even I want to know. I just
>pray and hope that everything is going to be fun. And I'll survive!!!
>May be you remember your first couple days and you can share with me
>some helpfull advices!!!
>
>thank you!!
>have a great day!
>
>
>