Hi Chris,
My daughter aged 11 has a Ewings Sarcoma in her left iliac bone.she
has been on chemo for the past 6 months and was due to have
radiotherapy as her condition was deemed inoperable. Well the good
news is that the chemo worked so well that she is now going to have
surgery. I was so excited at first, but after meeting with the
surgeon and hearing about her possible lack of mobility, limp etc I
am now scared as to the repercussions of the surgery, long term. Can
yoy let me know how you are doing post-op? Did you have your iliac
crest removed?
Thanks
Veronica







-- In ewingssarcoma@y..., chrisbonham wrote:
> Hi everyone--i'm just figuring this yahoo club
> out. Wanted to leave a new message string, but i think
> you just reply to the last message.<br><br>Thanks to
> Kayce for starting this club. I've been looking for one
> for a while. I live in Los Angeles now, but was in
> Santa Barbara when this all started.<br><br>I am 3 1/2
> years out of surgery. I had ewings sarcoma in my left
> illiac crest. Radiation prior to surgery. Chemo before
> and after surgery. Physical rehab after surgery.
> Luckily it did not spread and hasn't come
> back.<br><br>Dr. Eckardt at UCLA is the best. He made the official
> diagnosis and performed the surgery. He sent me over the
> Cedars Sinai for my chemo.<br><br>If anybody has any
> questions, i'd be glad to answer. Overall, i'm doing great.
> <br><br>chris