Hi olga. Sorry you've had to join us. Many people here care. I'm like you,
an adult with a childhood disease. I'm 40 and i have the soft tissue variety
of ewing's with no relation to any bone. I've done the surgery and 4 rounds
of chemo and i'm starting radiation therapy followed by 4 more chemo
treatments. I'm happy to share what's been and what will come. It won't be
fun. You have hard treatments to do and it will all last close to a year if
it all goes well. You can beat this completely, or beat it for awhile and
have a recurrence, or unfortunately, too many people fail relatively
quickly. We all remember the first few days. It is beyond words.

Where is your tumor?
How big was it?
Have you had a PET scan/CT scan...do you know if you have any visible
metastasis?
Are you being treated in a hospital with a dedicated Sarcoma Unit/where?
With these answers, many of us can offer you constructive and useful advice
and lots of experience and emotional support.

Best regards,

Scott (dx 3/06 with tumor on cheek, clean scans so far)





From: katochek13 <no_reply@yahoogroups.com>
Reply-To: ewingssarcoma@yahoogroups.com
To: ewingssarcoma@yahoogroups.com
Subject: [Ewings Sarcoma] Re: Hey everyone! New ES patient
Date: Fri, 18 Aug 2006 21:51:05 -0000

hello, Kaye!
How are you?
My name is Olga. I was diagnosed with Ewings two days ago!:(( and
it's also in the lower leg area, and be honest with you I even don't
feel that there are something wrong may be some pain once in a
while. However now I understand how it's serious and my doctor said
that I gonna have chemo, then surgery and then chemo again. Pretty
similar with you situation. please, tell me more about your
experience??? How did you feel during chemo???

Thank you!
Olga

--- In ewingssarcoma@yahoogroups.com, "kayetexan" <kayetexan@...>
wrote:
>
>Hello all! My name is Kaye and I was diagnosed with Ewings in
December
>2005. (nice holiday present huh?) It was the size of a small
orange in
>my lower leg, but not noticable from looking at it. I had 4
cycles of
>chemo pre-surgery, then surgery, and now I am into cycle 5 of 6
post
>surgically. We are hoping for no radiation, but I have the
feeling the
>doc is gonna slip it in there somehow. My surgery went well, and
now I
>have about a foot long scar along my calf.
>
>I was wondering, are there any support groups for adult Ewings patients? I
>have yet to find one, maybe I am not looking in the
right
>places. My thought processing is not exactly up to par from the
chemo,
>I'm sure everyone is familiar with that!
>
>Any other info or links would be helpful too!
>