hello, Kaye!
How are you?
My name is Olga. I was diagnosed with Ewings two days ago!:(( and
it's also in the lower leg area, and be honest with you I even don't
feel that there are something wrong may be some pain once in a
while. However now I understand how it's serious and my doctor said
that I gonna have chemo, then surgery and then chemo again. Pretty
similar with you situation. please, tell me more about your
experience??? How did you feel during chemo???
Thank you!
Olga
--- In ewingssarcoma@yahoogroups.com, "kayetexan" <kayetexan@...>
wrote:
>
> Hello all! My name is Kaye and I was diagnosed with Ewings in
December
> 2005. (nice holiday present huh?) It was the size of a small
orange in
> my lower leg, but not noticable from looking at it. I had 4
cycles of
> chemo pre-surgery, then surgery, and now I am into cycle 5 of 6
post
> surgically. We are hoping for no radiation, but I have the
feeling the
> doc is gonna slip it in there somehow. My surgery went well, and
now I
> have about a foot long scar along my calf.
>
> I was wondering, are there any support groups for adult Ewings
> patients? I have yet to find one, maybe I am not looking in the
right
> places. My thought processing is not exactly up to par from the
chemo,
> I'm sure everyone is familiar with that!
>
> Any other info or links would be helpful too!
>