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Hey everyone! New ES patient   Message List  
Reply | Forward Message #277 of 519 |
Re: Hey everyone! New ES patient

hello, Kaye!
How are you?
My name is Olga. I was diagnosed with Ewings two days ago!:(( and
it's also in the lower leg area, and be honest with you I even don't
feel that there are something wrong may be some pain once in a
while. However now I understand how it's serious and my doctor said
that I gonna have chemo, then surgery and then chemo again. Pretty
similar with you situation. please, tell me more about your
experience??? How did you feel during chemo???

Thank you!
Olga

--- In ewingssarcoma@yahoogroups.com, "kayetexan" <kayetexan@...>
wrote:
>
> Hello all! My name is Kaye and I was diagnosed with Ewings in
December
> 2005. (nice holiday present huh?) It was the size of a small
orange in
> my lower leg, but not noticable from looking at it. I had 4
cycles of
> chemo pre-surgery, then surgery, and now I am into cycle 5 of 6
post
> surgically. We are hoping for no radiation, but I have the
feeling the
> doc is gonna slip it in there somehow. My surgery went well, and
now I
> have about a foot long scar along my calf.
>
> I was wondering, are there any support groups for adult Ewings
> patients? I have yet to find one, maybe I am not looking in the
right
> places. My thought processing is not exactly up to par from the
chemo,
> I'm sure everyone is familiar with that!
>
> Any other info or links would be helpful too!
>








Fri Aug 18, 2006 9:51 pm

katochek13
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Message #277 of 519 |
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Hello all! My name is Kaye and I was diagnosed with Ewings in December 2005. (nice holiday present huh?) It was the size of a small orange in my lower leg, but...
kayetexan
Offline Send Email
May 12, 2006
4:34 pm

Hi, Kaye. I'm Lexi and I had Ewings at age 5...I'm now almost 15. My mom is part of an online support group for parents or patients themselves-children and...
Lexi Chopp
smallchopp
Offline Send Email
May 12, 2006
8:14 pm

Kaye, you are very brave to be on here. My husband did not want to do any of this support stuff so I did it for us. A great group is www.acor.org for ewings...
Melissa Medley
melimed1232002
Offline Send Email
May 12, 2006
8:25 pm

hello, Kaye! How are you? My name is Olga. I was diagnosed with Ewings two days ago!:(( and it's also in the lower leg area, and be honest with you I even...
katochek13
Offline
Aug 18, 2006
9:55 pm
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