Dear Amie,
Boy does this sound familiar. If you would ever like
to talk email me at jazzmbm@.... My daughter was
eight when she was dianosed. We were the sacrum and
affected s1 to s4 of the spine. We were also told it
had metastized but it had not.
--- gedbunch <no_reply@yahoogroups.com> wrote:
> Hello there all I am a mom with a 7 year old girl
> that has ewing
> sarcoma in the spine. She was diagnosed with it in
> Febuary of this
> year. This has been a hard battle to fight but I
> just hope that I can
> be of help to you all and that the information that
> I read can be of
> help to me. My daughters name is Faith and she is
> one of 6 kids. We
> were told that when Faith first diagnosed that 75%
> of children die
> form this cancer and that we had a lot against us in
> the fact that is
> was not in a limb or hip. So I started to do
> research and found that
> there is a cancer center in Houston Tx and we took
> her there as we
> were told that even though she was going through
> chemo that it had
> spread. While there in Houston we got the best news
> ever that no the
> cancer had not spread and the she will make it
> through this. She will
> start radation in September and then our maintence
> chemo also then she
> is a strong girl and is excited to hear the we have
> a fighting chance.
> If you want to hear more or have questions pleae let
> me know.
> Thanks Amie
>
>
>
>
>
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