Obviously every situation is different. The usual treatment for Ewings is
alternating treatments of different types of chemo. My wife had extreme nausea
during and after each chemo treatment. She would not have been able to work.
Also because the chemo is targeting rapidly growing cells it also effects the
white blood cells. You will have to be careful who you are around during those
times. You will also lose much of your energy so that you will feel very tired.
Ask for plenty of medication to combat these side effects. Ativan and Zofran
seemed to work well on the nausea. The other thing that worked wonders was a
patch that went in back of the ear. They will also give you shots that you can
give yourself to help with the red and white blood cell counts. Also, we had an
IV machine right at home and they showed me how to flushh the port a cath and
run the machine. Please make sure that you have them put a port a cath in. It
will save you literally hundreds of sticks with
needles. Good luck!

scottbernice1 <scottbernice@...> wrote: Hi. I'm a 40 year old male that
just had a 2cm tumor removed from my
right cheek that pathology says is a soft tissue Ewing Sarcoma. MRI
and PET scan show no local, regional nor distant metastasis. I'm
headed to Sloan Kettering next week for first meeting. I'm told from
the first hospital i started with to expect radiation therapy (6
weeks) and chemo for a long time.

ARe there any other adults out there with soft tissue version in a
similar situation?

Will i be able to work during the chemotherapy, i was told by one
doctor that I could but i'm reading others saying, "no way".

Anyone have any experience with Dr. Gary Schwartz at Sloan Kettering?

Can I beat this?







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