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Soft Tissue Ewing Sarcoma   Message List  
Reply | Forward Message #257 of 519 |
Hi. I'm a 40 year old male that just had a 2cm tumor removed from my
right cheek that pathology says is a soft tissue Ewing Sarcoma. MRI
and PET scan show no local, regional nor distant metastasis. I'm
headed to Sloan Kettering next week for first meeting. I'm told from
the first hospital i started with to expect radiation therapy (6
weeks) and chemo for a long time.

ARe there any other adults out there with soft tissue version in a
similar situation?

Will i be able to work during the chemotherapy, i was told by one
doctor that I could but i'm reading others saying, "no way".

Anyone have any experience with Dr. Gary Schwartz at Sloan Kettering?

Can I beat this?
Sun May 21, 2006 1:22 pm

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scottbernice1
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Forward 		Message #257 of 519 |
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Hi. I'm a 40 year old male that just had a 2cm tumor removed from my right cheek that pathology says is a soft tissue Ewing Sarcoma. MRI and PET scan show no... 		scottbernice1
Offline Send Email 		May 21, 2006
1:24 pm

Obviously every situation is different. The usual treatment for Ewings is alternating treatments of different types of chemo. My wife had extreme nausea during...
Daniel McCarty
elliesman2001
Offline Send Email 		May 21, 2006
4:04 pm

Yes you can beat this, but you have to hit it hard at the beginning. It is very time consuming. I would not say you could have a full time job, but my...
Melissa Medley
melimed1232002
Offline Send Email 		May 23, 2006
4:08 pm

Hey Scott, I am a 36 year old who was diagnosed with Ewings Scarcoma in 2004, I beat it, however my treatment consisted of 3 and 4 day cycles of chemotherapy...
mdplumbdoc
Offline Send Email 		May 27, 2006
3:09 pm

Hi, My name is Olga. And I'm 28 years old. I'm diagnosed with Ewing's cancer just 2 days ago. Of course I'm shoked, and what I know that I'll have chemo,...
katochek13
Offline 		Aug 18, 2006
9:45 pm

Hi olga. Sorry you've had to join us. Many people here care. I'm like you, an adult with a childhood disease. I'm 40 and i have the soft tissue variety of...
Bernice/Scott Alcott
scottbernice1
Offline Send Email 		Aug 19, 2006
1:29 am

Thank you for your response. Where is your tumor? Lower area in the leg. How big was it? I think that I so on X-rays, that it looked as 25 cents(quater) Have...
katochek13
Offline 		Aug 19, 2006
2:31 am

Olga, I think you will learn soon that this is quite serious and will take most of your full time attention for about a year. It is generally not something you...
Bernice/Scott Alcott
scottbernice1
Offline Send Email 		Aug 19, 2006
1:11 pm

Hi Olga-- My name is Meliza, I'm 31 and I have another type of Ewing's Sarcoma called Desmoplastic Small Round Cell Tumor (DSRCT). My type of cancer is located...
omeliza
Offline Send Email 		Aug 20, 2006
10:05 am

-Dear Meliza and Scott! Thank you very much for your time, support and explanation. All this information of course is new for me!! I hope, I really hope that...
katochek13
Offline 		Aug 20, 2006
10:42 pm

As far as dieting, you won't be allowed any kind of fresh fruits or vegetables b/c your body's immune system won't be able to fight off any kind of germ that...
Randi McIlwain
randimcilwain
Offline Send Email 		Aug 20, 2006
11:27 pm

I agree with everything randi says below. His points are most important during white blood cell nadir period especially. On diet in general, there is SO MUCH...
Bernice/Scott Alcott
scottbernice1
Offline Send Email 		Aug 21, 2006
12:26 am

Olga, sorry you have to be here. We all had to learn a lot really fast as we went through our various ES experiences, so keep asking your questions, it's the...
Elizabeth
egr2058
Offline Send Email 		Aug 21, 2006
6:12 pm
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