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ewingssarcoma · Ewings Sarcoma - A place to talk about Ewings Sarcoma
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Reply | Forward Message #252 of 519 |
Hi, My name is Bobby Silberman and I am 24 years old, diagnosed with
metastasized Ewings Sarcoma on March 22nd of this year. I am getting
chemotherapy every two weeks (odd cycles being 1 day of Vincristine,
Adriamycin, and Cytoxan; even cycles being 5 days of Etoposide VP-16
and Ifex). I am considering participating in a Sloan-Kettering study
where they are replacing remaining chemo sessions with a allogeneic
bone marrow transplant. Apparently they have only done this on a few
people (less than 10) and are only 2 years out. Meaning they have no
idea if it will increase the current 20% success rate (or even match
it) of the current chemotherapy regiment. I am interested to see if
anyone knows about this study and their thoughts on anything I
mentioned. I just learned of yahoo groups and I'm excited to join this
group and for any potential discussions concerning me, you, or
anything to do with Ewings Sarcoma.

Thank you!!!

Bobby







Sat May 13, 2006 6:10 pm

bobbysilberman
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Message #252 of 519 |
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Hi, My name is Bobby Silberman and I am 24 years old, diagnosed with metastasized Ewings Sarcoma on March 22nd of this year. I am getting chemotherapy every...
bobbysilberman
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May 13, 2006
6:11 pm

I would get on the www.acor.org group as well. They are wonderful and talk much more frequently than this one. I lost my husband to this disease, but still...
Melissa Medley
melimed1232002
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May 15, 2006
4:23 pm

Hi, Bobby, welcome to the list. I'm sorry to say that you were dx the day after my 19-year old stepson Bradley passed away of ES. He had a recurrence during...
Elizabeth
egr2058
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May 15, 2006
5:12 pm
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