Kaye, you are very brave to be on here. My husband did not want to do any of
this support stuff so I did it for us. A great group is www.acor.org for ewings
patients. I would look there. I lost my husband to the recurrence of this
disease, but they are great and I still talk and read on there often. I have
found them the most resourceful. There are many adults on there even though
this is mostly a childhood disease.
Melissa

Also,
www.cureourchildren.org

kayetexan <kayetexan@...> wrote:
Hello all! My name is Kaye and I was diagnosed with Ewings in December
2005. (nice holiday present huh?) It was the size of a small orange in
my lower leg, but not noticable from looking at it. I had 4 cycles of
chemo pre-surgery, then surgery, and now I am into cycle 5 of 6 post
surgically. We are hoping for no radiation, but I have the feeling the
doc is gonna slip it in there somehow. My surgery went well, and now I
have about a foot long scar along my calf.

I was wondering, are there any support groups for adult Ewings
patients? I have yet to find one, maybe I am not looking in the right
places. My thought processing is not exactly up to par from the chemo,
I'm sure everyone is familiar with that!

Any other info or links would be helpful too!





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