Hi, Kaye. I'm Lexi and I had Ewings at age 5...I'm now almost 15. My mom is
part of an online support group for parents or patients themselves-children and
adults. It is an A-COR group. You might find some helpful information about
joining on www.esbabies.com. Good luck with your last cycle.....

kayetexan <kayetexan@...> wrote:
Hello all! My name is Kaye and I was diagnosed with Ewings in December
2005. (nice holiday present huh?) It was the size of a small orange in
my lower leg, but not noticable from looking at it. I had 4 cycles of
chemo pre-surgery, then surgery, and now I am into cycle 5 of 6 post
surgically. We are hoping for no radiation, but I have the feeling the
doc is gonna slip it in there somehow. My surgery went well, and now I
have about a foot long scar along my calf.

I was wondering, are there any support groups for adult Ewings
patients? I have yet to find one, maybe I am not looking in the right
places. My thought processing is not exactly up to par from the chemo,
I'm sure everyone is familiar with that!

Any other info or links would be helpful too!





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