Hi there,
I think we all live with the fear of relapse. I am the
mother of a little girl diagnosed at age 8, we are now
12. She will be followed until age 18. The
advancements are what I hang onto and praying.
Marybeth

--- Randi <randimcilwain@...> wrote:

> My husband was diagnosed in 2004 and did chemo and
> radiation all last
> year. i have to say that since i've read your post
> i'm soo worried
> about a relapse! how did you know it came back? it
> was such a tough
> year for us and our two boys- we have a 1 and 3 year
> old. this is my
> biggest fear! any advice you could give would be
> great!
>
>
>
> --- In ewingssarcoma@yahoogroups.com, "Kyle"
> <kylefrick_ks@...> wrote:
> >
> > I was diagnosed with Ewings in 1987, and again in
> 2001. I am 35,
> and
> > in remission once again. I was told that they are
> seeing relapses
> in
> > the disease due to excessive radiation treatment.
> Hopefully this
> last
> > time will be the last time I have a port in my
> chest, and go through
> > all the bodily changes that occur with treatment.
> My tumor is in my
> > spinal cord, and this time around, I lost the
> ability to walk for
> six
> > months. Shows how my ability to bounce back has
> diminished since I
> > was 16. If anyone has any questions, let me know!
> >
>
>
>
>
>


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