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My name is Kyle   Message List  
Reply | Forward Message #242 of 519 |
Re: [Ewings Sarcoma] Re: My name is Kyle

Randi

My sons recurred with a lump ob his head where he had bumped heads with
someone. He then got another in his eyesocket, they radiated both. It comes back
in many different ways so its best to always check anything unusual out.


David

Dad to Tom diag Dec 2002, rem 18 month, recur Nov 2004, moved on to bigger
things May 2004 aged 19 1/2 years. His saying 'No Regrets"

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Sat Apr 1, 2006 6:45 am

david43austr...
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Message #242 of 519 |
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I was diagnosed with Ewings in 1987, and again in 2001. I am 35, and in remission once again. I was told that they are seeing relapses in the disease due to...
Kyle
kylefrick_ks
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Nov 23, 2005
3:31 pm

... Kyle, thanks for posting. What kind of radiation did you have, and when in the treatment was it given? My stepson is getting ready to start radiation in...
Elizabeth
egr2058
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Nov 23, 2005
7:34 pm

My husband was diagnosed in 2004 and did chemo and radiation all last year. i have to say that since i've read your post i'm soo worried about a relapse! how...
Randi
randimcilwain
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Apr 1, 2006
4:11 am

Randi My sons recurred with a lump ob his head where he had bumped heads with someone. He then got another in his eyesocket, they radiated both. It comes back...
David
david43austr...
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Apr 1, 2006
6:45 am

Is anyone familiar with Ewings clusters? My little brother was diagnosed with Ewings as were 2 others in their mid-upper 20s that all worked within 10 feet of...
barry kaiman
bakaiman
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Apr 1, 2006
1:57 pm

Mine came back after 15 years, which doctors are now seeing a little more. They theorize it was because my original radiation doseage was too much. My my ...
Kyle Frick
kylefrick_ks
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Apr 1, 2006
6:22 pm

This is randi's husband Jason. My wife wanted me to read what you had to say. I went through 8 total months of chemo and 26 rounds of radiation. each round of...
Randi McIlwain
randimcilwain
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Apr 1, 2006
9:22 pm

Yeah, I experienced a little of the same thing, but I think mine was due to the fact that my tumor was in my spinal cord, and the five surgeries I had...
Kyle
kylefrick_ks
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Apr 7, 2006
2:25 pm

Hi there, I think we all live with the fear of relapse. I am the mother of a little girl diagnosed at age 8, we are now 12. She will be followed until age 18....
marybeth adkins
JAZZMBM
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Apr 1, 2006
9:24 pm
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