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My name is Kyle   Message List  
Reply | Forward Message #241 of 519 |
Re: My name is Kyle

My husband was diagnosed in 2004 and did chemo and radiation all last
year. i have to say that since i've read your post i'm soo worried
about a relapse! how did you know it came back? it was such a tough
year for us and our two boys- we have a 1 and 3 year old. this is my
biggest fear! any advice you could give would be great!



--- In ewingssarcoma@yahoogroups.com, "Kyle" <kylefrick_ks@...> wrote:
>
> I was diagnosed with Ewings in 1987, and again in 2001. I am 35,
and
> in remission once again. I was told that they are seeing relapses
in
> the disease due to excessive radiation treatment. Hopefully this
last
> time will be the last time I have a port in my chest, and go through
> all the bodily changes that occur with treatment. My tumor is in my
> spinal cord, and this time around, I lost the ability to walk for
six
> months. Shows how my ability to bounce back has diminished since I
> was 16. If anyone has any questions, let me know!
>







Sat Apr 1, 2006 4:11 am

randimcilwain
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Message #241 of 519 |
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I was diagnosed with Ewings in 1987, and again in 2001. I am 35, and in remission once again. I was told that they are seeing relapses in the disease due to...
Kyle
kylefrick_ks
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Nov 23, 2005
3:31 pm

... Kyle, thanks for posting. What kind of radiation did you have, and when in the treatment was it given? My stepson is getting ready to start radiation in...
Elizabeth
egr2058
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Nov 23, 2005
7:34 pm

My husband was diagnosed in 2004 and did chemo and radiation all last year. i have to say that since i've read your post i'm soo worried about a relapse! how...
Randi
randimcilwain
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Apr 1, 2006
4:11 am

Randi My sons recurred with a lump ob his head where he had bumped heads with someone. He then got another in his eyesocket, they radiated both. It comes back...
David
david43austr...
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Apr 1, 2006
6:45 am

Is anyone familiar with Ewings clusters? My little brother was diagnosed with Ewings as were 2 others in their mid-upper 20s that all worked within 10 feet of...
barry kaiman
bakaiman
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Apr 1, 2006
1:57 pm

Mine came back after 15 years, which doctors are now seeing a little more. They theorize it was because my original radiation doseage was too much. My my ...
Kyle Frick
kylefrick_ks
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Apr 1, 2006
6:22 pm

This is randi's husband Jason. My wife wanted me to read what you had to say. I went through 8 total months of chemo and 26 rounds of radiation. each round of...
Randi McIlwain
randimcilwain
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Apr 1, 2006
9:22 pm

Yeah, I experienced a little of the same thing, but I think mine was due to the fact that my tumor was in my spinal cord, and the five surgeries I had...
Kyle
kylefrick_ks
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Apr 7, 2006
2:25 pm

Hi there, I think we all live with the fear of relapse. I am the mother of a little girl diagnosed at age 8, we are now 12. She will be followed until age 18....
marybeth adkins
JAZZMBM
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Apr 1, 2006
9:24 pm
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