Christine, I would go to www.acor.org and join the ewings group there. I can't
believe you guys have gone through so much. I recently lost my husband to this.
He had it and then relapsed. We got married anyway and he passed this past Feb.
Good luck and you guys are in my prayers. Melissa

christine_conrad_denmark <christine_conrad_denmark@...> wrote:Hallo
everybody!
My boyfriend was first diagnosed with ewings 9 years ago.He has since
then been diagnosed with the disease 5 times, 3times in the right
scapula/lung and 2times in the right side of the neck.He has had
surgery several times, radiation and chemotherapy.Last he was
diagnosed, was in dec. 2004 and he has recieved chemo since jan. 2005.
At last months checkup we recived the news that the tumor still
continues to grow, and that the doctors here in Denmark no longer has
any options regarding treatment.The tumor is growing towards the nervs
and his right arm is partually paralised.Does anyone know any other
treatments??Or something alternative??It does not mather were in the
world,we are willing to go everywere.
Thank you...
Christine





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