Unfortunately, the clinical trial is only open for patients with
newly diagnosed ES, who haven't had any treatment, and you have to go
to Houston for it. We didn't find out about it until after Bradley
had started chemo and we live in MD. Even if we'd known about it, we
knew squat about clinical trials (way back in May, seems like a long
time ago!) and might have turned it down because we didn't want him
used as a guinea pig. That's the root of the reason the drug ImmTher
isn't being produced anymore - not enough patients in the clinical
trial for the Doc to publish statistically correct findings, which
would eventually give the drug manufacturer a basis to get all the
approvals it needs to produce more for sale/distribution to patients
as a standard treatment option. So the drug company isn't making any
more, no profit to be seen in the near or distant future. No $$$, no
ImmTher. That's why the Lance Armstrong foundation is so big on
promoting an understanding of clinical trials, because most people
are like us, and expect to simply to a good doctor and be given the
right medicines, never mind the experiments! - Elizabeth

<virginia_faulk71635@y...> wrote:
>
> Elizabeth just wanted to say go for it all it will be
worth it.....
>
> -Elizabeth (step-mom to Bradley, 18, dx 5/27/05 ES/PNET in rib,
left
> lung and chest wall (askin's tumor))
>
>
>
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