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Reply | Forward Message #206 of 519 |
Re: [Ewings Sarcoma] Ewings

Paige, I would try joining the www.acor.org ewings sarcoma group, there are a
ton of ewings surviors, we are personally dealing with relapse right now, but
there are plenty who have been way out of the 5 year survival relapse free.
That group has many more members and a lot of info. Mel

paigegwu <paigegwu@...> wrote:
Hey everyone, my name is Paige and I was diagnosed with Ewings
Sarcoma in 2000, I would love to talk to anyone who has been through
treatment and compare notes, everyone that I know that has had
Ewings hasn't made it or has relapsed so any support would be
awesome!





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Tue Feb 8, 2005 11:17 pm

melimed1232002
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Message #206 of 519 |
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Hey everyone, my name is Paige and I was diagnosed with Ewings Sarcoma in 2000, I would love to talk to anyone who has been through treatment and compare...
paigegwu
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Feb 4, 2005
2:56 am

Hi, my name is Lexi and i was diagnosed in 1996. i would love to chat sometime. paigegwu <paigegwu@...> wrote: Hey everyone, my name is Paige and I was...
Lexi Chopp
smallchopp
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Feb 5, 2005
10:48 pm

Dear Paige, My daughter Caitlin was diagnosed in 2002 and is doing great. She did 48 weeks of chemo and 30 radiation treatments and had a tumor resection. She...
marybeth adkins
JAZZMBM
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Feb 6, 2005
2:01 am

Christine, Sorry to get back to you so late. There is a Pilot Study about to open at the University of Michigan. It is for relapse/recurrent sarcoma patients....
fmorden@...
muse17702000
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Nov 7, 2005
4:50 am

Paige, My son Vinnie was diagnosed with Ewings Sarcoma in 2000. He had 10 months of Chemo and 3 months of radiation. He is now in remission and is doing very...
Sharon Kory
sharonlkory
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Feb 7, 2005
2:38 am

Paige, I would try joining the www.acor.org ewings sarcoma group, there are a ton of ewings surviors, we are personally dealing with relapse right now, but...
Melissa Medley
melimed1232002
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Feb 8, 2005
11:17 pm

Hallo everybody! My boyfriend was first diagnosed with ewings 9 years ago.He has since then been diagnosed with the disease 5 times, 3times in the right ...
christine_conrad_denm...
christine_co...
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Nov 3, 2005
8:42 am

Christine, I would go to www.acor.org and join the ewings group there. I can't believe you guys have gone through so much. I recently lost my husband to...
Melissa Medley
melimed1232002
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Nov 3, 2005
4:37 pm

Christine, I 2nd Melissa's recommendation that you join the ACOR Ewings Sarcoma list. It's at http://listserv.acor.org/archives/e- sarcoma.html There's at...
Elizabeth
egr2058
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Nov 3, 2005
9:09 pm
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