The etopside, with ifosimide, I have heard has worked,
also, for my husband who has recurrent ewing's he did
the topotecan/cytoxn/vincristine and that worked for a
while. You may want to look at the esbabies.com site
for stories and join the acor esarcoma group. There
is a load of information from all the wonderful people
on there. Many of whom are now in our shoes as well.
Melissa

--- Lexi Chopp <smallchopp@...> wrote:

> Hello,
> I am now 13, but had Ewings when I was 5. My tumors
> filled my chest wall with mets to my lungs. I went
> through surgery, radiation, stem cell transplant,
> and a chemo protocol which included Etopside. It
> had good effects for me as well. Please let me know
> if I can help you in any way. My prayers are with
> you and your family.
>
> LC
>
> david Wylie <david43australia@...> wrote:
> Hi all,
>
> My son Tom, has returned with with ewings and had it
> found in his
> eye socket, two in pelvis, and a few in lung. He
> first had it in
> femur and lung and has had 20 months clear. Hes a
> battler and the
> new chemo is working well, eye socket gone. We wait
> three weeks now
> for the response from Etoposide, which so far has
> been good. As you
> can see we are working on the positive, anyway..does
> anywone have
> any info on other treatments that worked well the
> second time
> around. Our oncologist talks about some new
> targetting drugs which
> he is checking on.
>
> Tom is 19 byt he way, anyway, any help from people
> who have got
> through it would be appreciated.
>
>
> Yahoo! Groups SponsorADVERTISEMENT
>
>
> ---------------------------------
> Yahoo! Groups Links
>
> To visit your group on the web, go to:
> http://groups.yahoo.com/group/ewingssarcoma/
>
> To unsubscribe from this group, send an email to:
> ewingssarcoma-unsubscribe@yahoogroups.com
>
> Your use of Yahoo! Groups is subject to the
> Yahoo! Terms of Service.
>
>
>
> ---------------------------------
> Do you Yahoo!?
> Win 1 of 4,000 free domain names from Yahoo! Enter
> now.
>
> [Non-text portions of this message have been
> removed]
>
>




_______________________________
Do you Yahoo!?
Win 1 of 4,000 free domain names from Yahoo! Enter now.
http://promotions.yahoo.com/goldrush