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stem cell transplant   Message List  
Reply | Forward Message #167 of 519 |
Re: [Ewings Sarcoma] stem cell transplant

i am not sure about graft vs. host- there is a lot of stuff i do not know since
i was only 5.
there was not a match so my own marrow was taken out, frozen, then placed back
in my body. let me know if you have any other questions
Lexi

shawny christopher <blshoflich@...> wrote:
im very happy for you I know first hand how hard this thing is to fight. my
tumor started in my right hip and mets to left hip, ribs, skull, lungs, spine,
shoulder. they have gotten under control but i could only get 7 rounds of chemo
6 weeks of radiation to the spine and hips. my counts would not come up after
chemo so they stopped. my brother was a six out of six match for this
transplant. did you have a match and how good was the match? did you have any
graft vs host?

Lexi Chopp <smallchopp@...> wrote:i have now been in remission for 7 years
and 1 month. this procedure was my last, after chemo, radiation, and surgery.
where is your tumor? mine was in my ribs, but they did radiation to my entire
body- there was mets to my lungs. my best advice is to keep a positive
attitude- they gave me less than a 15% chance to live, but here i am.
write back soon, best of luck.
Lexi

shawny christopher <blshoflich@...> wrote:
it has been very rough for me every since ive been diagnosed im 21 years old and
this is last resort for me. just wanted to see how efective this procedure was
and what to expect during this. today is day + 5 thank you for your time.

Lexi Chopp <smallchopp@...> wrote:i had it when i was 5, but would be
happy to answer any questions or discuss anything on your mind

blshoflich <blshoflich@...> wrote:im having the stem cell transplant now
just wanted to hear from
someone else who has had this procedure



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Sun May 16, 2004 5:50 pm

smallchopp
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Message #167 of 519 |
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my daughter was diagnosed with ewing's july '02 with mets to lungs.primary was on tailbone-removed and radiation. chemotherapy was done wrong prior to surgery...
jodi2nt
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Sep 10, 2003
3:51 pm

Jodi, Where is your daughter being treated? Have you talked with MSK out there? Michelle mom to Lexi my daughter was diagnosed with ewing's july '02 with mets...
Lexi Chopp
smallchopp
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Sep 12, 2003
3:51 am

For anyone that was wanting to know some information about stem cells with ewings her is a good webpage. http://www.cureourchildren.org/stemcell.htm Here is a...
kayce_terrill
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Sep 13, 2003
1:50 am

im having the stem cell transplant now just wanted to hear from someone else who has had this procedure...
blshoflich
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May 16, 2004
4:51 pm

i had it when i was 5, but would be happy to answer any questions or discuss anything on your mind blshoflich <blshoflich@...> wrote:im having the stem...
Lexi Chopp
smallchopp
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May 16, 2004
5:04 pm

it has been very rough for me every since ive been diagnosed im 21 years old and this is last resort for me. just wanted to see how efective this procedure...
shawny christopher
blshoflich
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May 16, 2004
5:12 pm

i have now been in remission for 7 years and 1 month. this procedure was my last, after chemo, radiation, and surgery. where is your tumor? mine was in my...
Lexi Chopp
smallchopp
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May 16, 2004
5:18 pm

im very happy for you I know first hand how hard this thing is to fight. my tumor started in my right hip and mets to left hip, ribs, skull, lungs, spine,...
shawny christopher
blshoflich
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May 16, 2004
5:30 pm

i am not sure about graft vs. host- there is a lot of stuff i do not know since i was only 5. there was not a match so my own marrow was taken out, frozen,...
Lexi Chopp
smallchopp
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May 16, 2004
5:50 pm

my son was 19 when he had the stem cell and he just worked at keeping a good attitude and doing as much as possible during the transplant-they even brought a ...
teresa alvarez
alvteresa
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May 16, 2004
6:22 pm

Where are you having it done? My wife was going to have one done but her diagnosis wasn't good enough. It will be hard but we're praying for you. blshoflich...
Daniel McCarty
elliesman2001
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May 16, 2004
5:09 pm

Hi. I had four stem cell transplants. My transplant experience is a lot different from other people's experience. I harvested my own stem cells at the...
kayce_terrill
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May 18, 2004
2:37 am
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