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stem cell transplant   Message List  
Reply | Forward Message #165 of 519 |
Re: [Ewings Sarcoma] stem cell transplant

i have now been in remission for 7 years and 1 month. this procedure was my
last, after chemo, radiation, and surgery. where is your tumor? mine was in my
ribs, but they did radiation to my entire body- there was mets to my lungs. my
best advice is to keep a positive attitude- they gave me less than a 15% chance
to live, but here i am.
write back soon, best of luck.
Lexi

shawny christopher <blshoflich@...> wrote:
it has been very rough for me every since ive been diagnosed im 21 years old and
this is last resort for me. just wanted to see how efective this procedure was
and what to expect during this. today is day + 5 thank you for your time.

Lexi Chopp <smallchopp@...> wrote:i had it when i was 5, but would be
happy to answer any questions or discuss anything on your mind

blshoflich <blshoflich@...> wrote:im having the stem cell transplant now
just wanted to hear from
someone else who has had this procedure



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[Non-text portions of this message have been removed]
Sun May 16, 2004 5:18 pm

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smallchopp
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Forward 		Message #165 of 519 |
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my daughter was diagnosed with ewing's july '02 with mets to lungs.primary was on tailbone-removed and radiation. chemotherapy was done wrong prior to surgery... 		jodi2nt
Offline Send Email 		Sep 10, 2003
3:51 pm

Jodi, Where is your daughter being treated? Have you talked with MSK out there? Michelle mom to Lexi my daughter was diagnosed with ewing's july '02 with mets...
Lexi Chopp
smallchopp
Offline Send Email 		Sep 12, 2003
3:51 am

For anyone that was wanting to know some information about stem cells with ewings her is a good webpage. http://www.cureourchildren.org/stemcell.htm Here is a...
kayce_terrill
Offline 		Sep 13, 2003
1:50 am

im having the stem cell transplant now just wanted to hear from someone else who has had this procedure...
blshoflich
Offline Send Email 		May 16, 2004
4:51 pm

i had it when i was 5, but would be happy to answer any questions or discuss anything on your mind blshoflich <blshoflich@...> wrote:im having the stem...
Lexi Chopp
smallchopp
Offline Send Email 		May 16, 2004
5:04 pm

it has been very rough for me every since ive been diagnosed im 21 years old and this is last resort for me. just wanted to see how efective this procedure...
shawny christopher
blshoflich
Offline Send Email 		May 16, 2004
5:12 pm

i have now been in remission for 7 years and 1 month. this procedure was my last, after chemo, radiation, and surgery. where is your tumor? mine was in my...
Lexi Chopp
smallchopp
Offline Send Email 		May 16, 2004
5:18 pm

im very happy for you I know first hand how hard this thing is to fight. my tumor started in my right hip and mets to left hip, ribs, skull, lungs, spine,...
shawny christopher
blshoflich
Offline Send Email 		May 16, 2004
5:30 pm

i am not sure about graft vs. host- there is a lot of stuff i do not know since i was only 5. there was not a match so my own marrow was taken out, frozen,...
Lexi Chopp
smallchopp
Offline Send Email 		May 16, 2004
5:50 pm

my son was 19 when he had the stem cell and he just worked at keeping a good attitude and doing as much as possible during the transplant-they even brought a ...
teresa alvarez
alvteresa
Offline Send Email 		May 16, 2004
6:22 pm

Where are you having it done? My wife was going to have one done but her diagnosis wasn't good enough. It will be hard but we're praying for you. blshoflich...
Daniel McCarty
elliesman2001
Offline Send Email 		May 16, 2004
5:09 pm

Hi. I had four stem cell transplants. My transplant experience is a lot different from other people's experience. I harvested my own stem cells at the...
kayce_terrill
Offline 		May 18, 2004
2:37 am
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