Hi All,
I belong to the other ESARC listing at ACOR, but found out there
is another group here. So, I'm just sticking my nose in to say "HI"
and to let you know I'm here if you need me.
My name is Fred Morden. My son Brian died of ES last Feb. We
formed the www.brianmordenfoundation.org to support research
into ES and help bring the day of cure closer. I put the website
up because it says a lot more about what I do and our foundation
does than a lot of BS here would.
This is not a letter of solitation. You have enough on your mind
as it is. We've been there and done that. I promised my son that
before I died I would "get a piece of this disease" and all of our
work has to do with fulfilling that promise. As you can see on the
BMF site, we have already done some good things. But, it is our
experience with this disease and our commitment to find an
answer that may be of most help to you.
I held my son in my arms when he died, so nothing is going to
cause me to retreat or be upset with what you are going through.
I will read your postings and see if there is anything I can offer to
help.
Thank you for being here. It is much easier to turn away from
something so horriable. Let the fight continue until the last
tumor cell is gone and no child, adolescent, adult, parent or
spouse needs to know the words Ewing's Sarcoma.
Fred