Thank for the help. My son is now 16. He was 15 at diagnosis. He
had a good radiologic response prior to surgery from the initial
chemotherapy. The pathology from his surgery showed only microscopic
remants of tumor. The margins were clear except for the part that
was autoclaved. Because any leftover tumor was killed in the
autoclave we do not see the benefit of radiation. The radiation
oncologist and the orthopedic oncolgist agree. The other problem was
that he had 5 nodules in his lung prior to chemo 9mm, 5mm, 4mm,4mm
and 3mm. They all went away in a month. So another big question is
do these size nodules count as metastatic disease, making a stem cell
transplant more indicated.

Dave

--- In ewingssarcoma@yahoogroups.com, Melissa Medley
<melimed1232002@y...> wrote:
> I wish other treatment options had been mentioned to
> us as they are to you. We did the exact same thing
> you did basically and were told we were finished.
> Then 3 months later it came back. You want to finish
> this awful thing off any way you can so it will not
> reccur. There are not to many options if it does. We
> are on our second clinical trial and it is extremely
> scary. Believe me if I had know them what I know now
> I would do everything to finish this thing off. It is
> hard to think of when you think it is gone (and it may
> be) but you never know. It has recurred in both his
> lungs and we are dealing with it now. How were the
> margins? Ours were clear and it still came back. So
> be careful. I know you are ready to be done, but
> better finish it now than start all over again.
> --- marybeth adkins <jazzmbm@y...> wrote:
> >
> >
> >
> > Dear Dave,
> >
> > How old is your son? how well did he respond to the
> > chemo? why no radiation?
> >
> > My daughter is nine and was treated at St. Jude's
> > and her tumor was 14x9x9 in the pelvic region. Our
> > tumor was very large and I have not been told what
> > you have been told. I have been told reoccurance
> > depends on child's initial response to treatment,
> > age, health of child prior to chemo, there are many
> > factors. I don't think we are ever reassured of no
> > reoccurance and if reoccurance happens I am told it
> > is in later years that the possibility is higher.
> >
> >
> >
> > Marybeth
> >
> > jazzmbm@y...
> >