Hi
I have been reading your emails about ewings coming back say in years down the
road but you have to look at it in the
context that a cure may be found and it is up to everyone to support research
in Ewings, and with medical science
racing along now especially with investigations in the working of genes I feel
a breakthrough will come.
patricia


----- Original Message -----
From: Lexi Chopp
To: ewingssarcoma@yahoogroups.com
Sent: Monday, November 03, 2003 1:31 AM
Subject: Re: [Ewings Sarcoma] Two Strikes....


I have a little advice. Think about it this way: If your body could deal
with it the first time, why should the second be any different. I have a friend
who has a similar situation to yours. She had Ewings in her leg, was in
remission for 17 years, and it came back in her chest. The good news is that
she's been in remission now for 4 or 5 years. Hope that is a little
encouraging.

Lexi

Kyle <kylefrick_ks@...> wrote:
I was first diagnosed with Ewing's Sarcoma in Sept. of 1986, and went
through all the chemo regimens they had at the time: Cytoxin,
Actiniomyacin, Adriomyacin, Vinctristine, plus 3 months of radiation
concurrently. The tumor was located in my T3-C7 vertebrae, so you
can imagine how much fun that was. So now I am going to fast forward
to Sept. 2002. I started getting aches in my lower back, and didn't
think much about it, I took some Advil, and it seemed to help for a
while. A couple of weeks later, the pain moved to the middle of my
back, but again, I didn't think much about it, it had been over 15
years, and I was well out of the woods. The pain eventually moved up
to the same spot that my tumor was in before, and became so intense
that I could do nothing but stay in bed. I new at that time what was
going on, and it was confirmed by the Oncology dept. at the
University of Kansas Hospital. My insurance considered this a pre-
existing condition, and promptly cancelled my policy. I was able to
get medicaid, and went through a years worth of Ifos and Messna. I
am also not nearly as resilient as I was when I was 16. This time
the cancer took away my ability to walk, and it took me 6 months and
four surgeries just to be able to get around by myself. I am 33 now,
and I have lost my career, and a large part of my life. I feel for
anyone who is going through this as a teenager now...but I have to
warn you...this may not be the last time you have to deal with this.
I read in one of the messages that someone was just waiting around
for the other shoe to drop, and frankly I could not agree with that
person more. I guess I am just wondering where to go from here...


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