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My best friend   Message List  
Reply | Forward Message #124 of 519 |
Re: [Ewings Sarcoma] My best friend

My fiance's has spread to his lungs. What chemo is
she on? It is very important to have the right
doctors and be doing the correct things at the right
timing. If there are any questions I can answer I
would be glad to. We have been dealing with this for
2 years now. It has reccured in his lungs and we are
on a trial drug that is at least stablizing it called
exatecan mesylate. However, if hers is not recurrent
you should be on the main chemo regimen it seems.
Have you thought of radiation. We have not done it
yet however, we do see it in our future. We are still
looking for different opinions anywhere we find a good
source and time. MM-

-- minnie2169 <minnie2169@...> wrote:
> Hi my name is Christina and my best friend was found
> to have Ewing's
> sarcoma about a year ago. She has it in her pelvic
> area and it
> spread to her lungs and skull. She went through
> chemo and surgery to
> remove the main tumor. But after all that she found
> out it has
> spread some more. Is anyone else dealing with this
> kinda of
> situation? What have your doctor's said? Her
> doctor's told her there
> is not much more they can do. She is starting to
> lose hope. Maybe
> someone can talk to her that has the same situation.
> I just want her
> to be able to talk to someone who is in the same
> situation and
> understand what she is going through. I love her
> like a sister and
> wish I could do more for her.
> Thank you
> Christina
>
>


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Tue Oct 21, 2003 7:12 pm

melimed1232002
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Message #124 of 519 |
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Hi my name is Christina and my best friend was found to have Ewing's sarcoma about a year ago. She has it in her pelvic area and it spread to her lungs and...
minnie2169
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Oct 21, 2003
3:21 pm

HI Christina! I was not in the exact same situation that your friend is in but I am more than willing to talk and answer any questions. e-mail me separately...
Lexi Chopp
smallchopp
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Oct 21, 2003
7:11 pm

Lexi, Hey thank you for e-mailing me back. So what is your situation? What did your doctors do for you? I thought maybe if I could get in touch with some...
Christina Schaffer
minnie2169
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Oct 21, 2003
7:19 pm

Christina, I am always happy to tell my story. I am now 12 years old. I was dx at age 5. My tumor was in my rib cage, taking up the whole right side. When...
Lexi Chopp
smallchopp
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Oct 23, 2003
12:54 am

My fiance's has spread to his lungs. What chemo is she on? It is very important to have the right doctors and be doing the correct things at the right ...
Melissa Medley
melimed1232002
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Oct 21, 2003
7:13 pm

I just wanted to let everyone know that my best friend nikki lost her battle with Ewings. She passed away on feb 28. I know I talk to a few people in this...
Christina Schaffer
minnie2169
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Mar 12, 2004
1:31 pm

Christina, I believe I may have talked to you before, or remember your posts. So sorry for your loss. Lexi Christina Schaffer <minnie2169@...> wrote: I...
Lexi Chopp
smallchopp
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Mar 14, 2004
10:49 pm
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