I go to the dr. this coming Friday, that's when he does most of his VNS patients just to keep things on the same track. I don't know if he is going to change...
Hi my name is Jimmy. I go in for surgery tomorrow ( May 2 ). The first part is an internal eeg. The second surgery ( one week latter) they go back in and...
Hi Marie, My name is Jimmy, I also had meningitis age 1) . I have grand and pettie mals. I am going in for surgery on May 2. You may want to look into a group...
Heeeyyyy I was hoping to hear from you before you went. Kyle and I have been thinking of you this weekend. Go with the spirit of knowing the surgeons and God...
hi everyone i have some great new for everyone to hear. i have not had a seizer in almost nine months. i hope that everyone has the best of luck with theirs as...
Congrats Katie....we bow humbly at your feet and remain optimistic (with you as a role model) that we shall also achieve such a milestone ;-) Thanks for the...
Katie I am so proud and happy for you. Please keep doing whatever you are doing as it is surely working for you. In health and hope for the future. Julie If...
Marie, I have all the info you need for "seizure dogs" location and training for you and your new dog. Let me know if you still haven't found anything and I...
Hi Doris Yes please let us know - that would be great if they were. Would love to be able to be there but kind of difficult being here in Canada. :) Take care...
Hello everyone I know that I have not been posting about all of what has been going on with the VNS, my doctors appointment about the lyrica and anything else...
Dear Brandon, Hi. I know it can be very hard. I've had epilepsy since I was 11 and I'm 28 now. Luckily for me, I was able to have brain surgery last January...
Hi Brandon, Let us hear from you any time. There are all ages here and from all over the world and with all kinds of experiences. It really helps just to...
Hi Kathy, This is Frank, I wrote about the VNS(Vagal Nerve Stimulator)or at least one of the people who did because I have one. What she is is an implant that...
Frank Mcleod
fMC1@...
May 4, 2006 3:13 am
8667
... From: "Frank Mcleod" <fMC1@...> To: <epilepsysupportandeducation@yahoogroups.com> Sent: Wednesday, May 03, 2006 7:44 PM Subject: [Epilepsy Support...
Frank Mcleod
fMC1@...
May 4, 2006 3:45 am
8668
HI Brandon Welcome to the group. I started having seizures when I was 19 but they were not diagnosed until I was 24. I will be 25 this year and I am still...
Have any of you had a severe case of hyperventalating while taking Lamictal? In the last week and a half I have been rushed to the hospital in the squad twice....
I am on Lamictal and I get toxic about 2 times a year and it is a sever case me toxic levels. And then I am rushed to the hospital it is even so bad that it...
i have been on lamictal for about 6 years now.. and i have had very few problems with it.. the only problem that i can recall having to do with the lamictal is...
I am new to the medication too I am only on day 13......I called my doctor and he said that it might just be part of my seizure.....but it was never like that...
Hello Brandon, Welcome to the group. I am 37, and have had a seizure disorder since birth.
My grand mals have been overall controlled for the past 12 years...
when i was put on lamictal my face swelled so they took me off of it right away... but i think that it would be in your best interest to talk to your doctor...
I have read emails on here and it seems as though most people are on lamictil. I am curious to know has anyone or anyone's child ever been or is now on the...
I realy like my neuro. He is even a person that listens to me. He even has me come in right a way when I have the feeling that I am starting to get toxic. He...
I have been taking dilantin for over ten years and ever since the start my gums have been sore as one of the side effects, but in the last year my gums have...
codyrjm@...
May 5, 2006 1:37 am
8678
Randy,. I do know that fake sugars such as aspartame, nutrasweet and Splenda have been shown to cause seizures. These days there is Splenda in more than we...
Tina, Good for you in looking things up for yourself and getting second opinions. I find now that I like to ask opinions of people on the meds and read...
Hi Sarah, Aspartame is known to digest into a paint thinner base then breaks down into
your blood stream. This in turn will go to your brain, and throw off...
Hi Randy, I was taking dillantin for about 25 years and tthe one thing I can't forget is bloody gums and terrible breath! My gums got so bad I had to have a...
Frank McLeod
fMC1@...
May 5, 2006 6:40 am
8684
you must be extremely lucky to have a good neuro......I am goign to start seeing an epptoligst (I know i proablly spelled that wrong) I am waitting on a...
I suspect I am having a reaction to Lamictal. I have taken Lamictal for years and at times have a swelling in my throat. It is an effort to force down food. My...
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