A 'Thank You' to all those who have joined ESG. Everyone is welcome whether their have epilepsy or not and all ages are welcome. Please welcome the following...
Hope that you get to see my reply Angie. I noticed that you posted yours on Oct 1st. I used to belong to this group, but left it, I think because it wasn't...
Most of you know me. I have left temporal lobe epilepsy. ive been doing great on the klonopin and dilantin. ive only had 2 gran mal's since the med change. i...
I feel for you since especially I can kind of relate to what you are experiencing. You mentioned that it is left temporal. Did you have surgery for this, or...
It sounds something similar to what I've had. Did you say that you have actually felt this happen. Tell your dr., you know it's not in your head if it's...
the EEG shows left temporal lobe, i always keep a copy of it with me( so new doc's cant be as arrogant). depakote was the 1st drug 1500 mg a day. i weigh 113...
what do you mean by what youve had, and yes she will go, she my chouffer, ha, ha Dawn Hunter <dawnnie72077@...> wrote:It sounds something similar to...
I'm new to the group, but I don't have epilepsy. I do, however, take an epilepsy drug, Zonegran, for low back pain that is almost to the point of being ...
Welcome to the group! One other medication I know of that I had been taking is Topamax. It too can also be used for other reasons other than epilepsy. One I...
Enter your vote today! A new poll has been created for the epilepsysupportandeducation group: Have you ever been denied or kicked off of Disability aka Social...
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Nov 5, 2005 1:21 am
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hey latin tony!!!! No you are not crazy!!! I have had this happen a couple of times, but I didn't realize it and someone had to wake me up. After they woke me...
thanks for reply, while we know i have real seizures, from all the tests, i was told its still possiblible to have a psudo seizure. its not brought on by...
I APPLYED IN JULY--STILL WAITING--THEY DRAG FEET ... Security just cause they thought that your condition "wasn't severe enough" to put you out of work? ... ...
I was so upset when i said my doctor said i did have epileptic seizures (left temporal lobe) but he also said i had non epileptic (or psudoseizures). i now...
I have siezures, And It's always really hard for me to tell people about them. Because when they find out about it they all think I'm a freak. I know I'm not...
Hi Joy, Never thing as yourself as stupid. One thing I have been avoiding sometimes is making friends that our my age as they are totally unaware of what...
interestingly enough, my last name is St. Pierre, also. My daughter, Kate has been on Zonegran for quite a few years and the doctor said they have found that...
I have the same kind of seizures or at least I did for 40 years before I had surgery in 1999. The returned seizures didn't exist until 2004, when one night I...
I have been given the diagnosis of pseudo-seizures too-but I'm a perfect picture of partial seizures. I just have not been able to capture this seizure state...
i guess i was a few lucky to get my EEG to show what the doctors say are REAL SEIZURES. ITS NOT A PERFECT TEST. the doctor said if the abnormal activity is to...
its hard to get across over the email what you need to say. my girlfriend always goes with me i cant drive. HATE THAT. but i ment please explain your personal...
Thanks so much Janet you've really encouraged me! joy ... before I had surgery in 1999. ... medication now and nothing has happend since. I felt the way you...
you could've had epilepsy your whole life and when you were younger no body really thought of it that way. i've ahd it my whole like but didn't have my first...
sometimes while i watch tv, ill doze on the bed. im not sure how long of a nap i took but when i wake or atleast think i am because, if the same movie is on i...
i heard there is a free website you can go to and ask a doctor a question, and he will answer you. yes you have been great in helping me, but id like to talk...
I know-my hubby has kidney failure-we are always skirting the potassium issue-enough for his heart and not too much for his kidneys. Trudy _____ From:...
ive been told to see an immuologist, and ive also been told to see an endocrinologist. i have medulliary sponge kidney, but no stones or issues in years. im at...
Me too! I've been many places too-I several odd neurological symptoms. The small toes-all 4 of them not the big toe-keep kind of tapping that drives me nuts. I...
OK, let me paint you a picture of me, IM 5'4 and only 111lbs, I have epilepsy and braces on my hand's due to a surgery on them that is impending. I also have a...