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#1755 From: "jannabailey2001" <jannabailey2001@...>
Date: Fri May 2, 2003 5:04 am
Subject: Lori 		jannabailey2001
Offline Offline
Send Email Send Email
  
--- In epilepsysupportandeducation@yahoogroups.com, "Lori Grieve"
<brownykitty@h...> wrote:
> Lori,hello and welcome to Epilepsysupportandeducation. I am Janna
Bailey, one of the Moderaters. I think I can answer your questions.
To post a question, click on post, and type in your question or the
remark you wish to make. To reply to another reader's remark, click
on reply and type what you wish to say. If you would like to write
somebody, click on his or her name underneath email address, write
the person a letter and click on send. I hope that this answers your
questions.
JAnna

Reply | Forward | Messages in this Topic (2)
#1754 From: Sharon <tommyssister1959@...>
Date: Thu May 1, 2003 2:03 am
Subject: Re: [Epilepsy Support and Education] Epilepsy Educations 		tommyssister...
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You said that right!!! Not only am I Lakota, I'm also a Southern Belle.
Taksa ake.
Sharon

Kat Brice <qabalist@...> wrote:
When I hear people make disparaging remarks about our aliment or any aliment for that matter, I listen closely and have been know to jump in with both feet.  Of course, being from the south (giggle) I do it in a very "lady-like" manner!

That goes back to that phrase about a southern Lady can tell someone to go the he## in such a way that they'll enjoy the trip!

LOL,
Kat.

-------------------------------------------

        To follow the path:
        look to the master,
        follow the master,
        walk with the master,
        see through the master,
        become the master.

 Email Me At: qabalist@...
-------------------------------------------

==========================
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Reply | Forward | Messages in this Topic (9)
#1753 From: "Nadja L. Russell" <nadjansc@...>
Date: Thu May 1, 2003 12:16 am
Subject: Re: [Epilepsy Support and Education] just a note 		dixiesass
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Send Email Send Email
 
That is wonderful news.  Besides our children, our best friends are our moms.  I really miss mine, she turned out to be my best friend...
----- Original Message -----
Sent: Wednesday, April 30, 2003 7:48 PM
Subject: Re: [Epilepsy Support and Education] just a note

His is an only child. Surprisingly he did go see his Mom. We didn't think he would. Usually he doesn't bother with her at all.
Vickie

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Reply | Forward | Messages in this Topic (4)
#1752 From: "Nadja L. Russell" <nadjansc@...>
Date: Wed Apr 30, 2003 11:46 pm
Subject: Re: [Epilepsy Support and Education] Re: just a note 		dixiesass
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Wonderful news, rayroy.  It sounds like she is a fighter and won't let anything stand in her way.  Will continue to pray for her and her son.
----- Original Message -----
Sent: Wednesday, April 30, 2003 7:44 PM
Subject: Re: [Epilepsy Support and Education] Re: just a note

Thanks Doris
I got the news tonight. Her operation was a little later than planned. She is recovery now. She is going to be on crutches for 2-4 wks but I guess everything went well.
Thank you for your support.
Vickie

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Reply | Forward | Messages in this Topic (3)
#1751 From: rayroy03582@...
Date: Wed Apr 30, 2003 7:48 pm
Subject: Re: [Epilepsy Support and Education] just a note 		rayroy03582@...
Send Email Send Email
 
His is an only child. Surprisingly he did go see his Mom. We didn't think he would. Usually he doesn't bother with her at all.
Vickie

Reply | Forward | Messages in this Topic (4)
#1750 From: rayroy03582@...
Date: Wed Apr 30, 2003 7:46 pm
Subject: Re: [Epilepsy Support and Education] Re: just a note 		rayroy03582@...
Send Email Send Email
 
She is also going to have to be fitted with a brace for her knee for a while after she gets off the crutches.
Vickie

Reply | Forward | Messages in this Topic (3)
#1749 From: rayroy03582@...
Date: Wed Apr 30, 2003 7:44 pm
Subject: Re: [Epilepsy Support and Education] Re: just a note 		rayroy03582@...
Send Email Send Email
 
Thanks Doris
I got the news tonight. Her operation was a little later than planned. She is recovery now. She is going to be on crutches for 2-4 wks but I guess everything went well.
Thank you for your support.
Vickie

Reply | Forward | Messages in this Topic (3)
#1748 From: "Nadja L. Russell" <nadjansc@...>
Date: Wed Apr 30, 2003 11:28 pm
Subject: Re: [Epilepsy Support and Education] Epilepsy Educations 		dixiesass
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Yes, it sure does.  I've been known to do that at Free Republic and the various Freeper rooms at Paltalk.  But then again having lived up north for two years ... 
 
Dixie
----- Original Message -----
From: Kat Brice
Sent: Wednesday, April 30, 2003 7:24 PM
Subject: Re: [Epilepsy Support and Education] Epilepsy Educations

When I hear people make disparaging remarks about our aliment or any aliment for that matter, I listen closely and have been know to jump in with both feet.  Of course, being from the south (giggle) I do it in a very "lady-like" manner!

That goes back to that phrase about a southern Lady can tell someone to go the he## in such a way that they'll enjoy the trip!

LOL,
Kat.

-------------------------------------------

        To follow the path:
        look to the master,
        follow the master,
        walk with the master,
        see through the master,
        become the master.

 Email Me At: qabalist@...
-------------------------------------------

==========================
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http://www.geocities.com/epilepsy911/penpals.html
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Reply | Forward | Messages in this Topic (9)
#1747 From: Kat Brice <qabalist@...>
Date: Wed Apr 30, 2003 11:24 pm
Subject: Re: [Epilepsy Support and Education] Epilepsy Educations 		qabalista
Offline Offline
Send Email Send Email
 
When I hear people make disparaging remarks about our aliment or any aliment for that matter, I listen closely and have been know to jump in with both feet.  Of course, being from the south (giggle) I do it in a very "lady-like" manner!

That goes back to that phrase about a southern Lady can tell someone to go the he## in such a way that they'll enjoy the trip!

LOL,
Kat.

-------------------------------------------

        To follow the path:
        look to the master,
        follow the master,
        walk with the master,
        see through the master,
        become the master.

 Email Me At: qabalist@...
-------------------------------------------


Reply | Forward | Messages in this Topic (9)
#1746 From: "Nadja L. Russell" <nadjansc@...>
Date: Wed Apr 30, 2003 10:39 pm
Subject: Re: [Epilepsy Support and Education] Epilepsy Educations 		dixiesass
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ABSO-YOU GOT DAT RIGHT-LUTELY!!!!!!!!!!!!!!!!   I was living in Georgia when I finally got my license.  My father wouldn't allow me to have a license when I turned 16, I had to wait till I was in my late twenties.  Now, here in Summerville, South Carolina, because of the Grand Mal seizure I can't drive for six months.  But because there was a man here who had been drinking and driving and killed two cops, oh and by the way, was an epileptic, rumour is going around that they might be considering changing the law. 
 
Bill Sharpe on Channel 5 was very derogatory and snooty about the epilepsy issue.  Channel 5 received several calls chastizing them and Sharpe for their attitude towards epileptics and yes, I was one of them. 
 
Luckily, I have I have always been above board with the Insurance Company and the State Highway Department.  But going from being controlled by meds to what is happening now, I don't think I will ever be able to drive again.
 
When I hear people make disparaging remarks about our aliment or any aliment for that matter, I listen closely and have been know to jump in with both feet.  Of course, being from the south (giggle) I do it in a very "lady-like" manner!
 
Dixie
 
 
----- Original Message -----
Sent: Wednesday, April 30, 2003 3:11 PM
Subject: Re: [Epilepsy Support and Education] Epilepsy Educations

Even if Epilepsy Education is not persued in a state it is still a worth while cause to pick up.  Fifteen years ago in our state, people with epilepsy had to go through he&# just to get a driver's license.  Believe me, I was there.  But, through the efforts of many people in numerous Epilepsy Support Groups throughout the state, things started changing over the years.  In ten years, it went from the point of filling out 3 pages of paperwork that 90% had nothing to do with epilepsy, to one question:  "When was the date of your last seizure?".  Then take it to your doctor, and it's on it's way.  It does pay to persue.
 
Craig Sheffield
 
Group Moderator
 
Epilepsy, Chronic Migraine, Severe Anxiety
-------Original Message-------
 
Date: Wednesday, April 30, 2003 2:35:52 AM
Subject: Re: [Epilepsy Support and Education] Epilepsy Educations
 
The only "education" that I have seen about epilepsy in any state that I have lived in are the pamphets that I have from the doctors offices and what I have sent off for years ago.  Those states include - Pennsylvania, North Carolina, South Carolina, Georgia, Florida and Tennesse.  
 
At one point several of us tried to bring interest in this disabilitating disorder to the public in our area.  We had one interview on the noon day show of the girl that started it.  Of course, it only lasted about a minute.  Also held a bowling tournament to try and raise awareness and funds for the Epilepsy Foundation, but as usual the efforts were frowned on and dismissed.  
 
People still classify Epileptics in the same catagory as Schizophrenics and other with severe mental disorders simply because it is an affliction of the brain.  The brain should be give the designation of "THE LAST GREAT FRONTIER".
 
It is the most mysterious organ in the human body simply because science can't explain or understand how it works.  Oh, I know.  We know which part of the brain performs some physical functions and a little bit about the neurons and axion and other minor things -  OOooops Chile beef is burning- brb.
Ummmmm, sorry, craving chilly and hot chocolate at 3 in the morning!          
----- Original Message -----
Sent: Monday, April 28, 2003 9:34 PM
Subject: [Epilepsy Support and Education] Epilepsy Educations

I would like to know how Epilepsy education is done in your area at
schools or shopping locations.  Since I see how it is handled here in
NY, I would like to compare how other locations do this.  I want to
push for needed changes here in NY, and feel that if I knew how it is
handled in other states, I could be better prepared to persue this.
Thanks for your time.

  Sincerely,  Doris 



==========================
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==========================
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Reply | Forward | Messages in this Topic (9)
#1745 From: "Nadja L. Russell" <nadjansc@...>
Date: Wed Apr 30, 2003 10:45 pm
Subject: Re: [Epilepsy Support and Education] (unknown) 		dixiesass
Offline Offline
Send Email Send Email
 
Lori, when I first joined and saw the message I sent come right back, I was a little perplexed until I realized that a copy of every message that I send everyone goes to everyone - including me! 
 
As long as it doesn't come back from the mail daemon/ mail adminstrator or one of those 'bots, then you know that you are getting out to people.
 
Dixie
 
P.S.      There are a really great bunch of people here too.
----- Original Message -----
Sent: Wednesday, April 30, 2003 5:06 PM
Subject: [Epilepsy Support and Education] (unknown)

Hello, i am a member of this group but dont know how to send, or see message boards or anything, i feel so lost, please help, i tried to send a few letters they came back:( sincerely, Lori Grieve.......


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Reply | Forward | Messages in this Topic (92)
#1744 From: "Craig Sheffield" <headspin@...>
Date: Wed Apr 30, 2003 7:11 pm
Subject: Re: [Epilepsy Support and Education] Epilepsy Educations 		headspin54601
Offline Offline
Send Email Send Email
 
Even if Epilepsy Education is not persued in a state it is still a worth while cause to pick up.  Fifteen years ago in our state, people with epilepsy had to go through he&# just to get a driver's license.  Believe me, I was there.  But, through the efforts of many people in numerous Epilepsy Support Groups throughout the state, things started changing over the years.  In ten years, it went from the point of filling out 3 pages of paperwork that 90% had nothing to do with epilepsy, to one question:  "When was the date of your last seizure?".  Then take it to your doctor, and it's on it's way.  It does pay to persue.
 
Craig Sheffield
 
Group Moderator
 
Epilepsy, Chronic Migraine, Severe Anxiety
-------Original Message-------
 
Date: Wednesday, April 30, 2003 2:35:52 AM
Subject: Re: [Epilepsy Support and Education] Epilepsy Educations
 
The only "education" that I have seen about epilepsy in any state that I have lived in are the pamphets that I have from the doctors offices and what I have sent off for years ago.  Those states include - Pennsylvania, North Carolina, South Carolina, Georgia, Florida and Tennesse.  
 
At one point several of us tried to bring interest in this disabilitating disorder to the public in our area.  We had one interview on the noon day show of the girl that started it.  Of course, it only lasted about a minute.  Also held a bowling tournament to try and raise awareness and funds for the Epilepsy Foundation, but as usual the efforts were frowned on and dismissed.  
 
People still classify Epileptics in the same catagory as Schizophrenics and other with severe mental disorders simply because it is an affliction of the brain.  The brain should be give the designation of "THE LAST GREAT FRONTIER".
 
It is the most mysterious organ in the human body simply because science can't explain or understand how it works.  Oh, I know.  We know which part of the brain performs some physical functions and a little bit about the neurons and axion and other minor things -  OOooops Chile beef is burning- brb.
Ummmmm, sorry, craving chilly and hot chocolate at 3 in the morning!          
----- Original Message -----
Sent: Monday, April 28, 2003 9:34 PM
Subject: [Epilepsy Support and Education] Epilepsy Educations

I would like to know how Epilepsy education is done in your area at
schools or shopping locations.  Since I see how it is handled here in
NY, I would like to compare how other locations do this.  I want to
push for needed changes here in NY, and feel that if I knew how it is
handled in other states, I could be better prepared to persue this.
Thanks for your time.

  Sincerely,  Doris 



==========================
Epilepsy Pen Pals
http://www.geocities.com/epilepsy911/penpals.html
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==========================
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Reply | Forward | Messages in this Topic (9)
#1743 From: "Lori Grieve" <brownykitty@...>
Date: Wed Apr 30, 2003 9:06 pm
Subject: (No subject) 		brownykitty@...
Send Email Send Email
 

Hello, i am a member of this group but dont know how to send, or see message boards or anything, i feel so lost, please help, i tried to send a few letters they came back:( sincerely, Lori Grieve.......


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Reply | Forward | Messages in this Topic (2)
#1742 From: "Craig Sheffield" <headspin@...>
Date: Wed Apr 30, 2003 6:54 pm
Subject: Re: [Epilepsy Support and Education] RE: Appointment in Rochester 		headspin54601
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Hi Doreen,
 
We'll keep  you and Seth in our prayers.  I know life can be hard when seizures are not controlled.  I went through a very difficult stage of this in my life in the mid 90s when I would have several grand mals.  It was a good thing my Neurologist found a better combination of medications, which eventually slowed  down the grand mals, and then they stopped.  I now just deal mostly with simple partials.  Where there is faith, there is hope.  We'll be praying for the both of you.
 
Craig Sheffield 
 
Group Moderator
 
Epilepsy, Chronic Migraine, Severe Anxiety
-------Original Message-------
 
Date: Wednesday, April 30, 2003 5:46:36 AM
Subject: [Epilepsy Support and Education] RE: Appointment in Rochester
 

Please keep me in your thoughts as tomorrow I take Seth to the Epilespy Clinic at Strong Hospital.  We have had a very hard time getting and keeping his seizures under control.

Thank you all for ther support and info that is shared here.  Even though I don't post a lot I get a lot of help from this list!!!

Bless you all!!  As you truly know the journey I am walking!!!

 

Hugs,

Doreen

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==========================
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Reply | Forward | Messages in this Topic (2)
#1741 From: Sandra <Suda_26@...>
Date: Wed Apr 30, 2003 2:12 pm
Subject: Re: [Epilepsy Support and Education] just a note 		suda_26
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Prays are sent Your way to Louise and You for thinking of Her ....
G-d Be With You Both ....  
 
                       Sandra - Froggie ....


rayroy03582@... wrote:
Hey guys
would you mind saying a prayer for a friend of mine. She had a bad seizure last week in front of the IGA store here in Berlin, NH. She took quite a fall and crack the top of her knee cap all the way across. She go home but didn't even know how she made it home.
Today she is going to have surgery on her knee. they are going to wire it back together.
Her name is Louise Needham.
Her son also has seizures and doesn't even acknowledge his mom

Vickie Roy
Berlin, NH

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Reply | Forward | Messages in this Topic (4)
#1740 From: "Nadja L. Russell" <nadjansc@...>
Date: Wed Apr 30, 2003 1:19 pm
Subject: Re: [Epilepsy Support and Education] just a note 		dixiesass
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She is added.  Also her son I pray that he realizes that the one gift that GOD gave us that can never be replaced is his Mom and Dad and brother and sister.
----- Original Message -----
Sent: Wednesday, April 30, 2003 8:38 AM
Subject: [Epilepsy Support and Education] just a note

Hey guys
would you mind saying a prayer for a friend of mine. She had a bad seizure last week in front of the IGA store here in Berlin, NH. She took quite a fall and crack the top of her knee cap all the way across. She go home but didn't even know how she made it home.
Today she is going to have surgery on her knee. they are going to wire it back together.
Her name is Louise Needham.
Her son also has seizures and doesn't even acknowledge his mom

Vickie Roy
Berlin, NH

==========================
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Reply | Forward | Messages in this Topic (4)
#1739 From: "keepsmiling1023" <dorisellen@...>
Date: Wed Apr 30, 2003 1:28 pm
Subject: Re: just a note 		keepsmiling1023
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Hi Vickie,
    Just noticed your note about Louise and her fall.  She will be
with me in prayer at mass at noon today.  Let us know how all goes.
    Peace.

     Sincerely,  Doris

--- In epilepsysupportandeducation@yahoogroups.com, rayroy03582@a...
wrote:
> Hey guys
> would you mind saying a prayer for a friend of mine. She had a bad
seizure
> last week in front of the IGA store here in Berlin, NH. She took
quite a fall
> and crack the top of her knee cap all the way across. She go home
but didn't
> even know how she made it home.
> Today she is going to have surgery on her knee. they are going to
wire it
> back together.
> Her name is Louise Needham.
> Her son also has seizures and doesn't even acknowledge his mom
>
> Vickie Roy
> Berlin, NH

Reply | Forward | Messages in this Topic (4)
#1737 From: rayroy03582@...
Date: Wed Apr 30, 2003 8:38 am
Subject: just a note 		rayroy03582@...
Send Email Send Email
 
Hey guys
would you mind saying a prayer for a friend of mine. She had a bad seizure last week in front of the IGA store here in Berlin, NH. She took quite a fall and crack the top of her knee cap all the way across. She go home but didn't even know how she made it home.
Today she is going to have surgery on her knee. they are going to wire it back together.
Her name is Louise Needham.
Her son also has seizures and doesn't even acknowledge his mom

Vickie Roy
Berlin, NH

Reply | Forward | Messages in this Topic (4)
#1735 From: "Nadja L. Russell" <nadjansc@...>
Date: Wed Apr 30, 2003 11:16 am
Subject: Re: [Epilepsy Support and Education] RE: Appointment in Rochester 		dixiesass
Offline Offline
Send Email Send Email
 
He is in our prayers.
----- Original Message -----
Sent: Wednesday, April 30, 2003 6:46 AM
Subject: [Epilepsy Support and Education] RE: Appointment in Rochester

Please keep me in your thoughts as tomorrow I take Seth to the Epilespy Clinic at Strong Hospital.  We have had a very hard time getting and keeping his seizures under control.

Thank you all for ther support and info that is shared here.  Even though I don't post a lot I get a lot of help from this list!!!

Bless you all!!  As you truly know the journey I am walking!!!

 

Hugs,

Doreen

Do you Yahoo!?
The New Yahoo! Search - Faster. Easier. Bingo.

==========================
Epilepsy Pen Pals
http://www.geocities.com/epilepsy911/penpals.html
Place your FREE ad in today! Over 160 Ads!





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Reply | Forward | Messages in this Topic (2)
#1734 From: adams doreen <dozerdor@...>
Date: Wed Apr 30, 2003 10:46 am
Subject: RE: Appointment in Rochester 		DozerDor
Offline Offline
Send Email Send Email
 

Please keep me in your thoughts as tomorrow I take Seth to the Epilespy Clinic at Strong Hospital.  We have had a very hard time getting and keeping his seizures under control.

Thank you all for ther support and info that is shared here.  Even though I don't post a lot I get a lot of help from this list!!!

Bless you all!!  As you truly know the journey I am walking!!!

 

Hugs,

Doreen

Do you Yahoo!?
The New Yahoo! Search - Faster. Easier. Bingo.

Reply | Forward | Messages in this Topic (2)
#1732 From: "Nadja L. Russell" <nadjansc@...>
Date: Wed Apr 30, 2003 7:28 am
Subject: Re: [Epilepsy Support and Education] Epilepsy Educations 		dixiesass
Offline Offline
Send Email Send Email
 
The only "education" that I have seen about epilepsy in any state that I have lived in are the pamphets that I have from the doctors offices and what I have sent off for years ago.  Those states include - Pennsylvania, North Carolina, South Carolina, Georgia, Florida and Tennesse.  
 
At one point several of us tried to bring interest in this disabilitating disorder to the public in our area.  We had one interview on the noon day show of the girl that started it.  Of course, it only lasted about a minute.  Also held a bowling tournament to try and raise awareness and funds for the Epilepsy Foundation, but as usual the efforts were frowned on and dismissed.  
 
People still classify Epileptics in the same catagory as Schizophrenics and other with severe mental disorders simply because it is an affliction of the brain.  The brain should be give the designation of "THE LAST GREAT FRONTIER".
 
It is the most mysterious organ in the human body simply because science can't explain or understand how it works.  Oh, I know.  We know which part of the brain performs some physical functions and a little bit about the neurons and axion and other minor things -  OOooops Chile beef is burning- brb.
Ummmmm, sorry, craving chilly and hot chocolate at 3 in the morning!          
----- Original Message -----
Sent: Monday, April 28, 2003 9:34 PM
Subject: [Epilepsy Support and Education] Epilepsy Educations

I would like to know how Epilepsy education is done in your area at
schools or shopping locations.  Since I see how it is handled here in
NY, I would like to compare how other locations do this.  I want to
push for needed changes here in NY, and feel that if I knew how it is
handled in other states, I could be better prepared to persue this.
Thanks for your time.

  Sincerely,  Doris 



==========================
Epilepsy Pen Pals
http://www.geocities.com/epilepsy911/penpals.html
Place your FREE ad in today! Over 160 Ads!





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Reply | Forward | Messages in this Topic (9)
#1725 From: Sandra <Suda_26@...>
Date: Tue Apr 29, 2003 6:11 pm
Subject: [Epilepsy Support and Education] Hi, Kat ... I'm Sandra - Froggie .... I have strob light seizures .... 		suda_26
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Kat ...

Yes I have that seizure disorder too and my husband noticed it for every time I saw a flashing light of any kind even movements could trigger my seizures and that is called Strobe Light Seizures .... Any type of flashing will trigger it off .... Hope I helped for I too wish they would stop putting ads like that for my sake and others like Us .... G-d Bless ...

         Sandra - Froggie ....

 

My email about this came with an advertisement for a
home security system .. which blinked on and off...
just the type of thing to cause seizures. Was that
standard with all of the email's in this mailing.

Yahoogroups just sticks on whatever the heck they feel like... Not
necessarily any particular message or to all people.

What bugs me most is the new Chevy ads on TV - they are WAY too strobe. I'm
going to write the company a letter, but I figure I better know more about
what to say first :-)

Kat.


-------------------------------------------

        To follow the path:
        look to the master,
        follow the master,
        walk with the master,
        see through the master,
        become the master.

Email Me At: qabalist@...



Fully Rely On G-d, G-d Is Eternal - Froggie

        Peace be with Us All Always .... 

         "G-d Be With All Our Troops"

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#1724 From: "Craig Sheffield" <headspin@...>
Date: Tue Apr 29, 2003 7:18 pm
Subject: RE: [Epilepsy Support and Education] Medicine help, moneywise 		headspin54601
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Hi Rhealene,
 
Check your county to see if there is a plan set up to help pay the cost of prescriptions for low income families.  I am in one right now, and I only pay $5 for about $1200 worth of prescriptions per month.  Don't be embarrassed by it.  I think prescription cost is a low blow for anyone who is already going through the difficulties of learning to live with epilepsy.  Look into insurance also.  You may be able to pick up a simple private plan that may help you along.  Find out where the help is in the area where you live, and go from there.

 
 
Craig Sheffield
 
Group Moderator
 
Epilepsy, Chronic Migraine, Severe Anxiety
-------Original Message-------
 
Date: Tuesday, April 29, 2003 1:42:16 PM
Subject: RE: [Epilepsy Support and Education] Medicine help, moneywise
 
From: rhealener [mailto:rhealene@...]
Sent: Tuesday, April 29, 2003 7:32 AM
To: epilepsysupportandeducation@yahoogroups.com
Subject: [Epilepsy Support and Education] Medicine help, moneywise


Hi group, I am embarrassed to post this, but.... The medicine my
doctor has me on, will cost $40 a bottle, meaning $80 a month. I
can't afford that. any ideas on where I can get finacial help for
medicine? Thanks. Rhealene



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#1723 From: "Kow-Gurl" <Kow-Gurl@...>
Date: Tue Apr 29, 2003 5:55 pm
Subject: RE: [Epilepsy Support and Education] Medicine help, moneywise 		Kow-Gurl@...
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Hey Rhealener,
    So where do you live, is it in the USA?  Personally I get a good
deal.  So try the Epilepsy Foundation maybe they could help you!
Kow-gurl

-----Original Message-----
From: rhealener [mailto:rhealene@...]
Sent: Tuesday, April 29, 2003 7:32 AM
To: epilepsysupportandeducation@yahoogroups.com
Subject: [Epilepsy Support and Education] Medicine help, moneywise


Hi group, I am embarrassed to post this, but.... The medicine my
doctor has me on, will cost $40 a bottle, meaning $80 a month. I
can't afford that. any ideas on where I can get finacial help for
medicine? Thanks. Rhealene



==========================
Epilepsy Pen Pals http://www.geocities.com/epilepsy911/penpals.html
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#1717 From: pl9071@...
Date: Tue Apr 29, 2003 7:36 am
Subject: Re: [Epilepsy Support and Education] Medicine help, moneywise 		pl9071w
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Contact your local Epilepsy Foundation that can help you.
Or call your state they have different services to help people, some states have a prescription card for disabled people.
Or call your local hospital and apply for free care but you will have to get your prescriptions filled at the hospital.
hopes this helps
Take Care
Lori

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#1716 From: "rhealener" <rhealene@...>
Date: Tue Apr 29, 2003 11:31 am
Subject: Medicine help, moneywise 		rhealener
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Hi group, I am embarrassed to post this, but.... The medicine my
doctor has me on, will cost $40 a bottle, meaning $80 a month. I
can't afford that. any ideas on where I can get finacial help for
medicine? Thanks. Rhealene

Reply | Forward | Messages in this Topic (2)
#1712 From: Kat Brice <qabalist@...>
Date: Tue Apr 29, 2003 8:13 am
Subject: Re: [Epilepsy Support and Education] Newbie 		qabalista
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Jackie
Make sure to have a list of questions ready. In the heat of the moment its very easy to forget.

And if you can find someone to go with you and take notes, that really helps! Or a tape recorder, if your Dr. doesn't freak out about it :-D

Kat.

-------------------------------------------

        To follow the path:
        look to the master,
        follow the master,
        walk with the master,
        see through the master,
        become the master.

 Email Me At: qabalist@...
-------------------------------------------


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#1711 From: "Craig Sheffield" <headspin@...>
Date: Tue Apr 29, 2003 2:46 am
Subject: Re: [Epilepsy Support and Education] Epilepsy Educations 		headspin54601
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Hi Doris,
 
Usually, to get any of the situations changed in schools and shopping centers, you need to go to the top in the State.  Especially with Epilepsy.  Unless a large group goes to the legislators, and makes a big noise, it will usually fall on deaf ears.  These polititians see numbers, so the more, the merrier.  Find an Epilepsy Support Group that is willing to move forward, and take on these challenges, and knows how to.  There are plenty out there.  Our State has moved ahead little by little with a lot of pushing at the top.  It is a constant battle, but well worth it.
 
Craig Sheffield 
 
Group Moderator
 
Epilepsy, Chronic Migraine, Severe Anxiety
-------Original Message-------
 
Date: Monday, April 28, 2003 8:34:50 PM
Subject: [Epilepsy Support and Education] Epilepsy Educations
 
I would like to know how Epilepsy education is done in your area at
schools or shopping locations.  Since I see how it is handled here in
NY, I would like to compare how other locations do this.  I want to
push for needed changes here in NY, and feel that if I knew how it is
handled in other states, I could be better prepared to persue this.
Thanks for your time.

  Sincerely,  Doris 



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#1710 From: bkgray2610@...
Date: Mon Apr 28, 2003 10:01 pm
Subject: Re: [Epilepsy Support and Education] Epilepsy Educations 		bkgray26280
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Here in Texas we don't have them,if i had one i would not know what to do..
I would be vary upset.
Thank you for bring up this topic.
Brandi

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#1709 From: "keepsmiling1023" <dorisellen@...>
Date: Tue Apr 29, 2003 1:34 am
Subject: Epilepsy Educations 		keepsmiling1023
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I would like to know how Epilepsy education is done in your area at
schools or shopping locations.  Since I see how it is handled here in
NY, I would like to compare how other locations do this.  I want to
push for needed changes here in NY, and feel that if I knew how it is
handled in other states, I could be better prepared to persue this.
Thanks for your time.

   Sincerely,  Doris

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