our son was 6 by the time he was diagnosed with epilepsy, he was 4 when he
had his 1st seizure and many ones followed..we finally took him to the
cleveland  clinic and there he was diagnosed.
good luck,and hang in there!!


In a message dated 11/27/2009 8:26:16 P.M. Pacific Standard Time,
Thdoy2@... writes:




If you think that your son is having another seizure, rush him to the
hospital. They may admit him immediately and hopefully diagnose him with
Epilepsy (if he has it).

BTW, my 8yo (diagnosed w/Epilepsy @5yo) still  stays very groggy for at
least an hour after a seizure. We really don't know  what causes it in my ds'
case, but there can be a lot of causes in general:  fatigue, flashing lights,
sleep, foods...

Here is a great site for  info:
_http://www.epilepsyhttp://www.http://www.epilehttp:_
(http://www.epilepsyandmychild.com/3_5_triggers.html)

---Sange  (mom to 3 incl)
Randy 8yo, diagnosed @ 5yo but probably Epileptic for yrs  b4

=====================================================================
---  In _epilepsysupportandeepilepsysepilepsysuppepi_
(mailto:epilepsysupportandeducation@yahoogroups.com) ,  Lauren Trogdon
<lsimmons821@lsi> wrote:
>
> Hello, my  son is 9 months old.  For a few months now he has been popping
his lips a  lot.  He also loves to stick out his tongue and twist it to the
right  side of his mouth (not sure if any of these are signs of infant
seizures).  When he was 4 months old, he started having what I call night  time
spasms.  He would shake his head hard to the right and left for  about a
minute.  I would pick him up and soothe him, and this would  continue about 5
times a night for two months.  We took him to UCLA  Neurology, however, he
also has acid reflux and they said it was probably  related to his reflux,
but to call back if more symptoms appear.
>
> This past Sunday morning after his nap he was in  his high chair and ate
some puffs and squash and was fine.  He was  looking out the window and I
picked him up to get him out of his high  chair.  He was really not making
much expression and seemed at  peace.  I put him on the ground to walk around
and his body was like a  noodle.  His neck was twisted to the right side and
was very stiff.   I ran him over to my husband - his eyes were open, but not
moving  (just gazed straight forward) and he had a slight smile on his face
(a  half smile I called it).  We yelled at him and he just looked asleep
with  his eyes open.  I felt his stomach and didn't feel him breathing.   This
lasted a good 30 seconds.  I turned him over and started patting his  back
to make sure he wasn't choking.  When I turned him back  towards us, he
finally started waking up little by little.  The rest of  the day he was a
little groggy, but seemed fine.
>
> We  took him to the dr. yesterday, and they are in the process of
scheduling an EEG, but that could be weeks out.  I was hoping to  hear what
people
who have more experience with seizures think about this  incident.  Also,
what can I do to help him when this happens and what  could be the cause of
this?  Thanks so much for any  advice.  This is so new and scary for us.
>
>  Lauren
>
>
>
>
> [Non-text portions of  this message have been removed]
>









[Non-text portions of this message have been removed]

If you think that your son is having another seizure, rush him to the hospital. 
They may admit him immediately and hopefully diagnose him with Epilspsy (if he
has it).

BTW, my 8yo (diagnosed w/Epilepsy @5yo) still stays very groggy for at least an
hour after a seizure.  We really don't know what causes it in my ds' case, but
there can be a lot of causes in general: fatigue, flashing lights, sleep,
foods...

Here is a great site for info:
http://www.epilepsyandmychild.com/3_5_triggers.html

        ---Sange (mom to 3 incl)
           Randy 8yo, diagnosed @ 5yo but probably Epileptic for yrs b4

=====================================================================
--- In epilepsysupportandeducation@yahoogroups.com, Lauren Trogdon
<lsimmons821@...> wrote:
>
> Hello, my son is 9 months old.  For a few months now he has been popping his
lips a lot.  He also loves to stick out his tongue and twist it to the right
side of his mouth (not sure if any of these are signs of infant seizures).  When
he was 4 months old, he started having what I call night time spasms.  He would
shake his head hard to the right and left for about a minute.  I would pick him
up and soothe him, and this would continue about 5 times a night for two
months.  We took him to UCLA Neurology, however, he also has acid reflux and
they said it was probably related to his reflux, but to call back if more
symptoms appear. 
>  
> This past Sunday morning after his nap he was in his high chair and ate some
puffs and squash and was fine.  He was looking out the window and I picked him
up to get him out of his high chair.  He was really not making much expression
and seemed at peace.  I put him on the ground to walk around and his body was
like a noodle.  His neck was twisted to the right side and was very stiff.  I
ran him over to my husband - his eyes were open, but not moving (just gazed
straight forward) and he had a slight smile on his face (a half smile I called
it).  We yelled at him and he just looked asleep with his eyes open.  I felt his
stomach and didn't feel him breathing.  This lasted a good 30 seconds.  I turned
him over and started patting his back to make sure he wasn't choking.  When
I turned him back towards us, he finally started waking up little by little. 
The rest of the day he was a little groggy, but seemed fine.
>  
> We took him to the dr. yesterday, and they are in the process of scheduling an
EEG, but that could be weeks out.  I was hoping to hear what people who have
more experience with seizures think about this incident.  Also, what can I do to
help him when this happens and what could be the cause of this?  Thanks so much
for any advice.  This is so new and scary for us.
>  
> Lauren 
>
>
>
>
> [Non-text portions of this message have been removed]
>

wishing everyone a Happy, Healthy & Safe Thanksgiving.  Enjoy...
xoxo
Ashley ❤


 
 




[Non-text portions of this message have been removed]

Just found out today that a very special person not only to me but many of my
friend was diagnosed with stomach cancer.  he is a true icon for many so many,
we care deeply for him.  I ask that you please keep him in your thought
specially with it being thanksgiving.
 
Thank you & Happy Thanksgiving everyone.


Ashley




[Non-text portions of this message have been removed]

I'm starting herbs within a week here! Accupunturist is going to try help
with some of the overly tierdness I personally have instead of asking nuero
to take me off keppra. She also offered anticonvulsant herbs but wants to
focus on some my other symptoms first too.

Other thing I've done within the last week is I got a bottle of Brag Apple
Cider Vinegar Raw Unfiltered cause my legs were restless again at night.
Some seems to help and I don't need to lay flat for blood to flow in my
whole body to fall asleep.

Just wanted to encourage you with herbs stuff cause it might help and its
cheap. With the chiropractic stuff it can take a lot searching and trying.
You wont click your heals most of the time and just get healed. I have been
dealing with all of my issues with chiropractic to reduce things. Have to be
persistent for chiropractic to work and try different things.

Also that Brag stuff is very bitter in taste might be strong for a child.
Its used for people who have a high blood pressure usually.

On Wed, Nov 25, 2009 at 9:40 PM, nia93me <Signtina@...> wrote:

>
>
> Lauren, For one try to sit back and take a few slow deep breaths, u will
> need to do this many times through this journey.
> This might be an infantial spasm. I am not sure how doctors go about dxing
> them but through eegs. I am the one in my family that is epileptic not my
> children. Many children that have infantial spasms grow out of them but many
> do not. My doctors told my parents I would grow out of my seizures and now I
> am 44 years old. I do hope and pray that more people here will respond to
> this so u can get your answers.
> Keep calling back about the eeg appt. Bug them about it. Find the head ppl
> there and talk to them.
> Nia
>
> --- In
epilepsysupportandeducation@yahoogroups.com<epilepsysupportandeducation%40yahoog\
roups.com>,
> Lauren Trogdon <lsimmons821@...> wrote:
> >
> > Hello, my son is 9 months old.  For a few months now he has been popping
> his lips a lot.  He also loves to stick out his tongue and twist it to the
> right side of his mouth (not sure if any of these are signs of infant
> seizures).  When he was 4 months old, he started having what I call night
> time spasms.  He would shake his head hard to the right and left for about a
> minute.  I would pick him up and soothe him, and this would continue about 5
> times a night for two months.  We took him to UCLA Neurology, however, he
> also has acid reflux and they said it was probably related to his reflux,
> but to call back if more symptoms appear.
> >
> > This past Sunday morning after his nap he was in his high chair and ate
> some puffs and squash and was fine.  He was looking out the window and I
> picked him up to get him out of his high chair.  He was really not making
> much expression and seemed at peace.  I put him on the ground to walk around
> and his body was like a noodle.  His neck was twisted to the right side and
> was very stiff.  I ran him over to my husband - his eyes were open, but not
> moving (just gazed straight forward) and he had a slight smile on his face
> (a half smile I called it).  We yelled at him and he just looked asleep with
> his eyes open.  I felt his stomach and didn't feel him breathing.  This
> lasted a good 30 seconds.  I turned him over and started patting his back to
> make sure he wasn't choking.  When I turned him back towards us, he finally
> started waking up little by little.  The rest of the day he was a little
> groggy, but seemed fine.
> >
> > We took him to the dr. yesterday, and they are in the process of
> scheduling an EEG, but that could be weeks out.  I was hoping to hear what
> people who have more experience with seizures think about this incident.
> Also, what can I do to help him when this happens and what could be the
> cause of this?  Thanks so much for any advice.  This is so new and scary for
> us.
> >
> > Lauren
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>


[Non-text portions of this message have been removed]

Lauren, For one try to sit back and take a few slow deep breaths, u will need to
do this many times through this journey.
  This might be an infantial spasm. I am not sure how doctors go about dxing them
but through eegs. I am the one in my family that is epileptic not my children.
Many children that have infantial spasms grow out of them but many do not. My
doctors told my parents I would grow out of my seizures and now I am 44 years
old. I do hope and pray that more people here will respond to this so u can get
your answers.
Keep calling back about the eeg appt. Bug them about it. Find the head ppl there
and talk to them.
Nia

--- In epilepsysupportandeducation@yahoogroups.com, Lauren Trogdon
<lsimmons821@...> wrote:
>
> Hello, my son is 9 months old.  For a few months now he has been popping his
lips a lot.  He also loves to stick out his tongue and twist it to the right
side of his mouth (not sure if any of these are signs of infant seizures).  When
he was 4 months old, he started having what I call night time spasms.  He would
shake his head hard to the right and left for about a minute.  I would pick him
up and soothe him, and this would continue about 5 times a night for two
months.  We took him to UCLA Neurology, however, he also has acid reflux and
they said it was probably related to his reflux, but to call back if more
symptoms appear. 
>  
> This past Sunday morning after his nap he was in his high chair and ate some
puffs and squash and was fine.  He was looking out the window and I picked him
up to get him out of his high chair.  He was really not making much expression
and seemed at peace.  I put him on the ground to walk around and his body was
like a noodle.  His neck was twisted to the right side and was very stiff.  I
ran him over to my husband - his eyes were open, but not moving (just gazed
straight forward) and he had a slight smile on his face (a half smile I called
it).  We yelled at him and he just looked asleep with his eyes open.  I felt his
stomach and didn't feel him breathing.  This lasted a good 30 seconds.  I turned
him over and started patting his back to make sure he wasn't choking.  When
I turned him back towards us, he finally started waking up little by little. 
The rest of the day he was a little groggy, but seemed fine.
>  
> We took him to the dr. yesterday, and they are in the process of scheduling an
EEG, but that could be weeks out.  I was hoping to hear what people who have
more experience with seizures think about this incident.  Also, what can I do to
help him when this happens and what could be the cause of this?  Thanks so much
for any advice.  This is so new and scary for us.
>  
> Lauren 
>
>
>
>
> [Non-text portions of this message have been removed]
>

Lauren,
  What else you can do while you wait is to try to video tape him.  If he has a
seizure again try to video tape him and show it to his doctor.  It helps for
diagnoses and maybe they can do something quicker for him.  Caddie



[Non-text portions of this message have been removed]

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Hello, my son is 9 months old.  For a few months now he has been popping his
lips a lot.  He also loves to stick out his tongue and twist it to the right
side of his mouth (not sure if any of these are signs of infant seizures).  When
he was 4 months old, he started having what I call night time spasms.  He would
shake his head hard to the right and left for about a minute.  I would pick him
up and soothe him, and this would continue about 5 times a night for two
months.  We took him to UCLA Neurology, however, he also has acid reflux and
they said it was probably related to his reflux, but to call back if more
symptoms appear. 
 
This past Sunday morning after his nap he was in his high chair and ate some
puffs and squash and was fine.  He was looking out the window and I picked him
up to get him out of his high chair.  He was really not making much expression
and seemed at peace.  I put him on the ground to walk around and his body was
like a noodle.  His neck was twisted to the right side and was very stiff.  I
ran him over to my husband - his eyes were open, but not moving (just gazed
straight forward) and he had a slight smile on his face (a half smile I called
it).  We yelled at him and he just looked asleep with his eyes open.  I felt his
stomach and didn't feel him breathing.  This lasted a good 30 seconds.  I turned
him over and started patting his back to make sure he wasn't choking.  When
I turned him back towards us, he finally started waking up little by little. 
The rest of the day he was a little groggy, but seemed fine.
 
We took him to the dr. yesterday, and they are in the process of scheduling an
EEG, but that could be weeks out.  I was hoping to hear what people who have
more experience with seizures think about this incident.  Also, what can I do to
help him when this happens and what could be the cause of this?  Thanks so much
for any advice.  This is so new and scary for us.
 
Lauren 




[Non-text portions of this message have been removed]

TY Cathy, u make alot of sence. I have seen some of that bondin with my
daughters pooldle (max) he bonds a little to my daughter(His owner),
myself(epliptic) and my mother inlaw(cancer). that is the ppl he has picked out.
He is not as found to my husband though, he uses a wheelchair. Max still likes
my husband but just has not bonded like the others.
Thx, Nia

--- In epilepsysupportandeducation@yahoogroups.com, "chihuahuamom"
<chihuahuamom@...> wrote:
>
> i had a seizure alert dog for 7 years, just lost her to liver cancer, belle
> would detect my seizures  and also respond  by either waking up my husband,
> dialing 911  which she has done ,she would stay right with me while i was in
> the seizure , til i came out of it ,   dont put yourelf down , one of the
> biggest issues is bonding with the animal, belle and i were very close,  we
> were really bonded ,thats one of the biggest issues with seizure alert dogs,
> belle trained herself, i didnt put her thru all kinds of training, from my
> experience seizure response dogs can be trained seizure alert dogs , have to
> be bonded with you and are gifted with the knowledge to help you, thats the
> way i have seen it happen in the past  my 2 cents  cathy
> ----- Original Message -----
> From: "nia93me" <Signtina@...>
> To: <epilepsysupportandeducation@yahoogroups.com>
> Sent: Monday, November 23, 2009 10:29 PM
> Subject: [Epilepsy Support and Education] Re: Seizure Dogs
>
>
> > Hi, I am also looking into a seizer alert dog for myself. I have been
> looking online and all over the USA at training plases. The places I see are
> non profit and the only money I would spend is my travel expence and room
> expence etc. I know they get dogs as shelter and train them but they also
> train them. Many of the times the puppy raiser may give them vet needs. Not
> all this is true but some might.
> > As for me getting a puppy. I might not train it right cause for one I am
> not a trainer.Another I am not about to go thru not taking my meds to help
> train a dog to dectec my seizures no matter if a nurse is there or not.Alot
> of other stuff.Just put it this way, I am for the tring places.
> > Now my daughters do have toy poodles and one of them will not leave my
> side when I seize. Or for that matter when anyone in the house is sick with
> any little thing.
> > I do believe that many dogs from the shelter can be trained by indivdual
> and can be trained very well. I just think I cant do it.
> > Putting my two cent in. Can other ppl put ther two cent in about want they
> think of seizer alert dogs.
> > Nia
> >
> > --- In epilepsysupportandeducation@yahoogroups.com, Julie Hope
> <epilepsyhealth@> wrote:
> > >
> > > Hi Kathy and welcome to the group.
> > > Being young enough the and already bonding with your daughter, when he
> sees her in a seizure he might/might
> > > not and even if he doesn't the first time should he be near and watching
> how you look after her he should pick
> > > up very quickly.  Dogs are smart, very smart
> > > When our son was still living at home and in school, one of his friends
> had a batch of German Shepherd/Boarder
> > > Collie mix (the mother a shepherd, the father a collie) He brought him
> home here as soon as he was able to be
> > > away from his mother.  Must of lived with us for a good 3 years till our
> son moved, but then he came back when
> > > jobs changed and the place he lived in couldn't have a dog.  So Vance
> was not only his master but I was also.
> > > One time when in hosp. here which was just up the street, was summer
> time, and that dog sat but the front door
> > > looking out the screen and never moved until I came home.  Only to go
> out to do his duty and right back in. He
> > > had helped me in several seizures and could seem to tell when going to
> have one if was close by and being near
> > > 50lb he would gently push me till he got me to the couch to sit down.
> Then it was to get me lying down if he
> > > could.  If my husband wasn't home he would sit there knowing there was
> nothing he could do but wait, beside me
> > > with his one arm over me and Glen (Hubby) said one time he came running
> to the back door as soon as he heard
> > > him coming and all excited got him to get to the living room and just to
> show him what he did while gone.
> > > Then all my hubby had to do was tell him how good puppy he was and get
> me to the bed, and would go back to
> > > work.  He didn't have any kind of expert training, nor did we train him.
> > > Look the type of dog up on the internet and possibly you can find their
> tempermant ect. Ours is very
> > > protective and very smart.  If we all had the flue even he would be
> awake all night and just like a nurse go
> > > from one person to the other and lie by them for a while all night.
> > > Get him bonding with your daughter so early and seeing you look after
> her while in one he will pick up easy.
> > > (or should do)
> > > Julie
> > > Julie Hope
> > > epilepsyhealth@
> > > http://www.2betrhealth.com
> > > ----- Original Message -----
> > > From: "kozeykat27" <kozeykat27@>
> > > To: <epilepsysupportandeducation@yahoogroups.com>
> > > Sent: Wednesday, September 02, 2009 5:27 PM
> > > Subject: [Epilepsy Support and Education] Re: Seizure Dogs
> > >
> > >
> > > I am so glad that this subject was brought up.  My daughter who is 8
> years old has seizures and though she
> > > does not have them often, they last for a long time.  We just recently
> got an irish setter puppy that is very
> > > loving and adores my daughter and we were wondering if we might be able
> to train her to be a seizure alert
> > > dog.  We don't know of any trainers near where we live so thank you for
> the information on who to contact so
> > > maybe we can find somewhere near by.
> > >
> > > Kathy
> > >
> > >
> > > --- In epilepsysupportandeducation@yahoogroups.com, "sulvaj@" <sulvaj@>
> wrote:
> > > >
> > > > --- In epilepsysupportandeducation@yahoogroups.com, Nichole Ollinger
> <ollingernichole@> wrote:
> > > > >nichole, i just went onto google.com and i typed in siezure dogs and
> i found an array sites for siezure
> > > > >dogs.  i hope this will help out!  i just had one and my dog charlie
> started barking before it occured. the
> > > > >dog u get will certainly help. good luck
> > > >                                      jamie
> > > > > I am looking into getting my husband a siezure dog and want to know
> if anyone has one and if they really
> > > > > work to warn and help you. Would really like to hear from you.
> Thanks
> > > > >
> > > > > Nichole Ollinger
> > > > >
> > > > >
> > > > >
> > > > >
> > > > > [Non-text portions of this message have been removed]
> > > > >
> > > >
> > >
> > >
> > >
> > >
> > > ------------------------------------
> > >
> > > ==========================
> > > AS A MEMBER YOU HAVE AGREED TO OUR GROUP RULES.
> > >
> > > http://ca.geocities.com/epilepsy911/infoandrules.html
> > >
> > > NOTE:
> > > (1)ALL MESSAGES MUST BE UNDER THE SUBJECT OF 'EPILEPSY'.
> > >
> > > (2)CHAIN LETTERS AND OTHER FORMS OF SPAM OR ADVERTISING WILL RESULT IN
> YOUR MESSAGES BEING MODERATED.
> > >
> > > ==========================
> > >
> > >
> > > ==========================
> > > VISIT OUR HOMEPAGE AT:
> > > http://ca.geocities.com/epilepsy911
> > > ==========================
> > >
> > >
> > >
> > >
> > > Yahoo! Groups Links
> > >
> >
> >
> >
> >
> > ------------------------------------
> >
> > ==========================
> > AS A MEMBER YOU HAVE AGREED TO OUR GROUP RULES.
> >
> > http://ca.geocities.com/epilepsy911/infoandrules.html
> >
> > NOTE:
> > (1)ALL MESSAGES MUST BE UNDER THE SUBJECT OF 'EPILEPSY'.
> >
> > (2)CHAIN LETTERS AND OTHER FORMS OF SPAM OR ADVERTISING WILL RESULT IN
> YOUR MESSAGES BEING MODERATED.
> >
> > ==========================
> >
> >
> > ==========================
> > VISIT OUR HOMEPAGE AT:
> > http://ca.geocities.com/epilepsy911
> > ==========================
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
>

i had a seizure alert dog for 7 years, just lost her to liver cancer, belle
would detect my seizures  and also respond  by either waking up my husband,
dialing 911  which she has done ,she would stay right with me while i was in
the seizure , til i came out of it ,   dont put yourelf down , one of the
biggest issues is bonding with the animal, belle and i were very close,  we
were really bonded ,thats one of the biggest issues with seizure alert dogs,
belle trained herself, i didnt put her thru all kinds of training, from my
experience seizure response dogs can be trained seizure alert dogs , have to
be bonded with you and are gifted with the knowledge to help you, thats the
way i have seen it happen in the past  my 2 cents  cathy
----- Original Message -----
From: "nia93me" <Signtina@...>
To: <epilepsysupportandeducation@yahoogroups.com>
Sent: Monday, November 23, 2009 10:29 PM
Subject: [Epilepsy Support and Education] Re: Seizure Dogs


> Hi, I am also looking into a seizer alert dog for myself. I have been
looking online and all over the USA at training plases. The places I see are
non profit and the only money I would spend is my travel expence and room
expence etc. I know they get dogs as shelter and train them but they also
train them. Many of the times the puppy raiser may give them vet needs. Not
all this is true but some might.
> As for me getting a puppy. I might not train it right cause for one I am
not a trainer.Another I am not about to go thru not taking my meds to help
train a dog to dectec my seizures no matter if a nurse is there or not.Alot
of other stuff.Just put it this way, I am for the tring places.
> Now my daughters do have toy poodles and one of them will not leave my
side when I seize. Or for that matter when anyone in the house is sick with
any little thing.
> I do believe that many dogs from the shelter can be trained by indivdual
and can be trained very well. I just think I cant do it.
> Putting my two cent in. Can other ppl put ther two cent in about want they
think of seizer alert dogs.
> Nia
>
> --- In epilepsysupportandeducation@yahoogroups.com, Julie Hope
<epilepsyhealth@...> wrote:
> >
> > Hi Kathy and welcome to the group.
> > Being young enough the and already bonding with your daughter, when he
sees her in a seizure he might/might
> > not and even if he doesn't the first time should he be near and watching
how you look after her he should pick
> > up very quickly.  Dogs are smart, very smart
> > When our son was still living at home and in school, one of his friends
had a batch of German Shepherd/Boarder
> > Collie mix (the mother a shepherd, the father a collie) He brought him
home here as soon as he was able to be
> > away from his mother.  Must of lived with us for a good 3 years till our
son moved, but then he came back when
> > jobs changed and the place he lived in couldn't have a dog.  So Vance
was not only his master but I was also.
> > One time when in hosp. here which was just up the street, was summer
time, and that dog sat but the front door
> > looking out the screen and never moved until I came home.  Only to go
out to do his duty and right back in. He
> > had helped me in several seizures and could seem to tell when going to
have one if was close by and being near
> > 50lb he would gently push me till he got me to the couch to sit down.
Then it was to get me lying down if he
> > could.  If my husband wasn't home he would sit there knowing there was
nothing he could do but wait, beside me
> > with his one arm over me and Glen (Hubby) said one time he came running
to the back door as soon as he heard
> > him coming and all excited got him to get to the living room and just to
show him what he did while gone.
> > Then all my hubby had to do was tell him how good puppy he was and get
me to the bed, and would go back to
> > work.  He didn't have any kind of expert training, nor did we train him.
> > Look the type of dog up on the internet and possibly you can find their
tempermant ect. Ours is very
> > protective and very smart.  If we all had the flue even he would be
awake all night and just like a nurse go
> > from one person to the other and lie by them for a while all night.
> > Get him bonding with your daughter so early and seeing you look after
her while in one he will pick up easy.
> > (or should do)
> > Julie
> > Julie Hope
> > epilepsyhealth@...
> > http://www.2betrhealth.com
> > ----- Original Message -----
> > From: "kozeykat27" <kozeykat27@...>
> > To: <epilepsysupportandeducation@yahoogroups.com>
> > Sent: Wednesday, September 02, 2009 5:27 PM
> > Subject: [Epilepsy Support and Education] Re: Seizure Dogs
> >
> >
> > I am so glad that this subject was brought up.  My daughter who is 8
years old has seizures and though she
> > does not have them often, they last for a long time.  We just recently
got an irish setter puppy that is very
> > loving and adores my daughter and we were wondering if we might be able
to train her to be a seizure alert
> > dog.  We don't know of any trainers near where we live so thank you for
the information on who to contact so
> > maybe we can find somewhere near by.
> >
> > Kathy
> >
> >
> > --- In epilepsysupportandeducation@yahoogroups.com, "sulvaj@" <sulvaj@>
wrote:
> > >
> > > --- In epilepsysupportandeducation@yahoogroups.com, Nichole Ollinger
<ollingernichole@> wrote:
> > > >nichole, i just went onto google.com and i typed in siezure dogs and
i found an array sites for siezure
> > > >dogs.  i hope this will help out!  i just had one and my dog charlie
started barking before it occured. the
> > > >dog u get will certainly help. good luck
> > >                                      jamie
> > > > I am looking into getting my husband a siezure dog and want to know
if anyone has one and if they really
> > > > work to warn and help you. Would really like to hear from you.
Thanks
> > > >
> > > > Nichole Ollinger
> > > >
> > > >
> > > >
> > > >
> > > > [Non-text portions of this message have been removed]
> > > >
> > >
> >
> >
> >
> >
> > ------------------------------------
> >
> > ==========================
> > AS A MEMBER YOU HAVE AGREED TO OUR GROUP RULES.
> >
> > http://ca.geocities.com/epilepsy911/infoandrules.html
> >
> > NOTE:
> > (1)ALL MESSAGES MUST BE UNDER THE SUBJECT OF 'EPILEPSY'.
> >
> > (2)CHAIN LETTERS AND OTHER FORMS OF SPAM OR ADVERTISING WILL RESULT IN
YOUR MESSAGES BEING MODERATED.
> >
> > ==========================
> >
> >
> > ==========================
> > VISIT OUR HOMEPAGE AT:
> > http://ca.geocities.com/epilepsy911
> > ==========================
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
>
>
>
>
> ------------------------------------
>
> ==========================
> AS A MEMBER YOU HAVE AGREED TO OUR GROUP RULES.
>
> http://ca.geocities.com/epilepsy911/infoandrules.html
>
> NOTE:
> (1)ALL MESSAGES MUST BE UNDER THE SUBJECT OF 'EPILEPSY'.
>
> (2)CHAIN LETTERS AND OTHER FORMS OF SPAM OR ADVERTISING WILL RESULT IN
YOUR MESSAGES BEING MODERATED.
>
> ==========================
>
>
> ==========================
> VISIT OUR HOMEPAGE AT:
> http://ca.geocities.com/epilepsy911
> ==========================
>
>
>
>
> Yahoo! Groups Links
>
>
>

Hi, I am also looking into a seizer alert dog for myself. I have been looking
online and all over the USA at training plases. The places I see are non profit
and the only money I would spend is my travel expence and room expence etc. I
know they get dogs as shelter and train them but they also train them. Many of
the times the puppy raiser may give them vet needs. Not all this is true but
some might.
As for me getting a puppy. I might not train it right cause for one I am not a
trainer.Another I am not about to go thru not taking my meds to help train a dog
to dectec my seizures no matter if a nurse is there or not.Alot of other
stuff.Just put it this way, I am for the tring places.
Now my daughters do have toy poodles and one of them will not leave my side when
I seize. Or for that matter when anyone in the house is sick with any little
thing.
I do believe that many dogs from the shelter can be trained by indivdual and can
be trained very well. I just think I cant do it.
Putting my two cent in. Can other ppl put ther two cent in about want they think
of seizer alert dogs.
Nia

--- In epilepsysupportandeducation@yahoogroups.com, Julie Hope
<epilepsyhealth@...> wrote:
>
> Hi Kathy and welcome to the group.
> Being young enough the and already bonding with your daughter, when he sees
her in a seizure he might/might
> not and even if he doesn't the first time should he be near and watching how
you look after her he should pick
> up very quickly.  Dogs are smart, very smart
> When our son was still living at home and in school, one of his friends had a
batch of German Shepherd/Boarder
> Collie mix (the mother a shepherd, the father a collie) He brought him home
here as soon as he was able to be
> away from his mother.  Must of lived with us for a good 3 years till our son
moved, but then he came back when
> jobs changed and the place he lived in couldn't have a dog.  So Vance was not
only his master but I was also.
> One time when in hosp. here which was just up the street, was summer time, and
that dog sat but the front door
> looking out the screen and never moved until I came home.  Only to go out to
do his duty and right back in. He
> had helped me in several seizures and could seem to tell when going to have
one if was close by and being near
> 50lb he would gently push me till he got me to the couch to sit down.  Then it
was to get me lying down if he
> could.  If my husband wasn't home he would sit there knowing there was nothing
he could do but wait, beside me
> with his one arm over me and Glen (Hubby) said one time he came running to the
back door as soon as he heard
> him coming and all excited got him to get to the living room and just to show
him what he did while gone.
> Then all my hubby had to do was tell him how good puppy he was and get me to
the bed, and would go back to
> work.  He didn't have any kind of expert training, nor did we train him.
> Look the type of dog up on the internet and possibly you can find their
tempermant ect. Ours is very
> protective and very smart.  If we all had the flue even he would be awake all
night and just like a nurse go
> from one person to the other and lie by them for a while all night.
> Get him bonding with your daughter so early and seeing you look after her
while in one he will pick up easy.
> (or should do)
> Julie
> Julie Hope
> epilepsyhealth@...
> http://www.2betrhealth.com
> ----- Original Message -----
> From: "kozeykat27" <kozeykat27@...>
> To: <epilepsysupportandeducation@yahoogroups.com>
> Sent: Wednesday, September 02, 2009 5:27 PM
> Subject: [Epilepsy Support and Education] Re: Seizure Dogs
>
>
> I am so glad that this subject was brought up.  My daughter who is 8 years old
has seizures and though she
> does not have them often, they last for a long time.  We just recently got an
irish setter puppy that is very
> loving and adores my daughter and we were wondering if we might be able to
train her to be a seizure alert
> dog.  We don't know of any trainers near where we live so thank you for the
information on who to contact so
> maybe we can find somewhere near by.
>
> Kathy
>
>
> --- In epilepsysupportandeducation@yahoogroups.com, "sulvaj@" <sulvaj@> wrote:
> >
> > --- In epilepsysupportandeducation@yahoogroups.com, Nichole Ollinger
<ollingernichole@> wrote:
> > >nichole, i just went onto google.com and i typed in siezure dogs and i
found an array sites for siezure
> > >dogs.  i hope this will help out!  i just had one and my dog charlie
started barking before it occured. the
> > >dog u get will certainly help. good luck
> >                                      jamie
> > > I am looking into getting my husband a siezure dog and want to know if
anyone has one and if they really
> > > work to warn and help you. Would really like to hear from you. Thanks
> > >
> > > Nichole Ollinger
> > >
> > >
> > >
> > >
> > > [Non-text portions of this message have been removed]
> > >
> >
>
>
>
>
> ------------------------------------
>
> ==========================
> AS A MEMBER YOU HAVE AGREED TO OUR GROUP RULES.
>
> http://ca.geocities.com/epilepsy911/infoandrules.html
>
> NOTE:
> (1)ALL MESSAGES MUST BE UNDER THE SUBJECT OF 'EPILEPSY'.
>
> (2)CHAIN LETTERS AND OTHER FORMS OF SPAM OR ADVERTISING WILL RESULT IN YOUR
MESSAGES BEING MODERATED.
>
> ==========================
>
>
> ==========================
> VISIT OUR HOMEPAGE AT:
> http://ca.geocities.com/epilepsy911
> ==========================
>
>
>
>
> Yahoo! Groups Links
>

http://www.observer-reporter.com/OR/Story/11192009mantasered

http://www.observer-reporter.com/OR/Story/11-22-2009-man-hit-with-taser-dies

http://www.observer-reporter.com/OR/Story/11-20-2009-Washington-Taser-Case

From _Medscape  Medical News_ (http://www.medscape.com/news)
Women With Multiple Sclerosis or Epilepsy Have Safe Pregnancies
Allison Gandey

November 19, 2009 — New national data suggest that the 2 most common
neurologic disorders affecting women of childbearing age are not stopping
families. "We think that the most important take-home message for clinicians and
women with multiple sclerosis or epilepsy is that pregnancy outcomes are
generally reassuring and not associated with terribly high risks of pregnancy
complications," Eliza Chakravarty, MD, from Stanford University in
California,  told Medscape Neurology.
The research team used a nationally representative database of hospitals in
  the United States. Of an estimated 18.8 million deliveries, more than
10,000  occurred in women with multiple sclerosis and more than 4700 in women
with  epilepsy.
"Intrauterine growth restriction was the only outcome we looked at that was
  seen in higher frequency in women with multiple sclerosis or epilepsy,"
said Dr.  Chakravarty, the senior investigator on the study. The work was
published online  November 18 in Neurology.
In an accompanying editorial, Gary Franklin, MD, from the University of
Washington in Seattle, and Helen Tremlett, PhD, from the University of British
  Columbia in Vancouver, call the work "a welcome addition to several recent
  population-based studies that shine a little more light on the issue."
Investigators compared national pregnancy outcomes in women with multiple
sclerosis and epilepsy to the general obstetric population and to women with
  known high-risk pregnancies due to diabetes mellitus.
Multivariable Odds Ratio (95% Confidence Intervals) for Risk for Adverse
Pregnancy Outcomes     Group  Hypertensive Disorders  Premature Rupture
Intrauterine Growth Restriction  Cesarean Delivery   Multiple sclerosis 1.1 (0.9
– 1.4) 0.9 (0.7 – 1.3) 1.7 (1.2 – 2.4) 1.3 (1.1 – 1.4)  Epilepsy 1.2
(0.9
– 1.7) 0.8 (0.5 – 1.5) 1.9 (1.2 – 3.3) 1.5 (1.3 – 1.9)  Diabetes
mellitus
4.5 (4.4 – 4.7) 1.2 (1.1 – 1.3) 1.4 (1.3 – 1.5) 2.9 (2.8 – 3.0)
"The strength of the study is that we were able to look at a large number
of  pregnancies over a short time point," said Dr. Chakravarty. "This gives
us a  bird's-eye overview of pregnancy outcomes in women with these
relatively rare  chronic diseases."
However, she added, "The trade-off for large numbers of subjects is the
relative lack of detail about them. We don't have data on very important
factors  associated with pregnancy, such as medication use — a huge issue —
prenatal  care, severity of disease, smoking, alcohol, obesity, and past
reproductive  history."
The editorialists say that because of these limitations, the data on
epilepsy  are of limited use. They argue substantial misclassification was
likely,
  resulting in severe underreporting of deliveries and an inability to
consider  antiepileptic drugs, which are already linked to adverse birth
outcomes.
"It's hard to get good estimates of how many women with epilepsy have
babies  each year," Dr. Chakravarty told Medscape Neurology. "We suspect that
women who have a remote history of epilepsy and who are not taking epilepsy
medications during pregnancy or have not had any seizures during pregnancy
were  probably much less likely to have that diagnosis placed on the discharge
  summary, so we may have captured the more severe or active end of the
epilepsy  spectrum."
Weighing the Risks
Dr. Chakravarty says it will be important to compare these results to other
  studies. She said her team was surprised by the lack of data in the
literature  about pregnancy outcomes in women with multiple sclerosis. "There
are
excellent  studies looking at what a pregnancy does to the course of disease
but very  little about what having multiple sclerosis does to a pregnancy."
The editorialists agree that investigators are still a long way from being
able to produce evidence-based practice guidelines in multiple sclerosis,
but  they write, "The Stanford group and others, in conducting
population-based  studies using existing computerized databases, are beginning
to supply
the  critical information needed for this essential task."
"The primary indication is that women should not necessarily be discouraged
  from becoming pregnant just because they have a diagnosis of multiple
sclerosis  or epilepsy," Dr. Chakravarty added. "As always, each patient should
discuss her  individual situation with her doctor so that all of the
potential risk factors  can be examined. In cases of chronic diseases, the
medications need to be  considered, as well as the disease activity before
conception."
Coauthor Lorene Nelson, PhD, reports having received an honorarium from
BioSymposia Inc and serves on a data safety monitoring board for NeuroPace
Inc.
Neurology. Published online November 18, 2009.




Authors and Disclosures
Journalist
Allison Gandey
Allison Gandey is a journalist for Medscape. She is the former science
affairs analyst for the Canadian Medical Association Journal. Allison, who has
a  master of journalism specializing in science from Carleton University,
has  edited a variety of medical association publications and has worked in
radio and  television. She can be contacted at  agandey@....




Medscape Medical News © 2009 Medscape, LLC
Send press  releases and comments to _news@..._
(mailto:news@...) .



[Non-text portions of this message have been removed]

Hi Wendy,
   I sure can relate to what you said.  I have insomnia most nights too and then
since super tired, I usually have a good night.  I
have had the surgery, left temporal, about 12 years ago and my
seizures are just nocturnal post surgery.  I am still on drugs
presently Lamictal.  I am glad I did the surgery though since it is
better having them when asleep for me instead of the frequent ones
during the day that I used to get before the surgery.  Good luck
with finding something to make positive change for you and to help you capture
the fear of going to sleep.  I wish we could all
have a coffee shop to go to and talk about things like this that
are so understood since there is so much we experience that is the
same as someone else.  You'll be an addition on my prayer list.
Take care.
   Doris

--- In epilepsysupportandeducation@yahoogroups.com, "wendyz08"
<ima.da.wendy@...> wrote:
>
> I have chronic insomnia  ever since I can remember.  And  it's cuz I have
multiple
> siezures every nite,  and I am petrified of going to sleep ever since I was a
young child.
>
>         You can imagine what this has done to any type of social life I have
had.
>
>  Just these last few months I am now down to 3 seizures at nite time on Keppra
>         But I sleep on the 3rd nite after being awake for 2 nites...I'm
exhausted
>
>         Recently an internest prescribed restorhil to help me sleep at nite
time
>
> After taking my frist capsule of restrohil last nite I broke out in small
itchy hives and my throat closed in on me. It was scary I got my benedryl and
stayed out of the bed
> and sat up with my cell near me to call the ER if things didn't subside.
>
> I was petrified and stayed awake all nite long doing relaxing techniques with
music
>
> When the doctors office finally opened I called both my neuro and this
internest
>
> to tell them that restrohil does not work well with keppra with me and my
symptoms.
>
>                         I was told to stop taking this sleep aid
>
>                                  What a scary nite I had
>
> I prayed to make it through this terrbile nite.    And tonite I will not
bother going to bed
>
>              My prayers were answered I made it through another frightening
nite.
>
>  I wonder how I have survived it all these years.   Surely these years of
seizures have worn
>
> on me.      Many do not understand what TLE is about or sezures status.
>
>                 If I were rich I would give to epilepsy research
>
> As I gain more knowledge about my epilepsy I realize how lucky I am to survive
this
>
> But it's a continuing battle   I at times wonder if this condition was
bestowed upon
>
> me to make me stronger and to see how much I can survive
>
>        There is a God He has watched over me again last nite
>
>
>
>
> Wendy
>

I have chronic insomnia  ever since I can remember.  And  it's cuz I have
multiple
siezures every nite,  and I am petrified of going to sleep ever since I was a
young child.

         You can imagine what this has done to any type of social life I have
had.

  Just these last few months I am now down to 3 seizures at nite time on Keppra
         But I sleep on the 3rd nite after being awake for 2 nites...I'm
exhausted

         Recently an internest prescribed restorhil to help me sleep at nite time

After taking my frist capsule of restrohil last nite I broke out in small itchy
hives and my throat closed in on me. It was scary I got my benedryl and stayed
out of the bed
and sat up with my cell near me to call the ER if things didn't subside.

I was petrified and stayed awake all nite long doing relaxing techniques with
music

When the doctors office finally opened I called both my neuro and this internest

to tell them that restrohil does not work well with keppra with me and my
symptoms.

                         I was told to stop taking this sleep aid

                                  What a scary nite I had

I prayed to make it through this terrbile nite.    And tonite I will not bother
going to bed

              My prayers were answered I made it through another frightening
nite.

  I wonder how I have survived it all these years.   Surely these years of
seizures have worn

on me.      Many do not understand what TLE is about or sezures status.

                 If I were rich I would give to epilepsy research

As I gain more knowledge about my epilepsy I realize how lucky I am to survive
this

But it's a continuing battle   I at times wonder if this condition was bestowed
upon

me to make me stronger and to see how much I can survive

        There is a God He has watched over me again last nite




Wendy

Thank you, Peter. That's a good idea.

Susan


   _____

From: epilepsysupportandeducation@yahoogroups.com
[mailto:epilepsysupportandeducation@yahoogroups.com] On Behalf Of Peter
Sent: Monday, November 09, 2009 1:14 PM
To: epilepsysupportandeducation@yahoogroups.com
Subject: Re: [Epilepsy Support and Education] Re: 11-5-96




Make youself a video of your most important things to you. And leave it for
yourself so in case if something happens and you get scared of memory loss.
You will have something to remind yourself of what you love most!

[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

Thank you so much, Margaret


   _____

From: epilepsysupportandeducation@yahoogroups.com
[mailto:epilepsysupportandeducation@yahoogroups.com] On Behalf Of
mfroof@...
Sent: Monday, November 09, 2009 5:43 PM
To: epilepsysupportandeducation@yahoogroups.com
Subject: [Epilepsy Support and Education] Susan




Hi, Susan....my prayers will be with you tomorrow for a safe surgery and
positive outcome.

Take care, Everyone.
Margaret

[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

Hi, Susan....my prayers will be with you tomorrow for a safe surgery and
positive outcome.

Take care, Everyone.
Margaret


[Non-text portions of this message have been removed]

Hi, Sange

I'm sorry about Randy's out going seizures and I know as a parent how
stressful this can be. Sange I wanted to share this with you, because I
know this treatment will really help Randy. -I should say everybody with
epilepsy- I'm having a treatment which had help me great deal and I
discover how little I know about my body, the treatment is call NAET ii
is AMAZING had help great deal to tolerate my med's as I'm extremely
allergic to them, so since I started the treatment -for example- I had
learn that I was allergic to Calcium. VIt C to and egg protein and to
many other things, but my point is that in my opinion Epilepsy it is
miss understood GREAT DEAL me being allergic to Calcium could be the
beginning of my seizures along with my celiac that I didn't know I have
for 3 decades. as you know Calcium it is crucial for the nervous system
and me being allergic to it can easily damage the nervous system of
anybody and you will never know as is not any mayor symptoms in my case.
Since I have been treated for those vitamins I had feel the difference,
plus the most important I'm able to tolerate more my keppra since I'm
adding more as I'm pregnant and I'm amaze. Honestly I was skeptical
about it, but now I know it works, so I'm much exited. Unfortunately
this therapy takes time as they have to started from the basics -in my
case- before she can go into treating for my med's, but she rush the
treatment for my keppra do to my pregnancy, so I will ended just in one
med, but she needs to treat me more with it, but I'm satisfy with the
results, so far. It is worst your money and time and everything else.

Please Sange check into this alternative therapy I think very strongly
this the answer for epilepsy that starts out of no where. I had done my
research plus I'm a living proof of it and I had come with the strong
conclusion that epilepsy is allergy foods and vitamins that food
contains, and what starts this allergies parasites!! A subject that we
know very little about and dr's are clueless unfortunately, believe me
Randy doesn't have to go more through this hell a hell that I was for
many years and know I take very little medication when I learn the true
of  epilepsy.

Please Sange get back to me, so I know you got this info that will
change Randy's life.

Sange go to www.NAET.com <http://www.naet.com/>

GOD BLESSES YOU!

Nina



-----Original Message-----
From: epilepsysupportandeducation@yahoogroups.com
[mailto:epilepsysupportandeducation@yahoogroups.com] On Behalf Of thdoy2
Sent: Monday, November 09, 2009 12:51 AM
To: epilepsysupportandeducation@yahoogroups.com
Subject: [Epilepsy Support and Education] Son Regressing


It's unfortunately official: Randy (8yo) is regressing. Dh and me have
noticed that since Randy has gone from a seizure every 2-3 weeks to
seizures 2-3 times a week, he seems to have some had trouble following
directions and acting more & more 'immature'. We have spoken with his
teachers and just received his report card. He has almost full support
in his school and has lost some of his previous skills.

Randy is going into the hospital for a 24hr EEG and a very sensitive MRI
on the 20th. Maybe this will provide much needed answers to what
suddenly is going on. Actually this has to.

We just don't know what to do, except put on a brave face for Randy and
our 2 other kids. It is killing dh and me inside, but can't let the kids
know that.

Sorry about the length of this. I just needed to vent, I just need to do
something besides talk with dh about this (even though he's a rock).

Thank You, Sange



[Non-text portions of this message have been removed]

I had the weirdness scaresst thing happen to me last nite
I took my first prescribed restrohil to help me sleep
But it didnt even make me groggy!

And I nearly called the ER  I had tiny little ichy bumps all over
me and the worse part was my throat all of a sudden kept closing up
on me while I tried to sleep.

I was scared for my life!
I took some benedryl asap and kept my cell phone near me
And I tried to relax myself much as possible

and no I didnt get any sleep I lied in my bed for 8 hours again
wide awake
I called my doc and told him Im not touching that stuff again!

I will stick with melatonin
or excedrin PM


Wendy

Make youself a video of your most important things to you. And leave it for
yourself so in case if something happens and you get scared of memory loss.
You will have something to remind yourself of what you love most!


[Non-text portions of this message have been removed]

>
> Welcome to the group, Mike.
i unstand what u are going though having seizures as i get older the more
seizures i have my kids are grown and out of the house and my husband dieing
with cancer and i alway had him take me ever way do to i dont drive and the kids
have lives to live now they taken care of me when they lived here when they
little god what 5years old they wood help me when i had a seizure,right now what
odd seens the drs told my husband that there no more they can do for him 2
months ago the seizures has stop cant tell u why u think i wood have more being
more stress out,but mike dont be scared i black my eye one time but i know the
god with me look i raised my kids with my hubby
gone 16 hours a day so i know god there

--- In epilepsysupportandeducation@yahoogroups.com, "DorisY" <dorisellen@...>
wrote:
>
> The values of your child's understanding and help are super!!
> It is so meaningful having someone who "wants" to help you at
> a time needed.  A big thank you from one who has had seizures
> since auto accident at age 17.  I surely value this help.
>   Peace.
>     Doris
>
> --- In epilepsysupportandeducation@yahoogroups.com, "sunshine66053"
<sunshine66053@> wrote:
> >
> > my 18 year was school and another person was having a seizure and ppl was
making fun of her as she layed there helplys,and my 18 year run pushing ppl away
telling to shut up not knowing this 17year old to help her and to roll her to
one side til she came out of the seizure that night someone came to the door and
it was the 17 year old mother crying saying thank you so much catherine i wood
do it again just because i pray to god someome wood be there for my mom if she
every has one out in the open,
> >
>
my child helped ppl in wheelchair it doesnt matter she looks at the preson
inside not down them i alway told my childen to treat ppl the way you want to be
treated

I am going in for surgery  at Yale New Haven Hospital in Connecticut
tomorrow morning.  I have been debating this for twenty years but I think
it's time.  The doctors all say so.  I'm leaving my 6 year old son and my
husband behind.  I hope all goes well.  I'm scared about how I will feel
AFTER the operation. It is  on my left temporal lobe to remove a lesion.
I'm worried about memory loss but seizures cause memory loss too.  You just
can't win.  It's such a lonely place.

I never post on here but I read what everyone writes and always look forward
to everyone's conversations.  I've just been too shy.  but, If I'm too have
brain surgery,  why not take some other chances, right?

Thanks for reading.

Susan


   _____

From: epilepsysupportandeducation@yahoogroups.com
[mailto:epilepsysupportandeducation@yahoogroups.com] On Behalf Of Julie Hope
Sent: Saturday, November 07, 2009 11:38 PM
To: epilepsysupportandeducation@yahoogroups.com
Subject: Re: [Epilepsy Support and Education] Re: 11-5-96




Harold

That is the way to do it. It is a complete life style change a person has to
do as well and figuring your
trigger and keeping that under control has a lot to do with it.
GOOD GOing!! Congrats!! and lets hope it stays that way eh.
Julie
Julie Hope
epilepsyhealth@ <mailto:epilepsyhealth%40sasktel.net> sasktel.net
http://www.2betrhea <http://www.2betrhealth.com> lth.com
----- Original Message -----
From: "Tristin Seagraves" <tristinspike26@
<mailto:tristinspike26%40yahoo.com> yahoo.com>
To: <epilepsysupportande
<mailto:epilepsysupportandeducation%40yahoogroups.com>
ducation@yahoogroups.com>
Sent: Saturday, November 07, 2009 7:55 PM
Subject: Re: [Epilepsy Support and Education] Re: 11-5-96

I hear ya, Harold! Awesome!

Tristin
--- On Sat, 11/7/09, Mentor11596 <harold739@yahoo.
<mailto:harold739%40yahoo.com> com> wrote:

From: Mentor11596 <harold739@yahoo. <mailto:harold739%40yahoo.com> com>
Subject: [Epilepsy Support and Education] Re: 11-5-96
To: epilepsysupportande
<mailto:epilepsysupportandeducation%40yahoogroups.com>
ducation@yahoogroups.com
Date: Saturday, November 7, 2009, 5:59 PM

Wendy, no Seizures, no Auras! I main seizure triggers I had was
stress and no sleep! I make sure I am not under stress and that
I get eight to ten hours of sleep every night! God Bless!, Harold

--- In epilepsysupportande ducation@ yahoogroups. com, Wendy Anne
<ima.da.wendy@ ...> wrote:
>
> *Congradulations to you Harold!
>
> Does this mean not even one parital, absence, dajavu? no seizures of any
> kind?
> Do you still have to be careful of your seizure triggers?
>
> Wendy*

[Non-text portions of this message have been removed]

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[Non-text portions of this message have been removed]

Hi, Sange.....I feel for you because I went through the same thing with my
son.......him going downhill (mentally and physically)  no matter what med
he was on for seizures.  I am glad to see that he is gong in for a 24 hr
EEG.....can they stretch that out to 3-4 days, though?  It was the 4 day  EEG
that told us our son did not have epileptic seizures, but non-epileptic
seizures.  Because of that, the meds he was on for the past 11/2 yrs were
just screwing up his brain more so.  I am not saying that your son is the  same
but I hope they can find out for sure if the are epileptic vs non-epil
seizures.  My kid is off all E meds now and is pretty much back to  normal.  He
does have the occasional non- E spells, but nothing like when  he was on
the meds.

My prayers are with you,
Margaret


[Non-text portions of this message have been removed]

It's unfortunately official:  Randy (8yo) is regressing.  Dh and me have noticed
that since Randy has gone from a seizure every 2-3 weeks to seizures 2-3 times a
week, he seems to have some had trouble following directions and acting more &
more 'immature'.  We have spoken with his teachers and just received his report
card.  He has almost full support in his school and has lost some of his
previous skills.

Randy is going into the hospital for a 24hr EEG and a very sensitive MRI on the
20th.  Maybe this will provide much needed answers to what suddenly is going on.
Actually this has to.

We just don't know what to do, except put on a brave face for Randy and our 2
other kids.  It is killing dh and me inside, but can't let the kids know that.

Sorry about the length of this.  I just needed to vent, I just need to do
something besides talk with dh about this (even though he's a rock).

                Thank You,  Sange