Hi Everyone,



My daughter has been experiencing myoclonic jerks when she is sleep deprived. We

discovered this after picking her up from a sleepover. She is 14. A CAT scan and

blood work came back fine. An eeg came back abnormal. The neurologist wants to

put her on Keppra XR. She has not had a seizure yet. Is it absolutely necessary

for her to be on medication? I would greatly appreciate advice. My daughter has

always been a healthy child. We do not have a family history of epilepsy, so

this is all very new and scary to us.

Hi Kristi,



I am the only one on both sides of my family who has any type of seizure

activity.  If an EEG does come back abnormal, it may be a good idea to put

her on a low dose of an anti-seizure medication, especially since she is

experiencing myoclonic jerks.  My seizure activity started out as just

simple partials, but my parents never had it treated, then by the time I was

10 or 11 I started experiencing grand mal seizures, and then they had to

treat it.  It was not until I turned 25 were the grand mals finally under

control by medication.  I now will have the simple partials once or twice a

week, and then a petit mal about once a year.  I believe, though, if my

parents had tried medicating me sooner, I may not be experiencing seizures

at this time.



     ______________

Craig Sheffield

http://groups.yahoo.com/group/The_Bible_and_Life/

Ephesians 2:8-9

Epilepsy Support and Education - Moderator



"America needs God more than God needs America. If we ever forget that we

are One Nation Under God, then we will be a Nation gone under."





— President Ronald Reagan, Aug. 23, 1984

"If you don't read the newspaper you are uninformed; if you do read the

newspaper you are misinformed." --American author and humorist Mark Twain

(1835-1910)

SUPPORT OUR SOLDIERS!! (No matter how you feel about war!)



-------Original Message-------



From: Kristi Nelson

Date: 7/14/2009 8:06:45 AM

To: epilepsysupportandeducation@yahoogroups.com

Subject: [Epilepsy Support and Education] Advice Needed









Hi Everyone,



My daughter has been experiencing myoclonic jerks when she is sleep deprived

  We discovered this after picking her up from a sleepover. She is 14. A CAT

scan and blood work came back fine. An eeg came back abnormal. The

neurologist wants to put her on Keppra XR. She has not had a seizure yet. Is

it absolutely necessary for her to be on medication? I would greatly

appreciate advice. My daughter has always been a healthy child. We do not

have a family history of epilepsy, so this is all very new and scary to us.











[Non-text portions of this message have been removed]

Hi Kristi,

         I'm no doctor, but I would suggest going with the doctor's orders. 

It's easier to get control while she's young.  Keppra has very few side effects,

so she should do fine.  Also, myoclonic jerks are seizures.  Check out this

webpage.....

 http://www.epilepsy.com/EPILEPSY/seizure_myoclonic  and click on the term

"juvenile myoclonic epilepsy."

 

Tristin :)



--- On Tue, 7/14/09, Kristi Nelson <cnknelson@...> wrote:





From: Kristi Nelson <cnknelson@...>

Subject: [Epilepsy Support and Education] Advice Needed

To: epilepsysupportandeducation@yahoogroups.com

Date: Tuesday, July 14, 2009, 9:00 AM

















Hi Everyone,



My daughter has been experiencing myoclonic jerks when she is sleep deprived. We

discovered this after picking her up from a sleepover. She is 14. A CAT scan and

blood work came back fine. An eeg came back abnormal. The neurologist wants to

put her on Keppra XR. She has not had a seizure yet. Is it absolutely necessary

for her to be on medication? I would greatly appreciate advice. My daughter has

always been a healthy child. We do not have a family history of epilepsy, so

this is all very new and scary to us.







































[Non-text portions of this message have been removed]

--- In epilepsysupportandeducation@yahoogroups.com, "Kristi Nelson"

<cnknelson@...> wrote:

>

> Hi Everyone,

>

> My daughter has been experiencing myoclonic jerks when she is sleep deprived.

We discovered this after picking her up from a sleepover. She is 14. A CAT scan

and blood work came back fine. An eeg came back abnormal. The neurologist wants

to put her on Keppra XR. She has not had a seizure yet. Is it absolutely

necessary for her to be on medication? I would greatly appreciate advice. My

daughter has always been a healthy child. We do not have a family history of

epilepsy, so this is all very new and scary to us.

>

HELLO THERE,



JUST WANTED TO SHARE THIS WITH U  PLEASE.



I WAS 14 MY SELF WHEN I FIRST STARTED GOING ON MEDS . NOW, I WENT THROUGH ALL

TYPE OF EXAMS IN AUSTRALIA AND IN THE END THEY SAID THAT IT WAS EPILEPSY OF

CRYPTOGENETIC NATURE OR IDIOPATHIC (WHICH SIMPLY MEANS WITHOUT CAUSE).

LATELY THEY FOUND OUT THAT MY HEART HOLES DID CLOSE UP AND THAT I AM 49. SO I

HAVE UNDERGONE A SMALL HEART OPERATION SEALING HOLES (POF) AND SINCE THEN I HAVE

BEEN MUCH BETTER. NOW WHAT HAS THIS GOT TO DO WITH EPILEPSY YOU SAY?



WELL SINCE EVERYONE IS SPREADING OPINIONS HERE AND THERE, I MUST POINT OUT THE

FOLLOWING:







1) THE POF  IS SOMETHING WE ARE BORN WITH,  ALL OF US



2) THE HOLES  CLOSE UP LATEST WHEN WE ARE CHILDREN OR AS SOON AS WE ARE BORN AS

WE LEARN HOW BREATH AUTONOMOUSLY.



3) IF THEY DO NOT CLOSE UP IT MAY CAUSE A WILD BLOOD FLOW WHICH MAY HIT THE

BRAIN, LUNGS AND SO ON CAUSING STROKES WHY?



4) THIS WILD BLOOD FLOW CAUSES A LACK OF OXYGEN FROM WITHIN



5) THEREFORE IF YOU HAVE LACK OF OXYGEN, YOU BRAIN SUFFERS



AND YOUR FITS DO BECAME MUCH MORE FREQUENT AND HARMFUL



FOR YOUR SELF.



6) BY TAKING THE NECESSARY BLOOD FLUIDIFICATION TABLETS YOU MAY HAVE LESS FITS

BECAUSE SIMPLY YOUR BLOOD IS NOT SO THICK AND THE BRAIN AND ALL OTHER ORGANS

SUFFER LESS.



PLEASE CHECK THE HEART AS WELL. YOU WILL NEVER KNOW YOU MIGHT FIND OUT SHE DOES

NOT HAVE EPILEPSY BUT SHE FAINTS AND HAS FITS JUST BECAUSE HER BLOOD DOES NOT

OXYGENATE HER PROPERLY. THANKS



PLEASE TAKE THIS AS AN ADVICE NOT A PRESCRIPTION. TALK WITH UR SPECIALISTS ABOUT

IT



THANKS A LOT



MARINA

If I were you I will go first to a holistic nutritionist, as must of the

seizure disorder have to do with allergies, I said this from personal

experience after having seizures disorder for 31 years, now I'm

completely new person and I have to take very little medicine and no

more jerks at night and when I wake up and no more tiredness etc..

medicines will make her worst for sin number of reasons, but if the diet

doesn't help, you might have to put her in meds but with the diet this

is a good time for her to over come them as she doesn't have any mayor

scare tissue in her brain from the seizures,  before is too late like my

case too much scare tissue on my brain to make better, so I have to

depend on med's for the rest of my life. Chemicals are another mayor

factor as well. It is very hard to find this allergies with conventional

med's my were done holistically and does the way I find out my seizures

came from allergies. the only place that I know it have this special

equipment to detect allergies is in Vancouver Canada -the place that

change my life-



Parasites also play a mayor role in this.



If you want more info about this diet let me know and I WILL LOVE TO

HELP YOU!



Best



Nina



-----Original Message-----

From: epilepsysupportandeducation@yahoogroups.com

[mailto:epilepsysupportandeducation@yahoogroups.com] On Behalf Of halua8

Sent: Tuesday, July 14, 2009 10:17 AM

To: epilepsysupportandeducation@yahoogroups.com

Subject: [Epilepsy Support and Education] Re: Advice Needed











--- In epilepsysupportande

<mailto:epilepsysupportandeducation%40yahoogroups.com>

ducation@yahoogroups.com, "Kristi Nelson" <cnknelson@...> wrote:

>

> Hi Everyone,

>

> My daughter has been experiencing myoclonic jerks when she is sleep

deprived. We discovered this after picking her up from a sleepover. She

is 14. A CAT scan and blood work came back fine. An eeg came back

abnormal. The neurologist wants to put her on Keppra XR. She has not had

a seizure yet. Is it absolutely necessary for her to be on medication? I

would greatly appreciate advice. My daughter has always been a healthy

child. We do not have a family history of epilepsy, so this is all very

new and scary to us.

>

HELLO THERE,



JUST WANTED TO SHARE THIS WITH U PLEASE.



I WAS 14 MY SELF WHEN I FIRST STARTED GOING ON MEDS . NOW, I WENT

THROUGH ALL TYPE OF EXAMS IN AUSTRALIA AND IN THE END THEY SAID THAT IT

WAS EPILEPSY OF CRYPTOGENETIC NATURE OR IDIOPATHIC (WHICH SIMPLY MEANS

WITHOUT CAUSE).

LATELY THEY FOUND OUT THAT MY HEART HOLES DID CLOSE UP AND THAT I AM 49.

SO I HAVE UNDERGONE A SMALL HEART OPERATION SEALING HOLES (POF) AND

SINCE THEN I HAVE BEEN MUCH BETTER. NOW WHAT HAS THIS GOT TO DO WITH

EPILEPSY YOU SAY?



WELL SINCE EVERYONE IS SPREADING OPINIONS HERE AND THERE, I MUST POINT

OUT THE FOLLOWING:



1) THE POF IS SOMETHING WE ARE BORN WITH, ALL OF US



2) THE HOLES CLOSE UP LATEST WHEN WE ARE CHILDREN OR AS SOON AS WE ARE

BORN AS WE LEARN HOW BREATH AUTONOMOUSLY.



3) IF THEY DO NOT CLOSE UP IT MAY CAUSE A WILD BLOOD FLOW WHICH MAY HIT

THE BRAIN, LUNGS AND SO ON CAUSING STROKES WHY?



4) THIS WILD BLOOD FLOW CAUSES A LACK OF OXYGEN FROM WITHIN



5) THEREFORE IF YOU HAVE LACK OF OXYGEN, YOU BRAIN SUFFERS



AND YOUR FITS DO BECAME MUCH MORE FREQUENT AND HARMFUL



FOR YOUR SELF.



6) BY TAKING THE NECESSARY BLOOD FLUIDIFICATION TABLETS YOU MAY HAVE

LESS FITS BECAUSE SIMPLY YOUR BLOOD IS NOT SO THICK AND THE BRAIN AND

ALL OTHER ORGANS SUFFER LESS.



PLEASE CHECK THE HEART AS WELL. YOU WILL NEVER KNOW YOU MIGHT FIND OUT

SHE DOES NOT HAVE EPILEPSY BUT SHE FAINTS AND HAS FITS JUST BECAUSE HER

BLOOD DOES NOT OXYGENATE HER PROPERLY. THANKS



PLEASE TAKE THIS AS AN ADVICE NOT A PRESCRIPTION. TALK WITH UR

SPECIALISTS ABOUT IT



THANKS A LOT



MARINA







[Non-text portions of this message have been removed]

Nina, I would like to know more...please.



Dawn Iversen









________________________________

From: Adriana Rozo <parallelworld@...>

To: epilepsysupportandeducation@yahoogroups.com

Sent: Tuesday, July 14, 2009 10:18:23 AM

Subject: RE: [Epilepsy Support and Education] Re: Advice Needed











If I were you I will go first to a holistic nutritionist, as must of the

seizure disorder have to do with allergies, I said this from personal

experience after having seizures disorder for 31 years, now I'm

completely new person and I have to take very little medicine and no

more jerks at night and when I wake up and no more tiredness etc..

medicines will make her worst for sin number of reasons, but if the diet

doesn't help, you might have to put her in meds but with the diet this

is a good time for her to over come them as she doesn't have any mayor

scare tissue in her brain from the seizures, before is too late like my

case too much scare tissue on my brain to make better, so I have to

depend on med's for the rest of my life. Chemicals are another mayor

factor as well. It is very hard to find this allergies with conventional

med's my were done holistically and does the way I find out my seizures

came from allergies. the only place that I know it have this special

equipment to detect allergies is in Vancouver Canada -the place that

change my life-



Parasites also play a mayor role in this.



If you want more info about this diet let me know and I WILL LOVE TO

HELP YOU!



Best



Nina



-----Original Message-----

From: epilepsysupportande ducation@ yahoogroups. com

[mailto:epilepsysupportande ducation@ yahoogroups. com] On Behalf Of halua8

Sent: Tuesday, July 14, 2009 10:17 AM

To: epilepsysupportande ducation@ yahoogroups. com

Subject: [Epilepsy Support and Education] Re: Advice Needed





--- In epilepsysupportande

<mailto:epilepsysup portandeducation %40yahoogroups. com>

ducation@yahoogroup s.com, "Kristi Nelson" <cnknelson@. ..> wrote:

>

> Hi Everyone,

>

> My daughter has been experiencing myoclonic jerks when she is sleep

deprived. We discovered this after picking her up from a sleepover. She

is 14. A CAT scan and blood work came back fine. An eeg came back

abnormal. The neurologist wants to put her on Keppra XR. She has not had

a seizure yet. Is it absolutely necessary for her to be on medication? I

would greatly appreciate advice. My daughter has always been a healthy

child. We do not have a family history of epilepsy, so this is all very

new and scary to us.

>

HELLO THERE,



JUST WANTED TO SHARE THIS WITH U PLEASE.



I WAS 14 MY SELF WHEN I FIRST STARTED GOING ON MEDS . NOW, I WENT

THROUGH ALL TYPE OF EXAMS IN AUSTRALIA AND IN THE END THEY SAID THAT IT

WAS EPILEPSY OF CRYPTOGENETIC NATURE OR IDIOPATHIC (WHICH SIMPLY MEANS

WITHOUT CAUSE).

LATELY THEY FOUND OUT THAT MY HEART HOLES DID CLOSE UP AND THAT I AM 49.

SO I HAVE UNDERGONE A SMALL HEART OPERATION SEALING HOLES (POF) AND

SINCE THEN I HAVE BEEN MUCH BETTER. NOW WHAT HAS THIS GOT TO DO WITH

EPILEPSY YOU SAY?



WELL SINCE EVERYONE IS SPREADING OPINIONS HERE AND THERE, I MUST POINT

OUT THE FOLLOWING:



1) THE POF IS SOMETHING WE ARE BORN WITH, ALL OF US



2) THE HOLES CLOSE UP LATEST WHEN WE ARE CHILDREN OR AS SOON AS WE ARE

BORN AS WE LEARN HOW BREATH AUTONOMOUSLY.



3) IF THEY DO NOT CLOSE UP IT MAY CAUSE A WILD BLOOD FLOW WHICH MAY HIT

THE BRAIN, LUNGS AND SO ON CAUSING STROKES WHY?



4) THIS WILD BLOOD FLOW CAUSES A LACK OF OXYGEN FROM WITHIN



5) THEREFORE IF YOU HAVE LACK OF OXYGEN, YOU BRAIN SUFFERS



AND YOUR FITS DO BECAME MUCH MORE FREQUENT AND HARMFUL



FOR YOUR SELF.



6) BY TAKING THE NECESSARY BLOOD FLUIDIFICATION TABLETS YOU MAY HAVE

LESS FITS BECAUSE SIMPLY YOUR BLOOD IS NOT SO THICK AND THE BRAIN AND

ALL OTHER ORGANS SUFFER LESS.



PLEASE CHECK THE HEART AS WELL. YOU WILL NEVER KNOW YOU MIGHT FIND OUT

SHE DOES NOT HAVE EPILEPSY BUT SHE FAINTS AND HAS FITS JUST BECAUSE HER

BLOOD DOES NOT OXYGENATE HER PROPERLY. THANKS



PLEASE TAKE THIS AS AN ADVICE NOT A PRESCRIPTION. TALK WITH UR

SPECIALISTS ABOUT IT



THANKS A LOT



MARINA



[Non-text portions of this message have been removed]









[Non-text portions of this message have been removed]

Hi, Dawn



My pleasure, I just have to write you later arround, as I have some

errands to do, but at list I just want you know that I'm aware I got

your e-mail.



Best



Nina



-----Original Message-----

From: epilepsysupportandeducation@yahoogroups.com

[mailto:epilepsysupportandeducation@yahoogroups.com] On Behalf Of Dawn

Iversen

Sent: Wednesday, July 15, 2009 8:52 AM

To: epilepsysupportandeducation@yahoogroups.com

Subject: Re: [Epilepsy Support and Education] Re: Advice Needed











Nina, I would like to know more...please.



Dawn Iversen



________________________________

From: Adriana Rozo <parallelworld@ <mailto:parallelworld%40comcast.net>

comcast.net>

To: epilepsysupportande

<mailto:epilepsysupportandeducation%40yahoogroups.com>

ducation@yahoogroups.com

Sent: Tuesday, July 14, 2009 10:18:23 AM

Subject: RE: [Epilepsy Support and Education] Re: Advice Needed



If I were you I will go first to a holistic nutritionist, as must of the

seizure disorder have to do with allergies, I said this from personal

experience after having seizures disorder for 31 years, now I'm

completely new person and I have to take very little medicine and no

more jerks at night and when I wake up and no more tiredness etc..

medicines will make her worst for sin number of reasons, but if the diet

doesn't help, you might have to put her in meds but with the diet this

is a good time for her to over come them as she doesn't have any mayor

scare tissue in her brain from the seizures, before is too late like my

case too much scare tissue on my brain to make better, so I have to

depend on med's for the rest of my life. Chemicals are another mayor

factor as well. It is very hard to find this allergies with conventional

med's my were done holistically and does the way I find out my seizures

came from allergies. the only place that I know it have this special

equipment to detect allergies is in Vancouver Canada -the place that

change my life-



Parasites also play a mayor role in this.



If you want more info about this diet let me know and I WILL LOVE TO

HELP YOU!



Best



Nina



-----Original Message-----

From: epilepsysupportande ducation@ yahoogroups. com

[mailto:epilepsysupportande ducation@ yahoogroups. com] On Behalf Of

halua8

Sent: Tuesday, July 14, 2009 10:17 AM

To: epilepsysupportande ducation@ yahoogroups. com

Subject: [Epilepsy Support and Education] Re: Advice Needed



--- In epilepsysupportande

<mailto:epilepsysup portandeducation %40yahoogroups. com>

ducation@yahoogroup s.com, "Kristi Nelson" <cnknelson@. ..> wrote:

>

> Hi Everyone,

>

> My daughter has been experiencing myoclonic jerks when she is sleep

deprived. We discovered this after picking her up from a sleepover. She

is 14. A CAT scan and blood work came back fine. An eeg came back

abnormal. The neurologist wants to put her on Keppra XR. She has not had

a seizure yet. Is it absolutely necessary for her to be on medication? I

would greatly appreciate advice. My daughter has always been a healthy

child. We do not have a family history of epilepsy, so this is all very

new and scary to us.

>

HELLO THERE,



JUST WANTED TO SHARE THIS WITH U PLEASE.



I WAS 14 MY SELF WHEN I FIRST STARTED GOING ON MEDS . NOW, I WENT

THROUGH ALL TYPE OF EXAMS IN AUSTRALIA AND IN THE END THEY SAID THAT IT

WAS EPILEPSY OF CRYPTOGENETIC NATURE OR IDIOPATHIC (WHICH SIMPLY MEANS

WITHOUT CAUSE).

LATELY THEY FOUND OUT THAT MY HEART HOLES DID CLOSE UP AND THAT I AM 49.

SO I HAVE UNDERGONE A SMALL HEART OPERATION SEALING HOLES (POF) AND

SINCE THEN I HAVE BEEN MUCH BETTER. NOW WHAT HAS THIS GOT TO DO WITH

EPILEPSY YOU SAY?



WELL SINCE EVERYONE IS SPREADING OPINIONS HERE AND THERE, I MUST POINT

OUT THE FOLLOWING:



1) THE POF IS SOMETHING WE ARE BORN WITH, ALL OF US



2) THE HOLES CLOSE UP LATEST WHEN WE ARE CHILDREN OR AS SOON AS WE ARE

BORN AS WE LEARN HOW BREATH AUTONOMOUSLY.



3) IF THEY DO NOT CLOSE UP IT MAY CAUSE A WILD BLOOD FLOW WHICH MAY HIT

THE BRAIN, LUNGS AND SO ON CAUSING STROKES WHY?



4) THIS WILD BLOOD FLOW CAUSES A LACK OF OXYGEN FROM WITHIN



5) THEREFORE IF YOU HAVE LACK OF OXYGEN, YOU BRAIN SUFFERS



AND YOUR FITS DO BECAME MUCH MORE FREQUENT AND HARMFUL



FOR YOUR SELF.



6) BY TAKING THE NECESSARY BLOOD FLUIDIFICATION TABLETS YOU MAY HAVE

LESS FITS BECAUSE SIMPLY YOUR BLOOD IS NOT SO THICK AND THE BRAIN AND

ALL OTHER ORGANS SUFFER LESS.



PLEASE CHECK THE HEART AS WELL. YOU WILL NEVER KNOW YOU MIGHT FIND OUT

SHE DOES NOT HAVE EPILEPSY BUT SHE FAINTS AND HAS FITS JUST BECAUSE HER

BLOOD DOES NOT OXYGENATE HER PROPERLY. THANKS



PLEASE TAKE THIS AS AN ADVICE NOT A PRESCRIPTION. TALK WITH UR

SPECIALISTS ABOUT IT



THANKS A LOT



MARINA



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]















[Non-text portions of this message have been removed]

Hi, Dawn I have a quite busy week, but at list I'm send you the diet she

has to fallow and when I come back from work tonight we can go over more

in the tails. This is the diet I have been doing since. The yes and the

no's you see in the pages are obviously what you can't eat and you can.



Best



Nina



-----Original Message-----

From: epilepsysupportandeducation@yahoogroups.com

[mailto:epilepsysupportandeducation@yahoogroups.com] On Behalf Of Dawn

Iversen

Sent: Wednesday, July 15, 2009 8:52 AM

To: epilepsysupportandeducation@yahoogroups.com

Subject: Re: [Epilepsy Support and Education] Re: Advice Needed











Nina, I would like to know more...please.



Dawn Iversen



________________________________

From: Adriana Rozo <parallelworld@ <mailto:parallelworld%40comcast.net>

comcast.net>

To: epilepsysupportande

<mailto:epilepsysupportandeducation%40yahoogroups.com>

ducation@yahoogroups.com

Sent: Tuesday, July 14, 2009 10:18:23 AM

Subject: RE: [Epilepsy Support and Education] Re: Advice Needed



If I were you I will go first to a holistic nutritionist, as must of the

seizure disorder have to do with allergies, I said this from personal

experience after having seizures disorder for 31 years, now I'm

completely new person and I have to take very little medicine and no

more jerks at night and when I wake up and no more tiredness etc..

medicines will make her worst for sin number of reasons, but if the diet

doesn't help, you might have to put her in meds but with the diet this

is a good time for her to over come them as she doesn't have any mayor

scare tissue in her brain from the seizures, before is too late like my

case too much scare tissue on my brain to make better, so I have to

depend on med's for the rest of my life. Chemicals are another mayor

factor as well. It is very hard to find this allergies with conventional

med's my were done holistically and does the way I find out my seizures

came from allergies. the only place that I know it have this special

equipment to detect allergies is in Vancouver Canada -the place that

change my life-



Parasites also play a mayor role in this.



If you want more info about this diet let me know and I WILL LOVE TO

HELP YOU!



Best



Nina



-----Original Message-----

From: epilepsysupportande ducation@ yahoogroups. com

[mailto:epilepsysupportande ducation@ yahoogroups. com] On Behalf Of

halua8

Sent: Tuesday, July 14, 2009 10:17 AM

To: epilepsysupportande ducation@ yahoogroups. com

Subject: [Epilepsy Support and Education] Re: Advice Needed



--- In epilepsysupportande

<mailto:epilepsysup portandeducation %40yahoogroups. com>

ducation@yahoogroup s.com, "Kristi Nelson" <cnknelson@. ..> wrote:

>

> Hi Everyone,

>

> My daughter has been experiencing myoclonic jerks when she is sleep

deprived. We discovered this after picking her up from a sleepover. She

is 14. A CAT scan and blood work came back fine. An eeg came back

abnormal. The neurologist wants to put her on Keppra XR. She has not had

a seizure yet. Is it absolutely necessary for her to be on medication? I

would greatly appreciate advice. My daughter has always been a healthy

child. We do not have a family history of epilepsy, so this is all very

new and scary to us.

>

HELLO THERE,



JUST WANTED TO SHARE THIS WITH U PLEASE.



I WAS 14 MY SELF WHEN I FIRST STARTED GOING ON MEDS . NOW, I WENT

THROUGH ALL TYPE OF EXAMS IN AUSTRALIA AND IN THE END THEY SAID THAT IT

WAS EPILEPSY OF CRYPTOGENETIC NATURE OR IDIOPATHIC (WHICH SIMPLY MEANS

WITHOUT CAUSE).

LATELY THEY FOUND OUT THAT MY HEART HOLES DID CLOSE UP AND THAT I AM 49.

SO I HAVE UNDERGONE A SMALL HEART OPERATION SEALING HOLES (POF) AND

SINCE THEN I HAVE BEEN MUCH BETTER. NOW WHAT HAS THIS GOT TO DO WITH

EPILEPSY YOU SAY?



WELL SINCE EVERYONE IS SPREADING OPINIONS HERE AND THERE, I MUST POINT

OUT THE FOLLOWING:



1) THE POF IS SOMETHING WE ARE BORN WITH, ALL OF US



2) THE HOLES CLOSE UP LATEST WHEN WE ARE CHILDREN OR AS SOON AS WE ARE

BORN AS WE LEARN HOW BREATH AUTONOMOUSLY.



3) IF THEY DO NOT CLOSE UP IT MAY CAUSE A WILD BLOOD FLOW WHICH MAY HIT

THE BRAIN, LUNGS AND SO ON CAUSING STROKES WHY?



4) THIS WILD BLOOD FLOW CAUSES A LACK OF OXYGEN FROM WITHIN



5) THEREFORE IF YOU HAVE LACK OF OXYGEN, YOU BRAIN SUFFERS



AND YOUR FITS DO BECAME MUCH MORE FREQUENT AND HARMFUL



FOR YOUR SELF.



6) BY TAKING THE NECESSARY BLOOD FLUIDIFICATION TABLETS YOU MAY HAVE

LESS FITS BECAUSE SIMPLY YOUR BLOOD IS NOT SO THICK AND THE BRAIN AND

ALL OTHER ORGANS SUFFER LESS.



PLEASE CHECK THE HEART AS WELL. YOU WILL NEVER KNOW YOU MIGHT FIND OUT

SHE DOES NOT HAVE EPILEPSY BUT SHE FAINTS AND HAS FITS JUST BECAUSE HER

BLOOD DOES NOT OXYGENATE HER PROPERLY. THANKS



PLEASE TAKE THIS AS AN ADVICE NOT A PRESCRIPTION. TALK WITH UR

SPECIALISTS ABOUT IT



THANKS A LOT



MARINA



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

i think it is necessary. when i was first diagnosed with epilepsy, i wasn't

having actual seizures...they started off as bad migraines actually. eventually

i had a mild one at home. my mom didn't believe it...she thought it was just a

bad reaction 2 barbecued meat. i was not only placed on a medicine i almost died

from taking, but had an abnormal eeg. that was when i was diagnosed with

epilepsy. so no, u don't have 2 have seizures right off the bat. i think being

on medicine will do her good.



Little Puss! Little Puss! Here Kitty, Kitty, Kitty....



--- On Tue, 7/14/09, halua8 <halua8@...> wrote:





From: halua8 <halua8@...>

Subject: [Epilepsy Support and Education] Re: Advice Needed

To: epilepsysupportandeducation@yahoogroups.com

Date: Tuesday, July 14, 2009, 7:16 AM

















--- In epilepsysupportande ducation@ yahoogroups. com, "Kristi Nelson"

<cnknelson@. ..> wrote:

>

> Hi Everyone,

>

> My daughter has been experiencing myoclonic jerks when she is sleep deprived.

We discovered this after picking her up from a sleepover. She is 14. A CAT scan

and blood work came back fine. An eeg came back abnormal. The neurologist wants

to put her on Keppra XR. She has not had a seizure yet. Is it absolutely

necessary for her to be on medication? I would greatly appreciate advice. My

daughter has always been a healthy child. We do not have a family history of

epilepsy, so this is all very new and scary to us.

>

HELLO THERE,



JUST WANTED TO SHARE THIS WITH U PLEASE.



I WAS 14 MY SELF WHEN I FIRST STARTED GOING ON MEDS . NOW, I WENT THROUGH ALL

TYPE OF EXAMS IN AUSTRALIA AND IN THE END THEY SAID THAT IT WAS EPILEPSY OF

CRYPTOGENETIC NATURE OR IDIOPATHIC (WHICH SIMPLY MEANS WITHOUT CAUSE).

LATELY THEY FOUND OUT THAT MY HEART HOLES DID CLOSE UP AND THAT I AM 49. SO I

HAVE UNDERGONE A SMALL HEART OPERATION SEALING HOLES (POF) AND SINCE THEN I HAVE

BEEN MUCH BETTER. NOW WHAT HAS THIS GOT TO DO WITH EPILEPSY YOU SAY?



WELL SINCE EVERYONE IS SPREADING OPINIONS HERE AND THERE, I MUST POINT OUT THE

FOLLOWING:



1) THE POF IS SOMETHING WE ARE BORN WITH, ALL OF US



2) THE HOLES CLOSE UP LATEST WHEN WE ARE CHILDREN OR AS SOON AS WE ARE BORN AS

WE LEARN HOW BREATH AUTONOMOUSLY.



3) IF THEY DO NOT CLOSE UP IT MAY CAUSE A WILD BLOOD FLOW WHICH MAY HIT THE

BRAIN, LUNGS AND SO ON CAUSING STROKES WHY?



4) THIS WILD BLOOD FLOW CAUSES A LACK OF OXYGEN FROM WITHIN



5) THEREFORE IF YOU HAVE LACK OF OXYGEN, YOU BRAIN SUFFERS



AND YOUR FITS DO BECAME MUCH MORE FREQUENT AND HARMFUL



FOR YOUR SELF.



6) BY TAKING THE NECESSARY BLOOD FLUIDIFICATION TABLETS YOU MAY HAVE LESS FITS

BECAUSE SIMPLY YOUR BLOOD IS NOT SO THICK AND THE BRAIN AND ALL OTHER ORGANS

SUFFER LESS.



PLEASE CHECK THE HEART AS WELL. YOU WILL NEVER KNOW YOU MIGHT FIND OUT SHE DOES

NOT HAVE EPILEPSY BUT SHE FAINTS AND HAS FITS JUST BECAUSE HER BLOOD DOES NOT

OXYGENATE HER PROPERLY. THANKS



PLEASE TAKE THIS AS AN ADVICE NOT A PRESCRIPTION. TALK WITH UR SPECIALISTS ABOUT

IT



THANKS A LOT



MARINA







































[Non-text portions of this message have been removed]

Hi Adriana,

so in a way you see my point of view as well. I hope that this young lady can

solve her problems without going on too many medication.

Thank you for writing too Marina



--- Mar 14/7/09, Adriana Rozo <parallelworld@...> ha scritto:





Da: Adriana Rozo <parallelworld@...>

Oggetto: RE: [Epilepsy Support and Education] Re: Advice Needed

A: epilepsysupportandeducation@yahoogroups.com

Data: Martedì 14 luglio 2009, 17:18

















If I were you I will go first to a holistic nutritionist, as must of the

seizure disorder have to do with allergies, I said this from personal

experience after having seizures disorder for 31 years, now I'm

completely new person and I have to take very little medicine and no

more jerks at night and when I wake up and no more tiredness etc..

medicines will make her worst for sin number of reasons, but if the diet

doesn't help, you might have to put her in meds but with the diet this

is a good time for her to over come them as she doesn't have any mayor

scare tissue in her brain from the seizures, before is too late like my

case too much scare tissue on my brain to make better, so I have to

depend on med's for the rest of my life. Chemicals are another mayor

factor as well. It is very hard to find this allergies with conventional

med's my were done holistically and does the way I find out my seizures

came from allergies. the only place that I know it have this special

equipment to detect allergies is in Vancouver Canada -the place that

change my life-



Parasites also play a mayor role in this.



If you want more info about this diet let me know and I WILL LOVE TO

HELP YOU!



Best



Nina



-----Original Message-----

From: epilepsysupportande ducation@ yahoogroups. com

[mailto:epilepsysupportande ducation@ yahoogroups. com] On Behalf Of halua8

Sent: Tuesday, July 14, 2009 10:17 AM

To: epilepsysupportande ducation@ yahoogroups. com

Subject: [Epilepsy Support and Education] Re: Advice Needed





--- In epilepsysupportande

<mailto:epilepsysup portandeducation %40yahoogroups. com>

ducation@yahoogroup s.com, "Kristi Nelson" <cnknelson@. ..> wrote:

>

> Hi Everyone,

>

> My daughter has been experiencing myoclonic jerks when she is sleep

deprived. We discovered this after picking her up from a sleepover. She

is 14. A CAT scan and blood work came back fine. An eeg came back

abnormal. The neurologist wants to put her on Keppra XR. She has not had

a seizure yet. Is it absolutely necessary for her to be on medication? I

would greatly appreciate advice. My daughter has always been a healthy

child. We do not have a family history of epilepsy, so this is all very

new and scary to us.

>

HELLO THERE,



JUST WANTED TO SHARE THIS WITH U PLEASE.



I WAS 14 MY SELF WHEN I FIRST STARTED GOING ON MEDS . NOW, I WENT

THROUGH ALL TYPE OF EXAMS IN AUSTRALIA AND IN THE END THEY SAID THAT IT

WAS EPILEPSY OF CRYPTOGENETIC NATURE OR IDIOPATHIC (WHICH SIMPLY MEANS

WITHOUT CAUSE).

LATELY THEY FOUND OUT THAT MY HEART HOLES DID CLOSE UP AND THAT I AM 49.

SO I HAVE UNDERGONE A SMALL HEART OPERATION SEALING HOLES (POF) AND

SINCE THEN I HAVE BEEN MUCH BETTER. NOW WHAT HAS THIS GOT TO DO WITH

EPILEPSY YOU SAY?



WELL SINCE EVERYONE IS SPREADING OPINIONS HERE AND THERE, I MUST POINT

OUT THE FOLLOWING:



1) THE POF IS SOMETHING WE ARE BORN WITH, ALL OF US



2) THE HOLES CLOSE UP LATEST WHEN WE ARE CHILDREN OR AS SOON AS WE ARE

BORN AS WE LEARN HOW BREATH AUTONOMOUSLY.



3) IF THEY DO NOT CLOSE UP IT MAY CAUSE A WILD BLOOD FLOW WHICH MAY HIT

THE BRAIN, LUNGS AND SO ON CAUSING STROKES WHY?



4) THIS WILD BLOOD FLOW CAUSES A LACK OF OXYGEN FROM WITHIN



5) THEREFORE IF YOU HAVE LACK OF OXYGEN, YOU BRAIN SUFFERS



AND YOUR FITS DO BECAME MUCH MORE FREQUENT AND HARMFUL



FOR YOUR SELF.



6) BY TAKING THE NECESSARY BLOOD FLUIDIFICATION TABLETS YOU MAY HAVE

LESS FITS BECAUSE SIMPLY YOUR BLOOD IS NOT SO THICK AND THE BRAIN AND

ALL OTHER ORGANS SUFFER LESS.



PLEASE CHECK THE HEART AS WELL. YOU WILL NEVER KNOW YOU MIGHT FIND OUT

SHE DOES NOT HAVE EPILEPSY BUT SHE FAINTS AND HAS FITS JUST BECAUSE HER

BLOOD DOES NOT OXYGENATE HER PROPERLY. THANKS



PLEASE TAKE THIS AS AN ADVICE NOT A PRESCRIPTION. TALK WITH UR

SPECIALISTS ABOUT IT



THANKS A LOT



MARINA



[Non-text portions of this message have been removed]







































[Non-text portions of this message have been removed]

There is no known epilepsy in my family either, but my 7 3/4yo son was diagnosed

almost 2yo ago.



Don't go by family history alone, sometimes families kept epilepsy a secret

because it was shameful.  Plus it is suspected that my son's epilepsy started

much earlier before his diagnosis because of the brain damage that it caused (he

had only 'Silent Seizures' then).  We just thought he was daydreaming a lot

before his EEG, which could easily have happened to others thru the generations.



You may want to put her on the medication, it can only help.

                        ---Sange



======================================================================

--- In epilepsysupportandeducation@yahoogroups.com, "Kristi Nelson"

<cnknelson@...> wrote:

>

> Hi Everyone,

>

> My daughter has been experiencing myoclonic jerks when she is sleep deprived.

We discovered this after picking her up from a sleepover. She is 14. A CAT scan

and blood work came back fine. An eeg came back abnormal. The neurologist wants

to put her on Keppra XR. She has not had a seizure yet. Is it absolutely

necessary for her to be on medication? I would greatly appreciate advice. My

daughter has always been a healthy child. We do not have a family history of

epilepsy, so this is all very new and scary to us.

>