why is this on a seizure site? Basically, I've been meeting people with seizures
who were wrongly diagnosed ... nuerolyme can cause seizures. Many might not be
aware of the possible connection and possible misdiagnosis going on.
 
One or two here stated they once had Lyme or a spouse had Lyme..... it is
believed by some doctors ( LLMD's) that Lyme is really never cured. It goes into
dormancy. It is believed by LLMD's if borellia spirochetes  get into the CNS
system it can cause seizures. A LLMD (Lyme Literate Medical Doctor) is found by
networking. 
 
The seizure - nuerolyme connection is especially important to look into if you
or a spouse "ever" had a true "CDC" positive Lyme test. (The CDC states one is
sick with 5 positive bands, patients are reporting being sick with seizures with
just 2 or 3 reported bands. Quest and Labcorp only report  "positive if 5 bands
are present."  Igenex labs "reports every" band tested)  I have read that Lyme
spirochetes are believed to be sexually transmitted and they are believed to be
passed on in utero if antibiotics are not taken during pregnancy. If I can help
just one of thousands realize there might be a possible connection.....then that
is one less patient misdiagnosed. 
 
Again, iF you are a patient who researches you might want to view the
documentary film Under My Skin and if you ever had Lyme or a spouse or relative
had lyme and you are experiencing seizures, I strongly suggest you read Cure
Unknown by Pam Weintraub. (a copy is in my local library...Pam is a medical
journalist). 
 
Some believe Lyme is never really cured once you have it. Keeping it in dormancy
is the key and finding a doctor who would explore this possibility....knowing
western blots from Quest and Labcorp are not very reliable...is of utmost
importance.
 
"IF" you want more info on this subject matter please e-mail me privately. I
understand that the possiblity of nuero Lyme and seizures is a very difficult
reality to grasp.




[Non-text portions of this message have been removed]

I'm confused, I just got over having Lyme disease, had the bulls eye and all,
got antibiotics and got over it, but I don't understand what that has to do with
epilepsy.  My epilepsy hasn't changed since then. So what is the connection?
 
Sharon

--- On Sun, 11/30/08, Maraika <maraika@...> wrote:

From: Maraika <maraika@...>
Subject: [Epilepsy Support and Education] Lyme disease
To: epilepsysupportandeducation@yahoogroups.com
Date: Sunday, November 30, 2008, 9:48 PM






Lyme Borreliosis is a tick-transmitted (deer tick) spirochetal illness that
usually presents with an expanding skin rash that has a red border and pale
center. This is considered stage 1 of the disease. This is the best time to
diagnose this disease, since it at least gives you a chance to stop the
progression of this illness. Stage 2 is considered disseminated infection
and it can involve the heart, central nervous system, peripheral nerves, and
disseminated skin infections. Stage 3 of this infection is a chronic
infection, which is disseminated and associated with tremendous fatigue and
disability. The highest prevalence of this disease is in the northeastern
US; however, it is spreading throughout the country and has been seen in
almost every state in the country. If you have an expanding "target-like"
rash and have been out in the woods, you should seek medical attention
immediately.

Those who have had long-term Lyme disease can suffer major disability.
Anyone that has any stage of Lyme disease should consider aggressive
nutritional support. Since there are people who have asymptomatic Lyme
disease (suffer with Lyme disease but are not aware of it), the state of
one's immune system plays an important role in the course of this illness.
Aggressive nutritional supplementation gives the patient the best chance to
optimize their own, natural immune system. If the Lyme disease has
progressed to involve the nervous system, grape seed extract becomes a very
important optimizer. You need to give this nutritional program at least a 6
to 9 month trial. This is the minimal length of time needed to improve your
immune system.

What is Grape Seed extract? - Grape seed extract is probably the most potent
antioxidant available today. It is 50 times more potent than vitamin E and
20 times more potent than vitamin C when used along with other
antioxidants- especially vitamin C. When it is used by itself, it is only 3
to 4 times more potent than vitamin C and 6 to 8 times more potent than
vitamin E. This truly brings in the concept of synergy. One plus one is not
2, but instead 8-10-or even 20. Nutrients work together not only attacking
different types of free radicals but also working in different parts of the
body. The various antioxidants even have the capability to regenerate other
antioxidants so they can be used over and over again. This is why it is so
important to add the optimizers to the basic cellular nutrition-synergy is
created and the potency of your supplements greatly increases.

Maraika Ph/FAX 03 54333904

If you keep doing what you've always done, you will get what you've always
gotten

[Non-text portions of this message have been removed]















[Non-text portions of this message have been removed]

craig

yu might know my niece and uncle they live there lol

wendy

--- On Sun, 11/30/08, Craig <Headspin@...> wrote:
From: Craig <Headspin@...>
Subject: Re: [Epilepsy Support and Education] Lyme disease
To: epilepsysupportandeducation@yahoogroups.com
Date: Sunday, November 30, 2008, 7:20 PM











             Yeah, I got Lyme Disease by a bug bite on my chest a few years ago,
but it

was caught in the early stages, so it was treated soon enough.  I was sick

for a couple of months though.  Lyme Disease is fairly rampant around this

area of the U.S. due to deer ticks and mosquitos.  We have a marsh that is

the 3rd largest mosquito breeding area in the U.S.  I live about one mile

from it, so you can imagine how the Summer nights can get.  We are not

supposed to leave anything out that can hold rain water and harvest more

mosquitos due to La Crosse Encephelitis (Comes right from my home town of La

Crosse, Wisconsin).



-------Original Message----- --



From: wendy k

Date: 11/30/2008 3:59:44 PM

To: epilepsysupportande ducation@ yahoogroups. com

Subject: Re: [Epilepsy Support and Education] Lyme disease



I took my husband to the er who got bit by a deer tick

and came down with lyme disease



by why are you putting all of this on epilepsy site?



I am half blind and have epilepsy



wendy



--- On Sun, 11/30/08, Maraika <maraika@bigpond. net.au> wrote:

From: Maraika <maraika@bigpond. net.au>

Subject: [Epilepsy Support and Education] Lyme disease

To: epilepsysupportande ducation@ yahoogroups. com

Date: Sunday, November 30, 2008, 4:48 PM



Lyme Borreliosis is a tick-transmitted (deer tick) spirochetal illness that



usually presents with an expanding skin rash that has a red border and pale



center. This is considered stage 1 of the disease. This is the best time to



diagnose this disease, since it at least gives you a chance to stop the



progression of this illness. Stage 2 is considered disseminated infection



and it can involve the heart, central nervous system, peripheral nerves, and



disseminated skin infections. Stage 3 of this infection is a chronic



infection, which is disseminated and associated with tremendous fatigue and



disability. The highest prevalence of this disease is in the northeastern



US; however, it is spreading throughout the country and has been seen in



almost every state in the country. If you have an expanding "target-like"



rash and have been out in the woods, you should seek medical attention



immediately.



Those who have had long-term Lyme disease can suffer major disability.



Anyone that has any stage of Lyme disease should consider aggressive



nutritional support. Since there are people who have asymptomatic Lyme



disease (suffer with Lyme disease but are not aware of it), the state of



one's immune system plays an important role in the course of this illness.



Aggressive nutritional supplementation gives the patient the best chance to



optimize their own, natural immune system. If the Lyme disease has



progressed to involve the nervous system, grape seed extract becomes a very



important optimizer. You need to give this nutritional program at least a 6



to 9 month trial. This is the minimal length of time needed to improve your



immune system.



What is Grape Seed extract? - Grape seed extract is probably the most potent



antioxidant available today. It is 50 times more potent than vitamin E and



20 times more potent than vitamin C when used along with other



antioxidants- especially vitamin C. When it is used by itself, it is only 3



to 4 times more potent than vitamin C and 6 to 8 times more potent than



vitamin E. This truly brings in the concept of synergy. One plus one is not



2, but instead 8-10-or even 20. Nutrients work together not only attacking



different types of free radicals but also working in different parts of the



body. The various antioxidants even have the capability to regenerate other



antioxidants so they can be used over and over again. This is why it is so



important to add the optimizers to the basic cellular nutrition-synergy is



created and the potency of your supplements greatly increases.



Maraika Ph/FAX 03 54333904



If you keep doing what you've always done, you will get what you've always



gotten



[Non-text portions of this message have been removed]























[Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]





























[Non-text portions of this message have been removed]

Yeah, I got Lyme Disease by a bug bite on my chest a few years ago, but it
was caught in the early stages, so it was treated soon enough.  I was sick
for a couple of months though.  Lyme Disease is fairly rampant around this
area of the U.S. due to deer ticks and mosquitos.  We have a marsh that is
the 3rd largest mosquito breeding area in the U.S.  I live about one mile
from it, so you can imagine how the Summer nights can get.  We are not
supposed to leave anything out that can hold rain water and harvest more
mosquitos due to La Crosse Encephelitis (Comes right from my home town of La
Crosse, Wisconsin).

-------Original Message-------

From: wendy k
Date: 11/30/2008 3:59:44 PM
To: epilepsysupportandeducation@yahoogroups.com
Subject: Re: [Epilepsy Support and Education] Lyme disease

I took my husband to the er who got bit by a deer tick
and came down with lyme disease

by why are you putting all of this on epilepsy site?

I am half blind and have epilepsy

wendy

--- On Sun, 11/30/08, Maraika <maraika@...> wrote:
From: Maraika <maraika@...>
Subject: [Epilepsy Support and Education] Lyme disease
To: epilepsysupportandeducation@yahoogroups.com
Date: Sunday, November 30, 2008, 4:48 PM

Lyme Borreliosis is a tick-transmitted (deer tick) spirochetal illness that

usually presents with an expanding skin rash that has a red border and pale

center. This is considered stage 1 of the disease. This is the best time to

diagnose this disease, since it at least gives you a chance to stop the

progression of this illness. Stage 2 is considered disseminated infection

and it can involve the heart, central nervous system, peripheral nerves, and

disseminated skin infections. Stage 3 of this infection is a chronic

infection, which is disseminated and associated with tremendous fatigue and

disability. The highest prevalence of this disease is in the northeastern

US; however, it is spreading throughout the country and has been seen in

almost every state in the country. If you have an expanding "target-like"

rash and have been out in the woods, you should seek medical attention

immediately.

Those who have had long-term Lyme disease can suffer major disability.

Anyone that has any stage of Lyme disease should consider aggressive

nutritional support. Since there are people who have asymptomatic Lyme

disease (suffer with Lyme disease but are not aware of it), the state of

one's immune system plays an important role in the course of this illness.

Aggressive nutritional supplementation gives the patient the best chance to

optimize their own, natural immune system. If the Lyme disease has

progressed to involve the nervous system, grape seed extract becomes a very

important optimizer. You need to give this nutritional program at least a 6

to 9 month trial. This is the minimal length of time needed to improve your

immune system.

What is Grape Seed extract? - Grape seed extract is probably the most potent

antioxidant available today. It is 50 times more potent than vitamin E and

20 times more potent than vitamin C when used along with other

antioxidants- especially vitamin C. When it is used by itself, it is only 3

to 4 times more potent than vitamin C and 6 to 8 times more potent than

vitamin E. This truly brings in the concept of synergy. One plus one is not

2, but instead 8-10-or even 20. Nutrients work together not only attacking

different types of free radicals but also working in different parts of the

body. The various antioxidants even have the capability to regenerate other

antioxidants so they can be used over and over again. This is why it is so

important to add the optimizers to the basic cellular nutrition-synergy is

created and the potency of your supplements greatly increases.

Maraika Ph/FAX 03 54333904

If you keep doing what you've always done, you will get what you've always

gotten

[Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]

For borrelia ....  Nuero Lyme or Regular Lyme..
 
NOTE: Not everyone gets flulike symptoms, not everyone gets a rash. Lyme and
Coinfections are not just spread by ticks. And, insects don't know state
borders. A doctor in my area has stated to patients inquiring... there is no
Lyme in our area. Yet there are several support groups.....and, some
patients  have seizures.
 
 Labcorp and Quest Western blots report the word "negative"  if the test is
negative. The CDC requires five bands to show up to get a "positive" result.
People do not know that individuals are very ill with just 2 or 3  bands when
the CDC says 5 bands make a person ill.  So, if patients have the western blot
by a non lyme literate medical doctor (LLMD) and they are dismissed as not
having Lyme when in fact they do.  LLMD's use their expertise to help diagnose
and use labs other than Quest and Labcorp for the Western Blot.
One lab is now accepting insurance if medicare is secondary and another
insurance is primary so it helps some get a test that might be otherwise costly.
($280-$475)
Please see a "LLMD" doctor if you want to explore eliminating nuero lyme.
Columbia just opened a clinic but I do not know anyone who has gone there. Most
literate on this subject are preferring to go to doctoprs who have treated and
tested for many years.
The National Lyme Group in DC is very active in trying to get Congress and the
CDC to redefine Lyme because too many are going undiagnosed. And, to add insult
to injury, what treats Lyme won't treat those nasty coinfections that are often
culprits also. So, a specialist in Lyme disease is really the route to take.
Unfortunately, most of these doctors will not accept insurance for many
different reasons. Some doctors are compassionate and are affordable, others 
are not.     
Take care and please try to rule out nuero lyme if you suspect it as a possible
cause of seizures. And know there is a political war between the Infectious
Disease Society and Lyme Literate Doctors and  many patients suffer the
consequence.
 
 
 
1- ****** I JUST saw this e-mail sponsored by a Nueroborreliosis Support Group
in NY

I'm just sharing info.....

http://www.lymenyc. org/events. html

December 6th, 2008
12:00 pm to 2:00 pm

Greater New York Lyme Neuroborreliosis Support Group

Lyme and Associated Diseases- Fall 2008
An update of new results as presented at the several Lyme and CFIDS conferences
in California over the last few months.

Presented by:
Dr. Joseph Burrascano
Moderated by:
Dr. David S. Younger,
Chief, Neuromuscular Diseases, NYU medical Center.

Meets at

NYU Hospitals Center
Alumni Hall A
550 First Avenue
New York, NY 10016

See Directions.

Lunch will be served.
2-
- Congress on Capitol Hill


http://www.lymerights.org/Pallone_v3.wmv
ADVANCED TOPICS IN LYME DISEASE
File Format: PDF/Adobe Acrobat - View as HTML
Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne
Illnesses, Joseph J. Burrascano, Jr., MD, 15th Edition, September 2005.


3-seudo seizures was mentioned here.
http://www.wellsphere.com/lyme-disease-article/when-to-suspect-lyme/20510
 
 http://www.wadhurst.demon.co.uk/lyme/lyme101.htm
 
4-
http://cassia.org/essay.htm
 
5-
Columbia Presbyterian in New York
http://columbia-lyme.org/
**good for reading but I do not know anyone who chose to go there...
opened very recently.
 
6-Suggested book (might be in library)
Cure Unknown by Pan Weintraub
 
7-Suggested Documentary Film
Under Our Skin  
Open Eye Pictures: Under Our Skin
Open Eye Pictures: Under Our Skin. A Dramatic Tale Of Microbes, Medicine and
Money, this eye-opening film investigates the untold story of Lyme disease, an
emerging ...www.underourskin.com- Cached
 
 

________________________________
From: Maraika <maraika@...>
To: epilepsysupportandeducation@yahoogroups.com
Sent: Saturday, November 29, 2008 11:41:49 PM
Subject: [Epilepsy Support and Education] Neuro Lyme


"Neurologic Lyme disease is very different than Lyme arthritis, and one way
it's different is that it's somewhat harder to diagnose." - Dr. Brain
Fallon, Columbia University Lyme Center (NY Transcript)

NEUROLOGIC LYME IN CHILDREN

Patients may require anywhere from four-six weeks or longer of treatment
depending upon how they are responding.

After completing a course of intravenous antibiotics, the patient should
then be placed on antibiotics by mouth for as long as it is necessary. They
can be given Amoxil, Suprax, a combination of Suprax, ERYC. Some physicians
are now even considering the use of Bactrim, combining Bactrim and ERYC.
There are a number of medications used, either singly or in combination,
that help some patients some of the time. The decision may be made on the
basis of the patient's clinical response and how well they tolerate the
medication.

In addition to these antibiotics, give the patients B-6, 25-50 mgs. a day,
depending upon their age and size; a multi-vitamin every day; Benedryl or
Atarax if they have some itching or a mild rash from the medication; yogurt
or acidophilus to prevent diarrhoea. http://www2. lymenet.org
<http://www2. lymenet.org/>

For more information
http://www.geocitie s.com/HotSprings /Oasis/6455/ neurologic- links.html

http://www.jstd. org/journal/ vol6f-w99/ v6nfwcasereport. pdf

http://www.mentalhe althandillness.. com/tnaold. html

Maraika

Have a great day and keep smiling:)

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

I took my husband to the er who got bit by a deer tick
and came down with lyme disease

by why are you putting all of this on epilepsy site?

I am half blind and have epilepsy

wendy

--- On Sun, 11/30/08, Maraika <maraika@...> wrote:
From: Maraika <maraika@...>
Subject: [Epilepsy Support and Education] Lyme disease
To: epilepsysupportandeducation@yahoogroups.com
Date: Sunday, November 30, 2008, 4:48 PM











             Lyme Borreliosis is a tick-transmitted (deer tick) spirochetal
illness that

usually presents with an expanding skin rash that has a red border and pale

center. This is considered stage 1 of the disease. This is the best time to

diagnose this disease, since it at least gives you a chance to stop the

progression of this illness. Stage 2 is considered disseminated infection

and it can involve the heart, central nervous system, peripheral nerves, and

disseminated skin infections. Stage 3 of this infection is a chronic

infection, which is disseminated and associated with tremendous fatigue and

disability. The highest prevalence of this disease is in the northeastern

US; however, it is spreading throughout the country and has been seen in

almost every state in the country. If you have an expanding "target-like"

rash and have been out in the woods, you should seek medical attention

immediately.



Those who have had long-term Lyme disease can suffer major disability.

Anyone that has any stage of Lyme disease should consider aggressive

nutritional support. Since there are people who have asymptomatic Lyme

disease (suffer with Lyme disease but are not aware of it), the state of

one's immune system plays an important role in the course of this illness.

Aggressive nutritional supplementation gives the patient the best chance to

optimize their own, natural immune system. If the Lyme disease has

progressed to involve the nervous system, grape seed extract becomes a very

important optimizer. You need to give this nutritional program at least a 6

to 9 month trial. This is the minimal length of time needed to improve your

immune system.



What is Grape Seed extract? - Grape seed extract is probably the most potent

antioxidant available today. It is 50 times more potent than vitamin E and

20 times more potent than vitamin C when used along with other

antioxidants- especially vitamin C. When it is used by itself, it is only 3

to 4 times more potent than vitamin C and 6 to 8 times more potent than

vitamin E. This truly brings in the concept of synergy. One plus one is not

2, but instead 8-10-or even 20. Nutrients work together not only attacking

different types of free radicals but also working in different parts of the

body. The various antioxidants even have the capability to regenerate other

antioxidants so they can be used over and over again. This is why it is so

important to add the optimizers to the basic cellular nutrition-synergy is

created and the potency of your supplements greatly increases.



Maraika Ph/FAX 03 54333904



If you keep doing what you've always done, you will get what you've always

gotten



[Non-text portions of this message have been removed]





























[Non-text portions of this message have been removed]

Lyme Borreliosis is a tick-transmitted (deer tick) spirochetal illness that
usually presents with an expanding skin rash that has a red border and pale
center. This is considered stage 1 of the disease. This is the best time to
diagnose this disease, since it at least gives you a chance to stop the
progression of this illness. Stage 2 is considered disseminated infection
and it can involve the heart, central nervous system, peripheral nerves, and
disseminated skin infections. Stage 3 of this infection is a chronic
infection, which is disseminated and associated with tremendous fatigue and
disability. The highest prevalence of this disease is in the northeastern
US; however, it is spreading throughout the country and has been seen in
almost every state in the country. If you have an expanding "target-like"
rash and have been out in the woods, you should seek medical attention
immediately.

Those who have had long-term Lyme disease can suffer major disability.
Anyone that has any stage of Lyme disease should consider aggressive
nutritional support. Since there are people who have asymptomatic Lyme
disease (suffer with Lyme disease but are not aware of it), the state of
one's immune system plays an important role in the course of this illness.
Aggressive nutritional supplementation gives the patient the best chance to
optimize their own, natural immune system. If the Lyme disease has
progressed to involve the nervous system, grape seed extract becomes a very
important optimizer. You need to give this nutritional program at least a 6
to 9 month trial. This is the minimal length of time needed to improve your
immune system.



What is Grape Seed extract? - Grape seed extract is probably the most potent
antioxidant available today. It is 50 times more potent than vitamin E and
20 times more potent than vitamin C when used along with other
antioxidants-especially vitamin C. When it is used by itself, it is only 3
to 4 times more potent than vitamin C and 6 to 8 times more potent than
vitamin E. This truly brings in the concept of synergy. One plus one is not
2, but instead 8-10-or even 20. Nutrients work together not only attacking
different types of free radicals but also working in different parts of the
body. The various antioxidants even have the capability to regenerate other
antioxidants so they can be used over and over again. This is why it is so
important to add the optimizers to the basic cellular nutrition-synergy is
created and the potency of your supplements greatly increases.



Maraika Ph/FAX 03 54333904

If you keep doing what you've always done, you will get what you've always
gotten





[Non-text portions of this message have been removed]

I let my friends and kids do the driving

and I want some day to move to where there is good

public transportation

I just never liked driving anyway hate to pay for gas and

all those bills anyway


wendy

--- On Sun, 11/30/08, Julie Hiscock <julesincanada78@...> wrote:
From: Julie Hiscock <julesincanada78@...>
Subject: Re: [Epilepsy Support and Education] seizure? ~ was this one?
To: epilepsysupportandeducation@yahoogroups.com
Date: Sunday, November 30, 2008, 2:27 PM











             As far as I know, people with epilepsy (here that is) are restricted
to a

class 5 driver's license. They cannot drive semi trucks, taxi, bus, airplane





-------Original Message----- --



From: rhonda b

Date: 29/11/2008 10:20:28 PM

To: epilepsysupportande ducation@ yahoogroups. com

Subject: Re: [Epilepsy Support and Education] seizure? ~ was this one?



If you can't drive a car, I'm sure you can't drive a semi, check with your

BMV to see what the rules are, they probably have a site online. If you can

t find the info online, give them a call.







--- On Sat, 11/29/08, Mr. Gilbert <goobert@gmail. com> wrote:



From: Mr. Gilbert <goobert@gmail. com>

Subject: Re: [Epilepsy Support and Education] seizure? ~ was this one?

To: epilepsysupportande ducation@ yahoogroups. com

Date: Saturday, November 29, 2008, 11:59 PM



Yea does anyone know the laws for semi drivers either I know I can't

drive my car for 6 months even up here in minnesota which is a bummer

cause I seem to feel ok always during the day.



On Sat, Nov 29, 2008 at 10:26 PM, rhonda b <rhondadbe@yahoo. com> wrote:

> Sometimes you do bite your tongue when you have a seizure.

> Seizures can happen at anytime if they are not controlled. If you notice

> more problems with them since you are taking the generic med, call your

> Neurologist and explain that to him. That is something anyone should do,

but

> especially since you drive a semi, you need to be sure your seizures are

> under control.

>

>

>

> --- On Fri, 11/28/08, Mr. Gilbert <goobert@gmail. com> wrote:

>

> From: Mr. Gilbert <goobert@gmail. com>

> Subject: [Epilepsy Support and Education] seizure? ~ was this one?

> To: epilepsysupportande ducation@ yahoogroups. com

> Date: Friday, November 28, 2008, 2:51 PM

>

> Hey, this is my current situation and am posting asking for comments,

> suggestions, thoughts, ideas, or anything else that crosses your mind

> as your read...

>

> I'm currently on keppra and just got my refill today and was handed

> the generic levetiracetam instead cause she said it was just now

> available and is law to hand out a generic first. I'm not set to take

> my next dosage (2x 500mg pills) till tonight. My seizures only seemed

> to happen when I'm trying to wake up though too, unless if I remember

> to take my keppra

>

> I forgot to take my keppra Tuesday night ending up biting my tongue

> from 630-730 and with a headache all day Wednesday. Is this a seizure

> or something else?

>

> ... The first time the doctor told me I had been having seizures was

> when I got up in the morning 0600 and took off to drive my semi. All I

> remember then was getting on the freeway then blacking out... I was at

> the point that time were I thought I was just waking up and was

> expecting to be fully alert soon. I found myself at 0630 in the ditch

> in a pile of mud. The lord saved me on that one only loosing a mudflap

> on the tractor and tale light cover plate. Could I have just fallen

> asleep. 4 days after they say I had another one at home and that the

> EEG confirmed it. so? One of the weird things though is that EEG

> wasn't long and I was still waking up. Anyone know anything about

> biting of the tongue and seizures while waking up...

>

> Thx Gilbert

>

>

> [Non-text portions of this message have been removed]

>

>





[Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]





























[Non-text portions of this message have been removed]

As far as I know, people with epilepsy (here that is) are restricted to a
class 5 driver's license. They cannot drive semi trucks, taxi, bus, airplane


-------Original Message-------

From: rhonda b
Date: 29/11/2008 10:20:28 PM
To: epilepsysupportandeducation@yahoogroups.com
Subject: Re: [Epilepsy Support and Education] seizure? ~ was this one?

If you can't drive a car, I'm sure you can't drive a semi, check with your
BMV to see what the rules are, they probably have a site online. If you can
t find the info online, give them a call.



--- On Sat, 11/29/08, Mr. Gilbert <goobert@...> wrote:

From: Mr. Gilbert <goobert@...>
Subject: Re: [Epilepsy Support and Education] seizure? ~ was this one?
To: epilepsysupportandeducation@yahoogroups.com
Date: Saturday, November 29, 2008, 11:59 PM

Yea does anyone know the laws for semi drivers either I know I can't
drive my car for 6 months even up here in minnesota which is a bummer
cause I seem to feel ok always during the day.

On Sat, Nov 29, 2008 at 10:26 PM, rhonda b <rhondadbe@yahoo. com> wrote:
> Sometimes you do bite your tongue when you have a seizure.
> Seizures can happen at anytime if they are not controlled. If you notice
> more problems with them since you are taking the generic med, call your
> Neurologist and explain that to him. That is something anyone should do,
but
> especially since you drive a semi, you need to be sure your seizures are
> under control.
>
>
>
> --- On Fri, 11/28/08, Mr. Gilbert <goobert@gmail. com> wrote:
>
> From: Mr. Gilbert <goobert@gmail. com>
> Subject: [Epilepsy Support and Education] seizure? ~ was this one?
> To: epilepsysupportande ducation@ yahoogroups. com
> Date: Friday, November 28, 2008, 2:51 PM
>
> Hey, this is my current situation and am posting asking for comments,
> suggestions, thoughts, ideas, or anything else that crosses your mind
> as your read...
>
> I'm currently on keppra and just got my refill today and was handed
> the generic levetiracetam instead cause she said it was just now
> available and is law to hand out a generic first. I'm not set to take
> my next dosage (2x 500mg pills) till tonight. My seizures only seemed
> to happen when I'm trying to wake up though too, unless if I remember
> to take my keppra
>
> I forgot to take my keppra Tuesday night ending up biting my tongue
> from 630-730 and with a headache all day Wednesday. Is this a seizure
> or something else?
>
> ... The first time the doctor told me I had been having seizures was
> when I got up in the morning 0600 and took off to drive my semi. All I
> remember then was getting on the freeway then blacking out... I was at
> the point that time were I thought I was just waking up and was
> expecting to be fully alert soon. I found myself at 0630 in the ditch
> in a pile of mud. The lord saved me on that one only loosing a mudflap
> on the tractor and tale light cover plate. Could I have just fallen
> asleep. 4 days after they say I had another one at home and that the
> EEG confirmed it. so? One of the weird things though is that EEG
> wasn't long and I was still waking up. Anyone know anything about
> biting of the tongue and seizures while waking up...
>
> Thx Gilbert
>
>
> [Non-text portions of this message have been removed]
>
>


[Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]

If you can't drive a car, I'm sure you can't drive a semi, check with your BMV
to see what the rules are, they probably have a site online. If you can't find
the info online, give them a call.


                

--- On Sat, 11/29/08, Mr. Gilbert <goobert@...> wrote:

From: Mr. Gilbert <goobert@...>
Subject: Re: [Epilepsy Support and Education] seizure? ~ was this one?
To: epilepsysupportandeducation@yahoogroups.com
Date: Saturday, November 29, 2008, 11:59 PM






Yea does anyone know the laws for semi drivers either I know I can't
drive my car for 6 months even up here in minnesota which is a bummer
cause I seem to feel ok always during the day.

On Sat, Nov 29, 2008 at 10:26 PM, rhonda b <rhondadbe@yahoo. com> wrote:
> Sometimes you do bite your tongue when you have a seizure.
> Seizures can happen at anytime if they are not controlled. If you notice
> more problems with them since you are taking the generic med, call your
> Neurologist and explain that to him. That is something anyone should do, but
> especially since you drive a semi, you need to be sure your seizures are
> under control.
>
>
>
> --- On Fri, 11/28/08, Mr. Gilbert <goobert@gmail. com> wrote:
>
> From: Mr. Gilbert <goobert@gmail. com>
> Subject: [Epilepsy Support and Education] seizure? ~ was this one?
> To: epilepsysupportande ducation@ yahoogroups. com
> Date: Friday, November 28, 2008, 2:51 PM
>
> Hey, this is my current situation and am posting asking for comments,
> suggestions, thoughts, ideas, or anything else that crosses your mind
> as your read...
>
> I'm currently on keppra and just got my refill today and was handed
> the generic levetiracetam instead cause she said it was just now
> available and is law to hand out a generic first. I'm not set to take
> my next dosage (2x 500mg pills) till tonight. My seizures only seemed
> to happen when I'm trying to wake up though too, unless if I remember
> to take my keppra
>
> I forgot to take my keppra Tuesday night ending up biting my tongue
> from 630-730 and with a headache all day Wednesday. Is this a seizure
> or something else?
>
> ... The first time the doctor told me I had been having seizures was
> when I got up in the morning 0600 and took off to drive my semi. All I
> remember then was getting on the freeway then blacking out... I was at
> the point that time were I thought I was just waking up and was
> expecting to be fully alert soon. I found myself at 0630 in the ditch
> in a pile of mud. The lord saved me on that one only loosing a mudflap
> on the tractor and tale light cover plate. Could I have just fallen
> asleep. 4 days after they say I had another one at home and that the
> EEG confirmed it. so? One of the weird things though is that EEG
> wasn't long and I was still waking up. Anyone know anything about
> biting of the tongue and seizures while waking up...
>
> Thx Gilbert
>
>
> [Non-text portions of this message have been removed]
>
>

















[Non-text portions of this message have been removed]

Yea does anyone know the laws for semi drivers either I know I can't
drive my car for 6 months even up here in minnesota which is a bummer
cause I seem to feel ok always during the day.

On Sat, Nov 29, 2008 at 10:26 PM, rhonda b <rhondadbe@...> wrote:
> Sometimes you do bite your tongue when you have a seizure.
> Seizures can happen at anytime if they are not controlled. If you notice
> more problems with them since you are taking the generic med, call your
> Neurologist and explain that to him. That is something anyone should do, but
> especially since you drive a semi, you need to be sure your seizures are
> under control.
>
>
>
> --- On Fri, 11/28/08, Mr. Gilbert <goobert@...> wrote:
>
> From: Mr. Gilbert <goobert@...>
> Subject: [Epilepsy Support and Education] seizure? ~ was this one?
> To: epilepsysupportandeducation@yahoogroups.com
> Date: Friday, November 28, 2008, 2:51 PM
>
> Hey, this is my current situation and am posting asking for comments,
> suggestions, thoughts, ideas, or anything else that crosses your mind
> as your read...
>
> I'm currently on keppra and just got my refill today and was handed
> the generic levetiracetam instead cause she said it was just now
> available and is law to hand out a generic first. I'm not set to take
> my next dosage (2x 500mg pills) till tonight. My seizures only seemed
> to happen when I'm trying to wake up though too, unless if I remember
> to take my keppra
>
> I forgot to take my keppra Tuesday night ending up biting my tongue
> from 630-730 and with a headache all day Wednesday. Is this a seizure
> or something else?
>
> ... The first time the doctor told me I had been having seizures was
> when I got up in the morning 0600 and took off to drive my semi. All I
> remember then was getting on the freeway then blacking out... I was at
> the point that time were I thought I was just waking up and was
> expecting to be fully alert soon. I found myself at 0630 in the ditch
> in a pile of mud. The lord saved me on that one only loosing a mudflap
> on the tractor and tale light cover plate. Could I have just fallen
> asleep. 4 days after they say I had another one at home and that the
> EEG confirmed it. so? One of the weird things though is that EEG
> wasn't long and I was still waking up. Anyone know anything about
> biting of the tongue and seizures while waking up...
>
> Thx Gilbert
>
>
> [Non-text portions of this message have been removed]
>
>

"Neurologic Lyme disease is very different than Lyme arthritis, and one way
it's different is that it's somewhat harder to diagnose." - Dr. Brain
Fallon, Columbia University Lyme Center (NY Transcript)



NEUROLOGIC LYME IN CHILDREN

Patients may require anywhere from four-six weeks or longer of treatment
depending upon how they are responding.

After completing a course of intravenous antibiotics, the patient should
then be placed on antibiotics by mouth for as long as it is necessary. They
can be given Amoxil, Suprax, a combination of Suprax, ERYC. Some physicians
are now even considering the use of Bactrim, combining Bactrim and ERYC.
There are a number of medications used, either singly or in combination,
that help some patients some of the time. The decision may be made on the
basis of the patient's clinical response and how well they tolerate the
medication.

In addition to these antibiotics, give the patients B-6, 25-50 mgs. a day,
depending upon their age and size; a multi-vitamin every day; Benedryl or
Atarax if they have some itching or a mild rash from the medication; yogurt
or acidophilus to prevent diarrhoea. http://www2.lymenet.org
<http://www2.lymenet.org/>

For more information
http://www.geocities.com/HotSprings/Oasis/6455/neurologic-links.html

http://www.jstd.org/journal/vol6f-w99/v6nfwcasereport.pdf

http://www.mentalhealthandillness.com/tnaold.html

Maraika

Have a great day and keep smiling:)



[Non-text portions of this message have been removed]

Sometimes you do bite your tongue when you have a seizure.
Seizures can happen at anytime if they are not controlled. If you notice more
problems with them since you are taking the generic med, call your Neurologist
and explain that to him. That is something anyone should do, but especially
since you drive a semi, you need to be sure your seizures are under control.


                

--- On Fri, 11/28/08, Mr. Gilbert <goobert@...> wrote:

From: Mr. Gilbert <goobert@...>
Subject: [Epilepsy Support and Education] seizure? ~ was this one?
To: epilepsysupportandeducation@yahoogroups.com
Date: Friday, November 28, 2008, 2:51 PM






Hey, this is my current situation and am posting asking for comments,
suggestions, thoughts, ideas, or anything else that crosses your mind
as your read...

I'm currently on keppra and just got my refill today and was handed
the generic levetiracetam instead cause she said it was just now
available and is law to hand out a generic first. I'm not set to take
my next dosage (2x 500mg pills) till tonight. My seizures only seemed
to happen when I'm trying to wake up though too, unless if I remember
to take my keppra

I forgot to take my keppra Tuesday night ending up biting my tongue
from 630-730 and with a headache all day Wednesday. Is this a seizure
or something else?

... The first time the doctor told me I had been having seizures was
when I got up in the morning 0600 and took off to drive my semi. All I
remember then was getting on the freeway then blacking out... I was at
the point that time were I thought I was just waking up and was
expecting to be fully alert soon. I found myself at 0630 in the ditch
in a pile of mud. The lord saved me on that one only loosing a mudflap
on the tractor and tale light cover plate. Could I have just fallen
asleep. 4 days after they say I had another one at home and that the
EEG confirmed it. so? One of the weird things though is that EEG
wasn't long and I was still waking up. Anyone know anything about
biting of the tongue and seizures while waking up...

Thx Gilbert

















[Non-text portions of this message have been removed]

I'm not really sure "what kind of seizures" Lyme can cause. BECAUSE of my new
exposure I've been reading epilepsy and other seizures are misdiagnosed when it
fact it is nuero Lyme or a coinfection. Lyme spirochetes is sometimes not even
found in spinal taps BUT...families have done autopsies to try to prove to
nonbelievers that the culprit was in fact boriella spirochetes. Because it goes
into cyst form only really Lyme literate doctors  are correctly diagnosing.
there is a tremendous "political" problem so patients are suffering. "I"
personally know of three types of tests that can help docs diagnose. Igenex
Western Blot IGG and IGM in California, then a 3 day urine sample after a course
of 2 weeks antibiotics because the antibiotics usually pulls the spirochetes out
of the deep CNS tissues then it passes in the urine.....sometimes.
 And, there is a coinfection blood smear test for Babesia, Bartonella and
Mycoplasma. This is fairly new. My insurance covered the tests for my daughter
because we had out of network coverage. "I" JUST did the tests  because of all
the reading I was doing and learning. "If" you want me to send some info let me
know. JUST know..there are only handful of docs in the US that are aware of this
and the mainstream doctors are fighting tooth and nail against it and I
understand it is all politics. To understand better I can send you a video clip
of a Congressman in Congress pleading to have the CDC revise its testing
protocol because certain bands were pulled from mainstream lab companies. Igenex
did not pull the bands. This is all weird to the mainstream but you would
understand what I'm saying IF you read Cure Unknown. It is Cure Unknown because
there is no one treatment for everyone for everyone cause everyone has different
symptoms. EX my daughter was
  bedridden, no seizures, then I know people with seizures. Since I've done so
much research I was able to get my daughter the proper non mainstream
doctor...ne is a Yale graduate and one is GW Adjunct professor. They are both
active in Congress. They were in a video but the gov't pulled it. By the way,
the word is President Bush has Lyme and the story of him choking on a pretzel, I
heard someone say it was really a seizure. I heard this on a special radio
station my friend who is a stealth pathogen researcher told me about. "IF" you
think you want info let me know. I've been keeping a list of doctors that
properly test. I brought my daughter to so many till I found who we see. They
kept dismissing us but I "knew" better!!!! I'm not saying everyone has Lyme
because I'm not a doctor but I do think it needs to be ruled out. 
Take care!!! Mindy    




________________________________
From: thdoy2 <Thdoy2@...>
To: epilepsysupportandeducation@yahoogroups.com
Sent: Saturday, November 29, 2008 12:59:06 AM
Subject: [Epilepsy Support and Education] Re: Seizures


Mindy-
What specific kind of seizures can the Neuro Lyme cause? Or are
there certain types of seizures that it CAN'T cause?
--Sange

--- In epilepsysupportande ducation@ yahoogroups. com, Mindy Hellman
<mindysrq@.. .> wrote:
>
> read or delete....just sharing info I'm just learning about
>
> Hi
> I am  not a medical practitioner and I am in no way offering
advice. I have been meeting many many people who have been having
seizures or their children have been having seizures. MANY people
don't know this but nuero borellia (Nuero Lyme) can cause seizures.
And, many are going undiagnosed because too many doctors are not
considering Lyme as a culprit of seizures, and if it goes undiagnosed
it is not a good situation. To find out and understand why most
mainstream doctors never consider this you might want to read Cure
Unknown by Pamela Weintraub and see the award winning documentary
film Under Our Skin. In the film a woman with severe seizures was
helped once she was properly tested. Most doctors who properly test
do not accept insurance for many different reasons. I am a CFIDS and
FMS support group co-leader and a few of our members  have  seizures.
Someone in our group is a stealth pathogen researcher who has been
enlightening me.  When
> the woman in our support who was having the seizures went to get
special tests for bacteria, she was diagnosed as having nuero chronic
lyme and many coinfections. (She does not recall having an insect
bite. Lyme is not only from ticks. It can be from fleas, mosquitos,
spiders, gnats, etc. Many don't know this and many doctors refuse to
acknowledge this. The book Cure Unknown which is in many libraries
explains this)  Nuero Borellia  is especially a  concern if one has
memory problems and has an ADD or ADHD diagnosis also.
> This is all new to many doctors and there are only a handful of
doctors in the US who acknowledges that is  a problem. The book Cure
Unknown and Under Our Skin has been sent to Congress in the hope of
educating the government about  this increasing epidemic. I'm just
sharing this info so no stone is left unturned as people seek help
from medical practitioners. Many need to seek  specific doctors who
do specific type of tests and patient intakes. 
> "I" think the  first step might be to consult a Lyme Support Group
in your area and speak with the support group leader about your
symptoms or your child's symptoms and ask if it sounds like it can be
Lyme or not. Then you can choose to find a doctor to help you, if you
choose to.   This is totally a personal decision, I just wanted to
share what I'm surprisingly  learning that  might have been
improperly discarded or not even considered by your physician. We are
our best advocates.
> Someone can have nuero lyme years after they were bitten by an
infected  tick, spider, flea, mosquito or gnat. And, not everyone
gets that classical Lyme circle rash. Unfortunately, nuero Lyme can
also pass to a fetus so this is something else to think about. 
> I wish the best to all of you and again...just sharing info I have
recently learned about.
> Mindy
>
>
>
>
> [Non-text portions of this message have been removed]
>






[Non-text portions of this message have been removed]

Sharon and Rebecca

I think it was sharon? oh help me my memory!

thank you for the caring e-mails

My clavice is sharp hurting pains at mid shaft I think
 but at least I am taking care of myself now
and I know what is happening it is a stress fracture I think but I should
let the doctors make the diagnosis. I am waiting on the report.
I am hoping I am just all wrong about this maybe I am

I was reaching for something heavy and it put pressure on my shoulder
and I could hear my collar bone cracking in half

I went to my pharmacist and she told me take advil for pain.
I have made myself an immobilizer as well for nite time.

If I don't get an answer soon I will go to be going right back to my doctors
office and if no answer again then to the er

my bone is protruding at the neckline we will see on the report
again maybe I am all wrong

This keeps me awake and is intrusive with my seizures.

Wendy

--- On Sat, 11/29/08, Rabecca Whalen <rabeccawhalen@...> wrote:
From: Rabecca Whalen <rabeccawhalen@...>
Subject: RE: [Epilepsy Support and Education] happy thanksgiving
To: epilepsysupportandeducation@yahoogroups.com
Date: Saturday, November 29, 2008, 12:20 PM











             Wendy,



God speed your recovery!!!



~hugs~



Rabecca



From: epilepsysupportande ducation@ yahoogroups. com

[mailto:epilepsysupportande ducation@ yahoogroups. com] On Behalf Of wendy k

Sent: Thursday, November 27, 2008 11:22 PM

To: epilepsysupportande ducation@ yahoogroups. com

Subject: [Epilepsy Support and Education] happy thanksgiving



Happy Thanksgiving to all who celebrate it



I have broken my clavicle



It keeps me awake at nite time and as you know that causes seizures



but lyrica take the edge off the pain and I eventally get to sleep



about 4am



I had xrays and the doctor is looking to send me to an ortho doc



wendy



[Non-text portions of this message have been removed]





























[Non-text portions of this message have been removed]

Wendy,



God speed your recovery!!!



~hugs~

Rabecca



From: epilepsysupportandeducation@yahoogroups.com
[mailto:epilepsysupportandeducation@yahoogroups.com] On Behalf Of wendy k
Sent: Thursday, November 27, 2008 11:22 PM
To: epilepsysupportandeducation@yahoogroups.com
Subject: [Epilepsy Support and Education] happy thanksgiving



Happy Thanksgiving to all who celebrate it

I have broken my clavicle

It keeps me awake at nite time and as you know that causes seizures

but lyrica take the edge off the pain and I eventally get to sleep

about 4am

I had xrays and the doctor is looking to send me to an ortho doc

wendy






[Non-text portions of this message have been removed]

Sange and Leslie,



The GREAT news is that the new medication seems to be working really well
for my daughter. She will have blood work drawn next Friday to make sure it
isn't affecting her liver and kidneys, but the change in her demeanor, her
ability to follow along and grasp concepts in class, her energy level, and
her alertness all are amazing! I am very hopeful that she continues to
tolerate this one well. I feel like kicking myself for continuing to try the
other one for so long with limited success and major lifestyle side-effects
(change in personality, low energy, sleeping all the time, withdrawn, lack
of engaging in social situations when she had been a social butterfly,
trouble with word/number finding, etc.) We had one other medication she had
these results with, but she developed a sudden and severe allergy to the
medication. Pray that doesn't happen this time!!!



~hugs~

Rabecca



From: epilepsysupportandeducation@yahoogroups.com
[mailto:epilepsysupportandeducation@yahoogroups.com] On Behalf Of thdoy2
Sent: Thursday, November 27, 2008 9:04 PM
To: epilepsysupportandeducation@yahoogroups.com
Subject: Re: [Epilepsy Support and Education] Seizures changing-sorry it is
long



Rabecca & Leslie,

Right now, my 7yo ds Randy is going through changing seizures and
it affects him greatly. His origingal seizures were diagnosed as
Complex-Parital Seizures starting in his frontal lobes (around his
5th b-day). Now his latest in-hospital EEG just showed that his
seizures are originating from his temporal lobe.

His seizures used to be absence seizures or mild tonic-clonic,
but no problems showed immediately problems--unfortunately it later
caused long-term damage with his ability to censor himself, and he
has OCD and ADD tendencies. Lately I have noticed he's only had
absence seizures with immediately noticeable memory lapses.

I was worried about my child's test results too, but you just
have to have trust in the doctor. Ask your child's doctor the
questions about the seizures getting worse and everything else.
Maybe there is a way they can expedite the results.

So I can't offer you any advice, but I just wanted you to know
that there are others in the same boat as you.

---Sange






[Non-text portions of this message have been removed]

Mindy-
What specific kind of seizures can the Neuro Lyme cause?  Or are
there certain types of seizures that it CAN'T cause?
                     --Sange

--- In epilepsysupportandeducation@yahoogroups.com, Mindy Hellman
<mindysrq@...> wrote:
>
> read or delete....just sharing info I'm just learning about
>
> Hi
> I am  not a medical practitioner and I am in no way offering
advice. I have been meeting many many people who have been having
seizures or their children have been having seizures. MANY people
don't know this but nuero borellia (Nuero Lyme) can cause seizures.
And, many are going undiagnosed because too many doctors are not
considering Lyme as a culprit of seizures, and if it goes undiagnosed
it is not a good situation. To find out and understand why most
mainstream doctors never consider this you might want to read Cure
Unknown by Pamela Weintraub and see the award winning documentary
film Under Our Skin. In the film a woman with severe seizures was
helped once she was properly tested. Most doctors who properly test
do not accept insurance for many different reasons. I am a CFIDS and
FMS support group co-leader and a few of our members  have  seizures.
Someone in our group is a stealth pathogen researcher who has been
enlightening me.  When
>  the woman in our support who was having the seizures went to get
special tests for bacteria, she was diagnosed as having nuero chronic
lyme and many coinfections. (She does not recall having an insect
bite. Lyme is not only from ticks. It can be from fleas, mosquitos,
spiders, gnats, etc. Many don't know this and many doctors refuse to
acknowledge this. The book Cure Unknown which is in many libraries
explains this)  Nuero Borellia  is especially a  concern if one has
memory problems and has an ADD or ADHD diagnosis also.
> This is all new to many doctors and there are only a handful of
doctors in the US who acknowledges that is  a problem. The book Cure
Unknown and Under Our Skin has been sent to Congress in the hope of
educating the government about  this increasing epidemic. I'm just
sharing this info so no stone is left unturned as people seek help
from medical practitioners. Many need to seek  specific doctors who
do specific type of tests and patient intakes. 
> "I" think the  first step might be to consult a Lyme Support Group
in your area and speak with the support group leader about your
symptoms or your child's symptoms and ask if it sounds like it can be
Lyme or not. Then you can choose to find a doctor to help you, if you
choose to.   This is totally a personal decision, I just wanted to
share what I'm surprisingly  learning that  might have been
improperly discarded or not even considered by your physician. We are
our best advocates.
> Someone can have nuero lyme years after they were bitten by an
infected  tick, spider, flea, mosquito or gnat. And, not everyone
gets that classical Lyme circle rash. Unfortunately, nuero Lyme can
also pass to a fetus so this is something else to think about. 
> I wish the best to all of you and again...just sharing info I have
recently learned about.
> Mindy
>
>
>
>
> [Non-text portions of this message have been removed]
>

Hi. I had seizures too which most of the time happned right after I woke up in
th emorning while I was still in bed. Of course if noone is around, you end up
biting your tongue which is terrible. Mine is now under control. since I was 4
years old I had been taking Phenobarbital pills until 4 months ago. My doctor
changed it to Valproate Sodium which I should be careful to take every day. But
I don't think my case is similar to yours. Cause you don't seem to have had it
for a long time. I had it by birth. and watch out. you should not be driving if
your seizures are not controlled.
Best




________________________________
From: Mr. Gilbert <goobert@...>
To: epilepsysupportandeducation@yahoogroups.com
Sent: Friday, November 28, 2008 11:21:14 PM
Subject: [Epilepsy Support and Education] seizure? ~ was this one?


Hey, this is my current situation and am posting asking for comments,
suggestions, thoughts, ideas, or anything else that crosses your mind
as your read...

I'm currently on keppra and just got my refill today and was handed
the generic levetiracetam instead cause she said it was just now
available and is law to hand out a generic first. I'm not set to take
my next dosage (2x 500mg pills) till tonight. My seizures only seemed
to happen when I'm trying to wake up though too, unless if I remember
to take my keppra

I forgot to take my keppra Tuesday night ending up biting my tongue
from 630-730 and with a headache all day Wednesday. Is this a seizure
or something else?

... The first time the doctor told me I had been having seizures was
when I got up in the morning 0600 and took off to drive my semi. All I
remember then was getting on the freeway then blacking out... I was at
the point that time were I thought I was just waking up and was
expecting to be fully alert soon. I found myself at 0630 in the ditch
in a pile of mud. The lord saved me on that one only loosing a mudflap
on the tractor and tale light cover plate. Could I have just fallen
asleep. 4 days after they say I had another one at home and that the
EEG confirmed it. so? One of the weird things though is that EEG
wasn't long and I was still waking up. Anyone know anything about
biting of the tongue and seizures while waking up...

Thx Gilbert





[Non-text portions of this message have been removed]

read or delete....just sharing info I'm just learning about

Hi
I am  not a medical practitioner and I am in no way offering advice. I have been
meeting many many people who have been having seizures or their children have
been having seizures. MANY people don't know this but nuero borellia (Nuero
Lyme) can cause seizures. And, many are going undiagnosed because too many
doctors are not considering Lyme as a culprit of seizures, and if it goes
undiagnosed it is not a good situation. To find out and understand why most
mainstream doctors never consider this you might want to read Cure Unknown by
Pamela Weintraub and see the award winning documentary film Under Our Skin. In
the film a woman with severe seizures was helped once she was properly tested.
Most doctors who properly test do not accept insurance for many different
reasons. I am a CFIDS and FMS support group co-leader and a few of our members 
have  seizures. Someone in our group is a stealth pathogen researcher who has
been enlightening me.  When
  the woman in our support who was having the seizures went to get special tests
for bacteria, she was diagnosed as having nuero chronic lyme and many
coinfections. (She does not recall having an insect bite. Lyme is not only from
ticks. It can be from fleas, mosquitos, spiders, gnats, etc. Many don't know
this and many doctors refuse to acknowledge this. The book Cure Unknown which is
in many libraries explains this)  Nuero Borellia  is especially a  concern if
one has memory problems and has an ADD or ADHD diagnosis also.
This is all new to many doctors and there are only a handful of doctors in the
US who acknowledges that is  a problem. The book Cure Unknown and Under Our Skin
has been sent to Congress in the hope of educating the government about  this
increasing epidemic. I'm just sharing this info so no stone is left unturned as
people seek help from medical practitioners. Many need to seek  specific doctors
who do specific type of tests and patient intakes. 
"I" think the  first step might be to consult a Lyme Support Group in your area
and speak with the support group leader about your symptoms or your child's
symptoms and ask if it sounds like it can be Lyme or not. Then you can choose to
find a doctor to help you, if you choose to.   This is totally a personal
decision, I just wanted to share what I'm surprisingly  learning that  might
have been improperly discarded or not even considered by your physician. We are
our best advocates.
Someone can have nuero lyme years after they were bitten by an infected  tick,
spider, flea, mosquito or gnat. And, not everyone gets that classical Lyme
circle rash. Unfortunately, nuero Lyme can also pass to a fetus so this is
something else to think about. 
I wish the best to all of you and again...just sharing info I have recently
learned about.
Mindy




[Non-text portions of this message have been removed]

Thanks guys for feedback and anyone else who replies I really
appreciate any comments.

On Fri, Nov 28, 2008 at 6:33 PM, Julie Hope <epilepsyhealth@...> wrote:
> Hi
> I have seizures in my sleep as well. When I say sleep that means sleep
> during night or day or whenever my ol'
> brain feels like having one.
> You should ask your neurologist if he thinks that you can handle the generic
> meds ok. Some can and some can't
> and there is a difference in them.
> The bitting of the tongue or mouth and the migraine after as well as being
> on another planet would be the only
> way I can tell if I have one some nights. I can also be like that for days
> after.
> Mine are the GM type that cause the most problem, although I get every other
> type as well.
> They can be different every time.
> Julie
> www.2betrhealth.com
> ----- Original Message -----
> From: Mr. Gilbert
> To: epilepsysupportandeducation@yahoogroups.com
> Sent: Friday, November 28, 2008 1:51 PM
> Subject: [SPAM][Epilepsy Support and Education] seizure? ~ was this one?
>
> Hey, this is my current situation and am posting asking for comments,
> suggestions, thoughts, ideas, or anything else that crosses your mind
> as your read...
>
> I'm currently on keppra and just got my refill today and was handed
> the generic levetiracetam instead cause she said it was just now
> available and is law to hand out a generic first. I'm not set to take
> my next dosage (2x 500mg pills) till tonight. My seizures only seemed
> to happen when I'm trying to wake up though too, unless if I remember
> to take my keppra
>
> I forgot to take my keppra Tuesday night ending up biting my tongue
> from 630-730 and with a headache all day Wednesday. Is this a seizure
> or something else?
>
> ... The first time the doctor told me I had been having seizures was
> when I got up in the morning 0600 and took off to drive my semi. All I
> remember then was getting on the freeway then blacking out... I was at
> the point that time were I thought I was just waking up and was
> expecting to be fully alert soon. I found myself at 0630 in the ditch
> in a pile of mud. The lord saved me on that one only loosing a mudflap
> on the tractor and tale light cover plate. Could I have just fallen
> asleep. 4 days after they say I had another one at home and that the
> EEG confirmed it. so? One of the weird things though is that EEG
> wasn't long and I was still waking up. Anyone know anything about
> biting of the tongue and seizures while waking up...
>
> Thx Gilbert
>
>

Hi
I have seizures in my sleep as well.  When I say sleep that means sleep during
night or day or whenever my ol'
brain feels like having one.
You should ask your neurologist if he thinks that you can handle the generic
meds ok.  Some can and some can't
and there is a difference in them.
The bitting of the tongue or mouth and the migraine after as well as being on
another planet would be the only
way I can tell if I have one some nights.  I can also be like that for days
after.
Mine are the GM type that cause the most problem, although I get every other
type as well.
They can be different every time.
Julie
www.2betrhealth.com
----- Original Message -----
From: Mr. Gilbert
To: epilepsysupportandeducation@yahoogroups.com
Sent: Friday, November 28, 2008 1:51 PM
Subject: [SPAM][Epilepsy Support and Education] seizure? ~ was this one?


Hey, this is my current situation and am posting asking for comments,
suggestions, thoughts, ideas, or anything else that crosses your mind
as your read...

I'm currently on keppra and just got my refill today and was handed
the generic levetiracetam instead cause she said it was just now
available and is law to hand out a generic first. I'm not set to take
my next dosage (2x 500mg pills) till tonight. My seizures only seemed
to happen when I'm trying to wake up though too, unless if I remember
to take my keppra

I forgot to take my keppra Tuesday night ending up biting my tongue
from 630-730 and with a headache all day Wednesday. Is this a seizure
or something else?

... The first time the doctor told me I had been having seizures was
when I got up in the morning 0600 and took off to drive my semi. All I
remember then was getting on the freeway then blacking out... I was at
the point that time were I thought I was just waking up and was
expecting to be fully alert soon. I found myself at 0630 in the ditch
in a pile of mud. The lord saved me on that one only loosing a mudflap
on the tractor and tale light cover plate. Could I have just fallen
asleep. 4 days after they say I had another one at home and that the
EEG confirmed it. so? One of the weird things though is that EEG
wasn't long and I was still waking up. Anyone know anything about
biting of the tongue and seizures while waking up...

Thx Gilbert

Gilbert,

My son sometimes bites his tongue when he has a seizure and has had seizures in
his sleep, he never knows that he has had one and always denies having one as he
doesn't realize what has happened.  If you don't remember what happened it
sounds like you had a seizure.  My son never remembers his, we know he has them
as we witness them.  It is important that you get enough sleep and rember to
take your medication as prescribed.
Sometimes generic brands aren't as potent as well.  I know a doctor once told us
that and used to write on my son's prescription not to give him generic brands.

Hope I helped somewhat.

Darlene




________________________________
From: Mr. Gilbert <goobert@...>
To: epilepsysupportandeducation@yahoogroups.com
Sent: Friday, November 28, 2008 2:51:14 PM
Subject: [Epilepsy Support and Education] seizure? ~ was this one?


Hey, this is my current situation and am posting asking for comments,
suggestions, thoughts, ideas, or anything else that crosses your mind
as your read...

I'm currently on keppra and just got my refill today and was handed
the generic levetiracetam instead cause she said it was just now
available and is law to hand out a generic first. I'm not set to take
my next dosage (2x 500mg pills) till tonight. My seizures only seemed
to happen when I'm trying to wake up though too, unless if I remember
to take my keppra

I forgot to take my keppra Tuesday night ending up biting my tongue
from 630-730 and with a headache all day Wednesday. Is this a seizure
or something else?

... The first time the doctor told me I had been having seizures was
when I got up in the morning 0600 and took off to drive my semi. All I
remember then was getting on the freeway then blacking out... I was at
the point that time were I thought I was just waking up and was
expecting to be fully alert soon. I found myself at 0630 in the ditch
in a pile of mud. The lord saved me on that one only loosing a mudflap
on the tractor and tale light cover plate. Could I have just fallen
asleep. 4 days after they say I had another one at home and that the
EEG confirmed it. so? One of the weird things though is that EEG
wasn't long and I was still waking up. Anyone know anything about
biting of the tongue and seizures while waking up...

Thx Gilbert


[Non-text portions of this message have been removed]

I don't know about seizures while waking up, but I do know that seizures while
sleeping are common.  I've had them myself.  My seizure clusters always start
when I'm asleep (hopefully not anymore).  And about biting your tongue Tuesday,
I think it was definately a seizure (probably tonic clonic).  When I have tonic
clonic seizures, I don't bite my tongue.  I bite my lower lip instead.  I had an
episode like that a couple of weeks ago.  My lower lip was black for days. 
Also, about the Keppra, the same thing happened to me a few days ago.  I called
in my refill for Keppra, and when I picked it up, it was the generic.  I was a
little bit shocked at first.  I had tried to get the generic Keppra months
earlier but was told that it wouldn't be available for years (I guess they
decided to step it up a notch).  Keppra is expensive, even with insurance.  I'm
glad I can get the generic now.  It's exactly the same thing.  I'll keep you in
my thoughts and prayers.  I hope everything
  works out.

   Tristin

"Mr. Gilbert" <goobert@...> wrote:
           Hey, this is my current situation and am posting asking for comments,
suggestions, thoughts, ideas, or anything else that crosses your mind
as your read...

I'm currently on keppra and just got my refill today and was handed
the generic levetiracetam instead cause she said it was just now
available and is law to hand out a generic first. I'm not set to take
my next dosage (2x 500mg pills) till tonight. My seizures only seemed
to happen when I'm trying to wake up though too, unless if I remember
to take my keppra

I forgot to take my keppra Tuesday night ending up biting my tongue
from 630-730 and with a headache all day Wednesday. Is this a seizure
or something else?

... The first time the doctor told me I had been having seizures was
when I got up in the morning 0600 and took off to drive my semi. All I
remember then was getting on the freeway then blacking out... I was at
the point that time were I thought I was just waking up and was
expecting to be fully alert soon. I found myself at 0630 in the ditch
in a pile of mud. The lord saved me on that one only loosing a mudflap
on the tractor and tale light cover plate. Could I have just fallen
asleep. 4 days after they say I had another one at home and that the
EEG confirmed it. so? One of the weird things though is that EEG
wasn't long and I was still waking up. Anyone know anything about
biting of the tongue and seizures while waking up...

Thx Gilbert






[Non-text portions of this message have been removed]

Hey, this is my current situation and am posting asking for comments,
suggestions, thoughts, ideas, or anything else that crosses your mind
as your read...

I'm currently on keppra and just got my refill today and was handed
the generic levetiracetam instead cause she said it was just now
available and is law to hand out a generic first. I'm not set to take
my next dosage (2x 500mg pills) till tonight. My seizures only seemed
to happen when I'm trying to wake up though too, unless if I remember
to take my keppra

I forgot to take my keppra Tuesday night ending up biting my tongue
from 630-730 and with a headache all day Wednesday. Is this a seizure
or something else?

  ... The first time the doctor told me I had been having seizures was
when I got up in the morning 0600 and took off to drive my semi. All I
remember then was getting on the freeway then blacking out... I was at
the point that time were I thought I was just waking up and was
expecting to be fully alert soon. I found myself at 0630 in the ditch
in a pile of mud. The lord saved me on that one only loosing a mudflap
on the tractor and tale light cover plate. Could I have just fallen
asleep. 4 days after they say I had another one at home and that the
EEG confirmed it. so? One of the weird things though is that EEG
wasn't long and I was still waking up. Anyone know anything about
biting of the tongue and seizures while waking up...


Thx Gilbert

I hope you had a nice Thanksgiving, considering your circumstances.   I'm so
sorry to hear of your break, how in heavens name did you do that?   
 
I'm around in and out all day if you get bored and want to chat, (least you get
more time on the computer).
 
Ah Wendy, joking aside,  I really do hope the Dr can help you, and I hope the
pain gets under control soon too, and you can get to sleep normally again.
 
Take care, Sharon

--- On Fri, 11/28/08, wendy k <huronmermaid48@...> wrote:

From: wendy k <huronmermaid48@...>
Subject: [Epilepsy Support and Education] happy thanksgiving
To: epilepsysupportandeducation@yahoogroups.com
Date: Friday, November 28, 2008, 7:22 AM






Happy Thanksgiving to all who celebrate it

I have broken my clavicle

It keeps me awake at nite time and as you know that causes seizures

but lyrica take the edge off the pain and I eventally get to sleep

about 4am

I had xrays and the doctor is looking to send me to an ortho doc

wendy

--- On Mon, 11/24/08, wendy k <huronmermaid48@ yahoo.com> wrote:
From: wendy k <huronmermaid48@ yahoo.com>
Subject: [Epilepsy Support and Education] Dilantin former user
To: epilepsysupportande ducation@ yahoogroups. com
Date: Monday, November 24, 2008, 8:12 PM

I took it for 38 years

I developed severe reactions to other things like shell fish

and other anticonvulsans I was never allergic to anything before

dilantin ruined my gums and teeth and my spine

I am osteopenia maybe osteoporotic by now

38 years is just too long

wendy

--- On Mon, 11/24/08, Maraika <maraika@bigpond. net.au> wrote:

From: Maraika <maraika@bigpond. net.au>

Subject: [Epilepsy Support and Education] Phenytoin (marketed as Dilantin,
Phenytek and generics) and Fosphenytoin Sodium (marketed as Cerebyx and
generics)

To: epilepsysupportande ducation@ yahoogroups. com

Date: Monday, November 24, 2008, 5:47 PM

FDA is investigating new preliminary data regarding a potential increased

risk of serious skin reactions including Stevens Johnson syndrome (SJS) and

toxic epidermal necrolysis (TEN) from phenytoin therapy in Asian patients

positive for a particular human leukocyte antigen (HLA) allele, HLA-B*1502.

This allele occurs almost exclusively in patients with ancestry across broad

areas of Asia, including Han Chinese, Filipinos, Malaysians, South Asian

Indians, and Thais. Because fosphenytoin is a prodrug and is converted to

phenytoin after administration, any concern regarding this association is

also applicable to fosphenytoin. Phenytoin and fosphenytoin are used to

control tonic-clonic (grand mal) and complex-partial seizures in epilepsy.

Other Information

* Phenytoin is marketed under these names:

* Dilantin

* Phenytek

* Fosphenytoin is marketed under these names:

* Cerebyx

http://www.fda. gov/cder/ drug/infopage/ phenytoin_ fosphenytoin/ default.htm

Maraika

If you keep doing what you've always done, you will get what you've always

gotten

[Non-text portions of this message have been removed]















[Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]















[Non-text portions of this message have been removed]

Happy Thanksgiving to all who celebrate it

I have broken my clavicle

It keeps me awake at nite time and as you know that causes seizures

but lyrica take the edge off the pain and I eventally get to sleep

about 4am

I had xrays and the doctor is looking to send me to an ortho doc





wendy

--- On Mon, 11/24/08, wendy k <huronmermaid48@...> wrote:
From: wendy k <huronmermaid48@...>
Subject: [Epilepsy Support and Education] Dilantin former user
To: epilepsysupportandeducation@yahoogroups.com
Date: Monday, November 24, 2008, 8:12 PM











             I took it for 38 years

I developed severe reactions to other things like shell fish

and other anticonvulsans I was never allergic to anything before

dilantin ruined my gums and teeth and my spine

I am osteopenia maybe osteoporotic by now

38 years is just too long



wendy



--- On Mon, 11/24/08, Maraika <maraika@bigpond. net.au> wrote:

From: Maraika <maraika@bigpond. net.au>

Subject: [Epilepsy Support and Education] Phenytoin (marketed as Dilantin,
Phenytek and generics) and Fosphenytoin Sodium (marketed as Cerebyx and
generics)

To: epilepsysupportande ducation@ yahoogroups. com

Date: Monday, November 24, 2008, 5:47 PM



FDA is investigating new preliminary data regarding a potential increased



risk of serious skin reactions including Stevens Johnson syndrome (SJS) and



toxic epidermal necrolysis (TEN) from phenytoin therapy in Asian patients



positive for a particular human leukocyte antigen (HLA) allele, HLA-B*1502.



This allele occurs almost exclusively in patients with ancestry across broad



areas of Asia, including Han Chinese, Filipinos, Malaysians, South Asian



Indians, and Thais. Because fosphenytoin is a prodrug and is converted to



phenytoin after administration, any concern regarding this association is



also applicable to fosphenytoin. Phenytoin and fosphenytoin are used to



control tonic-clonic (grand mal) and complex-partial seizures in epilepsy.



Other Information



* Phenytoin is marketed under these names:



* Dilantin



* Phenytek



* Fosphenytoin is marketed under these names:



* Cerebyx



http://www.fda. gov/cder/ drug/infopage/ phenytoin_ fosphenytoin/ default.htm



Maraika



If you keep doing what you've always done, you will get what you've always



gotten



[Non-text portions of this message have been removed]























[Non-text portions of this message have been removed]





























[Non-text portions of this message have been removed]

Rabecca & Leslie,

     Right now, my 7yo ds Randy is going through changing seizures and
it affects him greatly.  His origingal seizures were diagnosed as
Complex-Parital Seizures starting in his frontal lobes (around his
5th b-day).  Now his latest in-hospital EEG just showed that his
seizures are originating from his temporal lobe.

     His seizures used to be absence seizures or mild tonic-clonic,
but no problems showed immediately problems--unfortunately it later
caused long-term damage with his ability to censor himself, and he
has OCD and ADD tendencies.  Lately I have noticed he's only had
absence seizures with immediately noticeable memory lapses.

     I was worried about my child's test results too, but you just
have to have trust in the doctor.  Ask your child's doctor the
questions about the seizures getting worse and everything else.
Maybe there is a way they can expedite the results.

     So I can't offer you any advice, but I just wanted you to know
that there are others in the same boat as you.

                ---Sange

--- In epilepsysupportandeducation@yahoogroups.com, "Rabecca Whalen"
<rabeccawhalen@...> wrote:
>
> Leslie,
>
>
>
> My daughter (now 10) went through this too (seizures, related
migraines, and
> memory problems). Seizures affect her short term and immediate
memory to the
> point where she is unable to function in class, retain information
from
> days/weeks prior, is unable to concentrate, and was sleeping all
the time!
> The only thing that helped her academically was getting the
seizures under
> control. As long as she was having seizures more than once per
month, she
> was unable to retain what she was learning and it was like she was
starting
> over all over again each day. I do want to give you hope though. My
daughter
> academically increased two grade levels last year once her seizures
were
> under control. She can learn and retain, and she can pay attention.
Though
> it took some time for my daughter to be accurately diagnosed, there
was no
> permanent damage. I am hoping things get even better with her recent
> medication change. ~hugs~ Hang in there!
>
>
>
> Rabecca
>
>
>
> From: epilepsysupportandeducation@yahoogroups.com
> [mailto:epilepsysupportandeducation@yahoogroups.com] On Behalf Of
lg4275
> Sent: Saturday, November 15, 2008 7:29 PM
> To: epilepsysupportandeducation@yahoogroups.com
> Subject: [Epilepsy Support and Education] Seizures changing-sorry
it is long
>
>
>
> My husband and I are at a loss as to what is going on with our 61/2
> year old daughter. I have not written in two months so I will
briefly
> share her history with seizures. She had one week with seizures as a
> toddler that put her in the hospital for a diagnosis. The checked
her
> and found nothing. After a year she was discharged. After I insisted
> something was wrong with our sleepychild when she was 5, I got her
ENT
> to send her for a sleep study and they found she was having
nocturnal
> seizures. She had a 48 hour in home EEG last November that said she
> had complex partial seizures, but we started seeing absence seizures
> soon after her diagnosis. Her EEG has changed since then and this
> past February she was diagnosed with BRE after a sleep deprived EEG
> and in June her EEG looked more like the one from last November. She
> has had increasing issues as the year has gone by and we started
> seeing more and more seizures during the day. Her dosage of lamictal
> also has been increased and she is on 150mg twice a day. She was
> tried on Keppra and Carbazepam (I am not sure I spelled that right)
> when she got sick last February with a rash and the Carbazepam made
> her psychotic and the Keppra gaver her auditory hallucinations that
> she knew were not real.
> When I wrote in September the teacher said that she was having
> difficulty in school following the work in class. The neuro thought
> possibly ADD, but we are now seeing so many seizures that we know
that
> this is the cause not ADD. Last week she was extremely difficult to
> wake up. Then on the way to school she thought I was going a
> different way (we go the same day every day for over a year now). As
> she got out to walk into the school she told me the school looked
> different. I parked the car and went in to ask that she come home. I
> was not sure what was going on, but I was really uncomfortable. I
> took her home and she thought it was night time and that the
election
> had just happened (it was two days later). She knew who she was, and
> had some answers to questions wrong. The neuro had me take her to
the
> ER and she answered some of the nurses questions incorrectly too. By
> the time the ER doc came in she was better and they almost
discharged
> her without doing anything! I called up to the neuro and they did an
> EEG, but she refused to sleep because she was afraid she would not
> wake up because of her trouble in the morning. They discharged her
> saying she was not actively seizing.
> She had another issue Wednesday where she thought everything looked
> funny, I saw her have an absence seizure this time. I then sat with
> her at school and she continued to say things were different. I
> called the neuro and he said to take her home again. She then got a
> massive headache and I gave her tylenol. She was tired, but a while
> later was fine. She is scheduled for an inpatient 48 hour EEG the
> week of thanksgiving and we are concerned that things are going to
get
> worse between now and the three week it is going to take to get the
> results. Any help would be appreciated..
>
> Leslie
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

I took it for 38 years
I developed severe reactions to other things like shell fish
and other anticonvulsans I was never allergic to anything before
dilantin ruined my gums and teeth and my spine
I am osteopenia maybe osteoporotic by now
38 years is just too long

wendy

--- On Mon, 11/24/08, Maraika <maraika@...> wrote:
From: Maraika <maraika@...>
Subject: [Epilepsy Support and Education] Phenytoin (marketed as Dilantin,
Phenytek and generics) and Fosphenytoin Sodium (marketed as Cerebyx and
generics)
To: epilepsysupportandeducation@yahoogroups.com
Date: Monday, November 24, 2008, 5:47 PM











             FDA is investigating new preliminary data regarding a potential
increased

risk of serious skin reactions including Stevens Johnson syndrome (SJS) and

toxic epidermal necrolysis (TEN) from phenytoin therapy in Asian patients

positive for a particular human leukocyte antigen (HLA) allele, HLA-B*1502.

This allele occurs almost exclusively in patients with ancestry across broad

areas of Asia, including Han Chinese, Filipinos, Malaysians, South Asian

Indians, and Thais. Because fosphenytoin is a prodrug and is converted to

phenytoin after administration, any concern regarding this association is

also applicable to fosphenytoin. Phenytoin and fosphenytoin are used to

control tonic-clonic (grand mal) and complex-partial seizures in epilepsy.



Other Information



* Phenytoin is marketed under these names:



* Dilantin

* Phenytek



* Fosphenytoin is marketed under these names:



* Cerebyx



http://www.fda. gov/cder/ drug/infopage/ phenytoin_ fosphenytoin/ default.htm



Maraika



If you keep doing what you've always done, you will get what you've always

gotten



[Non-text portions of this message have been removed]





























[Non-text portions of this message have been removed]

FDA is investigating new preliminary data regarding a potential increased
risk of serious skin reactions including Stevens Johnson syndrome (SJS) and
toxic epidermal necrolysis (TEN) from phenytoin therapy in Asian patients
positive for a particular human leukocyte antigen (HLA) allele, HLA-B*1502.
This allele occurs almost exclusively in patients with ancestry across broad
areas of Asia, including Han Chinese, Filipinos, Malaysians, South Asian
Indians, and Thais. Because fosphenytoin is a prodrug and is converted to
phenytoin after administration, any concern regarding this association is
also applicable to fosphenytoin. Phenytoin and fosphenytoin are used to
control tonic-clonic (grand mal) and complex-partial seizures in epilepsy.



Other Information

* Phenytoin is marketed under these names:

* Dilantin
* Phenytek

* Fosphenytoin is marketed under these names:

* Cerebyx

http://www.fda.gov/cder/drug/infopage/phenytoin_fosphenytoin/default.htm



Maraika

If you keep doing what you've always done, you will get what you've always
gotten





[Non-text portions of this message have been removed]