I got the article below from Wikipedia. From those of you who have kids or if you yourselves have Complex Partial Seizures, is this mainly true? The part...
I cut and pasted the list to share my experiences. The depersonalization part of it is weird but I 'snap out of it back to reality' once the seizure was over....
I have had complex partial seizures and they are weirder than I can explain. I have done all kinds of strange stuff while having one of these seizures. The...
Hi, I have complex partial seizures & yes I have auras/feelings of deja vu. They are AKA "warnings" for on coming seizure like a grand mal or whatever. Its...
I know that my daughter has the "automatisms" i.e. lip smacking, picking at her clothes, etc. Jan I got the article below from Wikipedia. From those of...
Hi, I know my mom said I sometimes have the "automatisms" lip smacking. I know I sometimes get up & try to walk during a seizure(not a grand mal),I guess I...
Be very careful with Topamax. I am on this medication and one of the warnings reads: Decreased sweating and high body temperature have been associated with ...
As I understand it, the type of aura expereinced is linked to the area in the brain where seizure activity occurs. So, people with seizures that locate in the...
I agree. I nearly died from heat stroke a couple of years ago. If you are
on Topapax, be sure to drink plenty of water. It is processed through your...
Hi Emily, I sometimes smack my lips prior to a grand mal seizure, or during a partial
seizure. I'm not sure why some people do this. It is just an automatic...
When I have a grandmal seizure, I also stand up for a little while and stare into outerspace and then collapse into a seizure. When I awake I have no idea...
hi everyone i thought i'd let you all know i went up to ucsf yesterday for my three month appoinment. they are very please i'm having less seizures but i will...
I was wondering if others who are also on drugs for epilepsy, take another drug when seizures occur. I have only nocturnal seizures and when they "repeat", my...
... I ... makes ... usually chechk his level on whatever medicine he's on and it it's not up up to where it needs to be, then they raise his dosage up, but...
Kristine, It is always good to hear good news. Good luck with the battery replacement. YOu are talking abouthte VNS? MY daugher is 7 she is doing that surgery...
himindy i'm in a study it's hard to explain what i have inme it's not called a vns i had that in me before this one and it didn't help much kristine ... From:...
... neurto-sweet or sacrtin sweetners. This is because the doctor told me that it lowers the thresh hold to cause a higher chance to have a seizure. So I drink...
Dear Sandy- Hello there!! I was on Lamictal until just recently. I have lost all but 5-6 of my teeth. I now use full dentures. I developed my Epilepsy at the...
Dear Bonnie- Hello- How are you? I hope your doing well. My name is Bill Berger. I am 40 yrs old. I was born with my heart on the right. I have had 3 open ...
I already had dentures when I was put on Lamictal. I do however seem to have sores in my mouth that were not there before. I would take her to the dentist...
Hi Lisa. Check out Keppra - drugs.com/cons/Keppra.html- and Lamictal drugs.com/cons/lamictal.html or by putting in search engine for side effects . ALL drugs...
One really good thing about dentures and nocturnal seizures - when you take them out at night and seizure had at least there is no more bitting of the tongue...
Hi, I had surgery 4yrs ago (temporal lobectomy for complex partal seizures.)Well they could only do so much cus I was too close to my speech/comprehension. I...
HI Emily, I think all of us that have had surgery are thinking what you are thinking! It was hard to get past recovery for me! It was the only time in my...
Hi Emily Know how at such a young age how you must be feeling. Make sure you ask your doctors lots and lots of questions. What are the chances of it really...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
