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#16677 From: erica kirby <e_kirby326@...>
Date: Sun Dec 20, 2009 7:59 pm
Subject: Re: [Epilepsy Support and Education] migraines or something else?
e_kirby326
Offline Offline
Send Email Send Email
 
Dear Susan,
This sounds like something extremely more serious than just migraines, if your
peds won't look deeper into what could be causing this than I would search for a
pediatric neurologist until some one could make more sense of it. But don't
wait, if it is seizures that are not being treated it could get extremely
dangerous leading to brain damage and possibly coma. Get other doctors into the
situation.
-Erica




________________________________
From: Susan McCloud <mcclouds6@...>
To: epilepsysupportandeducation@yahoogroups.com
Sent: Sat, December 12, 2009 8:40:39 PM
Subject: [Epilepsy Support and Education] migraines or something else?


Got a question was wondering if anyone could answer this.  My daughter
who is 11 now.  Has always has exhibited signs of little seizures ever
since she was little.  Peds told me it was breathe holding spells. My
daughter appear to hold her breath for a moment then clinch her fist,
posture ( arch her back) and toes would ball up and then would cry out
when it was over and would be very sleepy afterwards. 2 1/2 years ago
she was at a grocery store with me just standing there looking at
cereal and and I heard a loud bang and looked over there she was laying
on the floor very still I told her to get up off the dirty floor- I
thought she was playing, there was no movement- I tried to shake her a
little to come too and she did not, she was totally passed out, when
she did come to, she again, clinched her fist, postured, her shoes flew
off so hard- they even went to the next isle- toes were balled up,
ambulance came and we stayed in the hospital all night,
however the
only reason the kept us is because she was throwing up because she hit
her head so hard when she passed out.  They sent us to a Cardiologist
and all test were normal.  Yesterday she started seeing bright lights
around words and people, her feet became numb, and dizzy and later a
headache- took her to the peds and they said quickly she has migraines
and what happened at grocery store was also migraine- now I have
migraines and seizures and what is going on with my daughter does not
sound like migraine- but I am no doctor- does this sound like migraine
to anyone else?

[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

#16676 From: Wendy Anne <ima.da.wendy@...>
Date: Tue Dec 15, 2009 11:44 pm
Subject: Re: [Epilepsy Support and Education] epilepsy neusitis...Julie is this what you were speaking of a year ago to me?
wendyz08
Online Now Online Now
Send Email Send Email
 
*Craig*
*
*
*It sound like you got yourself under control in the best hands there are*
*
*
*I have traveled and that is why I have seen differanct neurologists*
*
*
*the one I see now is always there for me just I have to find a ride *
*
*
*I must of misguided you as I am only on Keppra alone*
*
*
*I use to be on topamax but not anymore*
*
*
*Also being blind in one eye and glacoma suspect in other makes it at times
difficult *
*
*
*So I just keep on going along*
*
*
*I think my seizures are best they can be with some break thrus  triggers
make*
*
*
*that decision *
* *
*
*
*
*
*Wendy*
*
*
*
*
*
*


On Mon, Dec 14, 2009 at 9:19 PM, Craig <headspin54601@...> wrote:

>
>
> I'll tell you what, Wendy; I thought I was going nuts when I was on Keppra.
>
> I went for a year on it. Once I was off of it, my mind cleared right up. I
> think you may be over-medicated to, taking both topamax and keppra. Each of
> them is a first-hand medication that can be taken with a second-hand
> (backup) medication, but usually not with another first-hand medication,
> otherwise you end up with pretty much what you are describing, plus
> dizziness and drowsiness. My Neurologist has always made sure that I stay
> on only one first-hand medication even if I have to take two, or more
> second-hand medications. Also; I have seen only one Neurologist my entire
> life. I started seeing him as a child on the day he began his practice, and
> today he is a big time Neurologist, and I am one of his top patients who
> can
> always get in to see him.
>
>
>      ______________
> Craig Sheffield
> http://groups.yahoo.com/group/The_Bible_and_Life/
> Ephesians 2:8-9
> Epilepsy Support and Education - Moderator
>
> "America needs God more than God needs America. If we ever forget that we
> are One Nation Under God, then we will be a Nation gone under."
>
>
> — President Ronald Reagan, Aug. 23, 1984
> "If you don't read the newspaper you are uninformed; if you do read the
> newspaper you are misinformed." --American author and humorist Mark Twain
> (1835-1910)
> SUPPORT OUR SOLDIERS!! (No matter how you feel about war!)
> -------Original Message-------
>
> From: wendyz08
> Date: 12/14/2009 6:03:12 PM
> To:
epilepsysupportandeducation@yahoogroups.com<epilepsysupportandeducation%40yahoog\
roups.com>
> Subject: [Epilepsy Support and Education] epilepsy neusitis...Julie is this
> what you were speaking of a year ago to me?
>
>
> What is this?
>
> I just got my neuro report along with this is focal epilepsy in the
> left temporal lobe partials seizures that generalize
>
> I have had epielepsy all my life and I have seen lots of neurologists
> I think this is the best one I have been to or maybe it is due to the
> fact of epilepsy being more understood whatever I have finally
> learned what I have and in more depth to my epilepsy
>
> It wont make any differance other then reaching out for the right meds
> with my neurologist help
>
> the topamax got rid of my headache but increased my nitely parital seizures
> that generalize now the keppra has aborbed a lot of these
> partials but not all of them I get dizzy and chest pressure
> because my mind feels like it has to seize and the keppra is preventing
> it..
> is this nuts?
>
> In my report is talks about dizziness
>
> as that has gotten worse throughout the years
>
> wendy
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>


[Non-text portions of this message have been removed]

#16675 From: "c. j. mossman" <email2mossman@...>
Date: Tue Dec 15, 2009 9:34 pm
Subject: REQUEST
email2mossman
Offline Offline
Send Email Send Email
 
Hello Marina,
                   Many times in the past I have had either my left cheek or eye
twitching for up to 30 minutes, but i never related it to some kind of seizure i
just thought it was either some form of side effect of the medication i was
taking at the time or some form of stress related reaction.
The reason i never classed it as a seizure was simply because i never lost
consciousness i was always fully aware of what was happening to me unlike a
seizure were i would never be able to remember what had happened and also feel
very tired after wards.

Colin

#16674 From: marina tenca <halua8@...>
Date: Tue Dec 15, 2009 3:51 pm
Subject: REQUEST FOR HELP
halua8
Offline Offline
Send Email Send Email
 
Dear All,
I kindly would like to know if any one of you has experienced the following: my
seizures have sort of changed....i do not fall but have muscular twitches of the
face, which last from 10 to 40 minutes.
Thanks a lot.
Marina




[Non-text portions of this message have been removed]

#16673 From: marina tenca <halua8@...>
Date: Tue Dec 15, 2009 3:37 pm
Subject: CHANGE TYPE OF SEIZURE
halua8
Offline Offline
Send Email Send Email
 
Hello everyone just wanted to wish you all a happy xmas and a seizure free
year.........
take care and God Bless You

Marina Parigiani
Rome, Italy




[Non-text portions of this message have been removed]

#16672 From: "plaidyfan" <ilovbks@...>
Date: Tue Dec 15, 2009 4:14 pm
Subject: Re: anybody
plaidyfan
Offline Offline
Send Email Send Email
 
I'm very sorry about your husband.

I don't understand how losing weight can actually decrease seizures, especially
if you weren't "big" to begin with. My daughter, age 14, was very thin (too
thin) while she was on a certain medication (the name of it slips my mind right
now).  She started having more frequent seizures but this was probably due to
hormones and puberty, etc. but being underweight didn't help her overall health.
After switching to a different medication, she started eating more, gaining
weight, and getting some color in her face.  She's actually doing better as far
as seizures go although I'm not sure if this is due to the different meds or to
her body just sort of stabilizing, if that makes sense.

You also wonder if you have fewer seizures because you want to hold everything
together for your family.  I always believed that stress may make seizures occur
more often, but who knows?  We certainly don't understand everything about the
human mind, or spirit.  Hopefully, someone else here can help you with your
questions.

Carol

--- In epilepsysupportandeducation@yahoogroups.com, "sunshine66053"
<sunshine66053@...> wrote:
>
> dr said small is good for seizures ppl u have less of seizures
  or is did i stop having seizures do to my hubby dieing on me so i can keep my
kids together and do everything rick did??//
>

#16671 From: "Craig" <headspin54601@...>
Date: Tue Dec 15, 2009 2:19 am
Subject: Re: [Epilepsy Support and Education] epilepsy neusitis...Julie is this what you were speaking of a year ago to me?
headspin54601
Online Now Online Now
Send Email Send Email
 
I'll tell you what, Wendy; I thought I was going nuts when I was on Keppra.
I went for a year on it.  Once I was off of it, my mind cleared right up.  I
think you may be over-medicated to, taking both topamax and keppra.  Each of
them is a first-hand medication that can be taken with a second-hand
(backup) medication, but usually not with another first-hand medication,
otherwise you end up with pretty much what you are describing, plus
dizziness and drowsiness.  My Neurologist has always made sure that I stay
on only one first-hand medication even if I have to take two, or more
second-hand medications.  Also; I have seen only one Neurologist my entire
life.  I started seeing him as a child on the day he began his practice, and
today he is a big time Neurologist, and I am one of his top patients who can
always get in to see him.


     ______________
Craig Sheffield
http://groups.yahoo.com/group/The_Bible_and_Life/
Ephesians 2:8-9
Epilepsy Support and Education - Moderator

"America needs God more than God needs America. If we ever forget that we
are One Nation Under God, then we will be a Nation gone under."


— President Ronald Reagan, Aug. 23, 1984
"If you don't read the newspaper you are uninformed; if you do read the
newspaper you are misinformed." --American author and humorist Mark Twain
(1835-1910)
SUPPORT OUR SOLDIERS!! (No matter how you feel about war!)
-------Original Message-------

From: wendyz08
Date: 12/14/2009 6:03:12 PM
To: epilepsysupportandeducation@yahoogroups.com
Subject: [Epilepsy Support and Education] epilepsy neusitis...Julie is this
what you were speaking of a year ago to me?


What is this?

I just got my neuro report along with this is focal epilepsy in the
left temporal lobe partials seizures that generalize

I have had epielepsy all my life and I have seen lots of neurologists
I think this is the best one I have been to or maybe it is due to the
fact of epilepsy being more understood whatever I have finally
learned what I have and in more depth to my epilepsy

It wont make any differance other then reaching out for the right meds
with my neurologist help

the topamax got rid of my headache but increased my nitely parital seizures
that generalize now the keppra has aborbed a lot of these
partials but not all of them I get dizzy and chest pressure
because my mind feels like it has to seize and the keppra is preventing it..
is this nuts?

In my report is talks about dizziness

as that has gotten worse throughout the years

wendy





[Non-text portions of this message have been removed]

#16670 From: Wendy Anne <ima.da.wendy@...>
Date: Tue Dec 15, 2009 1:26 am
Subject: Re: [Epilepsy Support and Education] epilepsy neusitis...Julie is this what you were speaking of a year ago to me?
wendyz08
Online Now Online Now
Send Email Send Email
 
epilepsia neustitis? has anyone heard of this before?

On Mon, Dec 14, 2009 at 6:08 PM, wendyz08 <ima.da.wendy@...> wrote:

>
>
> What is this?
>
> I just got my neuro report along with this is focal epilepsy in the
> left temporal lobe partials seizures that generalize
>
> I have had epielepsy all my life and I have seen lots of neurologists
> I think this is the best one I have been to or maybe it is due to the
> fact of epilepsy being more understood whatever I have finally
> learned what I have and in more depth to my epilepsy
>
> It wont make any differance other then reaching out for the right meds
> with my neurologist help
>
> the topamax got rid of my headache but increased my nitely parital seizures
> that generalize now the keppra has aborbed a lot of these
> partials but not all of them I get dizzy and chest pressure
> because my mind feels like it has to seize and the keppra is preventing
> it...is this nuts?
>
> In my report is talks about dizziness
>
> as that has gotten worse throughout the years
>
> wendy
>
>
>


[Non-text portions of this message have been removed]

#16669 From: "sunshine66053" <sunshine66053@...>
Date: Tue Dec 15, 2009 12:02 am
Subject: anybody
sunshine66053
Offline Offline
Send Email Send Email
 
I saw my seizure dr today i learn something i have lost weight i was never big
140 and drop to 113 do to bad news on my hubby and the dr said small is good for
seizures ppl u have less of seizures doesnt mean u stop eating, but is that why
i only had two seizures this years every have over a 100 in one year in 2008? or
is did i stop having seizures do to my hubby dieing on me so i can keep my kids
together and do everything rick did??//

#16668 From: "wendyz08" <ima.da.wendy@...>
Date: Mon Dec 14, 2009 11:08 pm
Subject: epilepsy neusitis...Julie is this what you were speaking of a year ago to me?
wendyz08
Online Now Online Now
Send Email Send Email
 
What is this?

I just got my neuro report along with this is focal epilepsy in the
left temporal lobe  partials seizures that generalize

I have had epielepsy all my life and I have seen lots of neurologists
I think this is the best one I have been to or maybe it is due to the
fact of epilepsy being more understood whatever I have finally
learned what I have and in more depth to my epilepsy

It wont make any differance other then reaching out for the right meds
with my neurologist help

the topamax got rid of my headache but increased my nitely parital seizures that
generalize   now the keppra has aborbed a lot of these
partials but not all of them   I get dizzy and chest pressure
because my mind feels like it has to seize and the keppra is preventing it...is
this nuts?

In my report is talks about dizziness

as that has gotten worse throughout the years

wendy

#16667 From: "Craig" <headspin54601@...>
Date: Sun Dec 13, 2009 3:02 pm
Subject: Re: [Epilepsy Support and Education] unnecessary seizures
headspin54601
Online Now Online Now
Send Email Send Email
 
My advice would be to find a Neurologist for your daughter.  Yes, these are
signs of migraines, but if these doctors are stopping at that and doing no
further testing, then they are not doing their jobs.  Your daughter could
very well be having seizure activity.

-------Original Message-------

From: Susan McCloud
Date: 12/12/2009 9:08:13 AM
To: epilepsysupportandeducation@yahoogroups.com
Subject: Re: [Epilepsy Support and Education] unnecessary seizures


Got a question was wondering if anyone could answer this.  My daughter who
is 11 now.  Has always has exhibited signs of little seizures ever since she
was little.  Peds told me it was breathe holding spells. My daughter appear
to hold her breath for a moment then clinch her fist, posture ( arch her
back) and toes would ball up and then would cry out when it was over and
would be very sleepy afterwards. 2 1/2 years ago she was at a grocery store
with me just standing there looking at cereal and and I heard a loud bang
and looked over there she was laying on the floor very still I told her to
get up off the dirty floor- I thought she was playing, there was no
movement- I tried to shake her a little to come too and she did not, she was
totally passed out, when she did come to, she again, clinched her fist,
postured, her shoes flew off so hard- they even went to the next isle- toes
were balled up, ambulance came and we stayed in the hospital all night,
however the only reason the kept us is because she was throwing up because
she hit her head so hard when she passed out.  They sent us to a
Cardiologist and all test were normal.  Yesterday she started seeing bright
lights around words and people, her feet became numb, and dizzy and later a
headache- took her to the peds and they said quickly she has migraines and
what happened at grocery store was also migraine- now I have migraines and
seizures and what is going on with my daughter does not sound like migraine-
but I am no doctor- does this sound like migraine to anyone else?

--- On Mon, 12/7/09, mfroof@... <mfroof@...> wrote:

From: mfroof@... <mfroof@...>
Subject: [Epilepsy Support and Education] unnecessary seizures
To: epilepsychat@yahoogroups.com, epilepsysupportandeducation@yahoogroups
com
Date: Monday, December 7, 2009, 9:08 PM



This was from Medscape today:

From _Medscape Medical News_ (http://www.medscape .com/news)

Epilepsy Patients Having Unnecessary Seizures

Allison Gandey

December 4, 2009 (Boston, Massachusetts) — Complete freedom from seizures

is not possible for everyone, but specialists presenting here at the

American Epilepsy Society 63rd Annual Scientific Conference say that goal is
more

realistic than most people think.

"We are very fortunate to have many new diagnostic tests and treatments,"

Steven Schachter, MD, president of the epilepsy society, told reporters

attending a media briefing today. "But a consequence of all this progress
has

been a widening of the treatment gap between what is currently being done

and what is possible."

Significant advances in epilepsy have taken place during the last 15 years,

but despite these developments, Dr. Schachter said, "prescribing practices

have remained pretty much unchanged."

The result: uncontrolled epilepsy diminishing quality of life and

increasing the risk of disability and death.

An estimated 45% of people with epilepsy in the United States continue to

have seizures despite treatment, report the Centers for Disease Control and

Prevention. The numbers internationally are even more staggering —

three-quarters of the global population with epilepsy receives no treatment

whatsoever, says the World Health Organization.

"Progress has been so rapid, it has been hard for physicians to keep up,"

Edward Hogan, MD, from Washington University in St. Louis, Missouri, said at


the briefing.

Eric Hargis, MD, president and chief executive officer of the Epilepsy

Foundation, added that communication problems can also factor in. "People
are

often not forthcoming about providing information on how their seizures are

affecting their lives," he said. "Physicians need to ask."

Dr. Hargis pointed out that patients may say their epilepsy is fine and yet

they are still having seizures. "This may mean they are not driving and

their work and personal relationships could be affected."

Eliminate Seizures

Dr. Hargis said that people often assume that this is what it is like to

have epilepsy and they settle. He suggests that clinicians and patients need


to raise their expectations and work to eliminate seizures.

Dr. Hargis noted that patients with epilepsy face other hurdles as well. He

says that most will experience adverse events from treatment — and many of

these effects will be debilitating. "In some cases," Dr. Hargis said,

"drug toxicity and mood disorders will affect quality of life even more than


the frequency or severity of seizures." These issues must be addressed, he

emphasized.

Drug toxicity and mood disorders will affect quality of life even more

than the frequency or severity of seizures.

Variations in defining refractory epilepsy have not helped matters, added

Patrick Kwan, MD, from the Chinese University of Hong Kong. Dr. Kwan is

taskforce chair of the International League Against Epilepsy commission,
which

will be presenting the first-ever global consensus definition of refractory

epilepsy Tuesday.

"We believe its adoption into clinical practice can have a significant

impact in improving patient care by providing clinicians a framework to

recognize and promptly refer patients fulfilling the definition to
specialist

centers."

The new definition will be presented during a special symposium at the

meeting and will be reported by Medscape Neurology.

The presenters have disclosed no relevant financial relationships.

American Epilepsy Society (AES) 63rd Annual Scientific Conference: Media

briefing. Presented December 4, 2009.

Authors and Disclosures

Journalist

Allison Gandey

Allison Gandey is a journalist for Medscape. She is the former science

affairs analyst for the Canadian Medical Association Journal. Allison, who
has

a master of journalism specializing in science from Carleton University,

has edited a variety of medical association publications and has worked in

radio and television. She can be contacted at agandey@webmd. net.

Medscape Medical News © 2009 Medscape, LLC

Send press releases and comments to _news@medscape. net_

(mailto:news@medscape. net) .

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]

#16666 From: "Kelley" <hailtawanda@...>
Date: Sun Dec 13, 2009 11:41 am
Subject: Re: migraines or something else?
hailtawanda
Offline Offline
Send Email Send Email
 
Susan, I'm no doctor either, but I'm the mom of an eight year old Leukemia
survivor who now has Epilepsy.  I've learned that my gut instincts are normally
good, and that sometimes I have to advocate for my child in order to get him the
best medical help.

Here's my opinion, for what it's worth. Take your daughter to a pediatric
neurologist.

Kelley

--- In epilepsysupportandeducation@yahoogroups.com, Susan McCloud
<mcclouds6@...> wrote:
>
> Got a question was wondering if anyone could answer this.  My daughter
> who is 11 now.  Has always has exhibited signs of little seizures ever
> since she was little.  Peds told me it was breathe holding spells. My
> daughter appear to hold her breath for a moment then clinch her fist,
> posture ( arch her back) and toes would ball up and then would cry out
> when it was over and would be very sleepy afterwards. 2 1/2 years ago
> she was at a grocery store with me just standing there looking at
> cereal and and I heard a loud bang and looked over there she was laying
> on the floor very still I told her to get up off the dirty floor- I
> thought she was playing, there was no movement- I tried to shake her a
> little to come too and she did not, she was totally passed out, when
> she did come to, she again, clinched her fist, postured, her shoes flew
> off so hard- they even went to the next isle- toes were balled up,
> ambulance came and we stayed in the hospital all night,
>  however the
> only reason the kept us is because she was throwing up because she hit
> her head so hard when she passed out.  They sent us to a Cardiologist
> and all test were normal.  Yesterday she started seeing bright lights
> around words and people, her feet became numb, and dizzy and later a
> headache- took her to the peds and they said quickly she has migraines
> and what happened at grocery store was also migraine- now I have
> migraines and seizures and what is going on with my daughter does not
> sound like migraine- but I am no doctor- does this sound like migraine
> to anyone else?
>

#16665 From: Tristin Seagraves <tristinspike26@...>
Date: Sun Dec 13, 2009 2:03 pm
Subject: Re: [Epilepsy Support and Education] migraines or something else?
tristinspike26
Offline Offline
Send Email Send Email
 
I'm no neurologist Susan, but what you're saying sounds like seizures to me. 
What kind?  I'm not sure.  She may be suffering from migraines after her
spells.  Make an appointment for her with a neurologist. 
 
Tristin :)

--- On Sat, 12/12/09, Susan McCloud <mcclouds6@...> wrote:


From: Susan McCloud <mcclouds6@...>
Subject: [Epilepsy Support and Education] migraines or something else?
To: epilepsysupportandeducation@yahoogroups.com
Date: Saturday, December 12, 2009, 8:40 PM


 



Got a question was wondering if anyone could answer this.  My daughter
who is 11 now.  Has always has exhibited signs of little seizures ever
since she was little.  Peds told me it was breathe holding spells. My
daughter appear to hold her breath for a moment then clinch her fist,
posture ( arch her back) and toes would ball up and then would cry out
when it was over and would be very sleepy afterwards. 2 1/2 years ago
she was at a grocery store with me just standing there looking at
cereal and and I heard a loud bang and looked over there she was laying
on the floor very still I told her to get up off the dirty floor- I
thought she was playing, there was no movement- I tried to shake her a
little to come too and she did not, she was totally passed out, when
she did come to, she again, clinched her fist, postured, her shoes flew
off so hard- they even went to the next isle- toes were balled up,
ambulance came and we stayed in the hospital all night,
however the
only reason the kept us is because she was throwing up because she hit
her head so hard when she passed out.  They sent us to a Cardiologist
and all test were normal.  Yesterday she started seeing bright lights
around words and people, her feet became numb, and dizzy and later a
headache- took her to the peds and they said quickly she has migraines
and what happened at grocery store was also migraine- now I have
migraines and seizures and what is going on with my daughter does not
sound like migraine- but I am no doctor- does this sound like migraine
to anyone else?

[Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]

#16664 From: Susan McCloud <mcclouds6@...>
Date: Sun Dec 13, 2009 1:40 am
Subject: migraines or something else?
mcclouds6
Offline Offline
Send Email Send Email
 
Got a question was wondering if anyone could answer this.  My daughter
who is 11 now.  Has always has exhibited signs of little seizures ever
since she was little.  Peds told me it was breathe holding spells. My
daughter appear to hold her breath for a moment then clinch her fist,
posture ( arch her back) and toes would ball up and then would cry out
when it was over and would be very sleepy afterwards. 2 1/2 years ago
she was at a grocery store with me just standing there looking at
cereal and and I heard a loud bang and looked over there she was laying
on the floor very still I told her to get up off the dirty floor- I
thought she was playing, there was no movement- I tried to shake her a
little to come too and she did not, she was totally passed out, when
she did come to, she again, clinched her fist, postured, her shoes flew
off so hard- they even went to the next isle- toes were balled up,
ambulance came and we stayed in the hospital all night,
  however the
only reason the kept us is because she was throwing up because she hit
her head so hard when she passed out.  They sent us to a Cardiologist
and all test were normal.  Yesterday she started seeing bright lights
around words and people, her feet became numb, and dizzy and later a
headache- took her to the peds and they said quickly she has migraines
and what happened at grocery store was also migraine- now I have
migraines and seizures and what is going on with my daughter does not
sound like migraine- but I am no doctor- does this sound like migraine
to anyone else?




[Non-text portions of this message have been removed]

#16663 From: Susan McCloud <mcclouds6@...>
Date: Sat Dec 12, 2009 2:33 pm
Subject: Re: [Epilepsy Support and Education] unnecessary seizures
mcclouds6
Offline Offline
Send Email Send Email
 
Got a question was wondering if anyone could answer this.  My daughter who is
11 now.  Has always has exhibited signs of little seizures ever since she was
little.  Peds told me it was breathe holding spells. My daughter appear to hold
her breath for a moment then clinch her fist, posture ( arch her back) and toes
would ball up and then would cry out when it was over and would be very sleepy
afterwards. 2 1/2 years ago she was at a grocery store with me just standing
there looking at cereal and and I heard a loud bang and looked over there she
was laying on the floor very still I told her to get up off the dirty floor- I
thought she was playing, there was no movement- I tried to shake her a little to
come too and she did not, she was totally passed out, when she did come to, she
again, clinched her fist, postured, her shoes flew off so hard- they even went
to the next isle- toes were balled up, ambulance came and we stayed in the
hospital all night,
  however the only reason the kept us is because she was throwing up because she
hit her head so hard when she passed out.  They sent us to a Cardiologist and
all test were normal.  Yesterday she started seeing bright lights around words
and people, her feet became numb, and dizzy and later a headache- took her to
the peds and they said quickly she has migraines and what happened at grocery
store was also migraine- now I have migraines and seizures and what is going on
with my daughter does not sound like migraine- but I am no doctor- does this
sound like migraine to anyone else?

--- On Mon, 12/7/09, mfroof@... <mfroof@...> wrote:

From: mfroof@... <mfroof@...>
Subject: [Epilepsy Support and Education] unnecessary seizures
To: epilepsychat@yahoogroups.com, epilepsysupportandeducation@yahoogroups.com
Date: Monday, December 7, 2009, 9:08 PM







 









       This was from  Medscape today:









From _Medscape  Medical News_ (http://www.medscape .com/news)

Epilepsy Patients Having Unnecessary Seizures

Allison Gandey



December 4, 2009 (Boston, Massachusetts) — Complete freedom from seizures

is  not possible for everyone, but specialists presenting here at the

American  Epilepsy Society 63rd Annual Scientific Conference say that goal is
more

realistic than most people think.

"We are very fortunate to have many new diagnostic tests and treatments,"

Steven Schachter, MD, president of the epilepsy society, told reporters

attending a media briefing today. "But a consequence of all this progress has

been a widening of the treatment gap between what is currently being done

and  what is possible."

Significant advances in epilepsy have taken place during the last 15 years,

  but despite these developments, Dr. Schachter said, "prescribing practices

have  remained pretty much unchanged."

The result: uncontrolled epilepsy diminishing quality of life and

increasing  the risk of disability and death.

An estimated 45% of people with epilepsy in the United States continue to

have seizures despite treatment, report the Centers for Disease Control and

Prevention. The numbers internationally are even more staggering —

three-quarters of the global population with epilepsy receives no treatment

whatsoever, says the World Health Organization.

"Progress has been so rapid, it has been hard for physicians to keep up,"

Edward Hogan, MD, from Washington University in St. Louis, Missouri, said at

the  briefing.

Eric Hargis, MD, president and chief executive officer of the Epilepsy

Foundation, added that communication problems can also factor in. "People are

often not forthcoming about providing information on how their seizures are

affecting their lives," he said. "Physicians need to ask."

Dr. Hargis pointed out that patients may say their epilepsy is fine and yet

  they are still having seizures. "This may mean they are not driving and

their  work and personal relationships could be affected."

Eliminate Seizures

Dr. Hargis said that people often assume that this is what it is like to

have  epilepsy and they settle. He suggests that clinicians and patients need

to raise  their expectations and work to eliminate seizures.

Dr. Hargis noted that patients with epilepsy face other hurdles as well. He

  says that most will experience adverse events from treatment — and many of

these  effects will be debilitating. "In some cases," Dr. Hargis said,

"drug toxicity  and mood disorders will affect quality of life even more than

the frequency or  severity of seizures." These issues must be addressed, he

emphasized.

Drug toxicity and mood  disorders will affect quality of life even more

than the frequency or severity  of seizures.

Variations in defining refractory epilepsy have not helped matters, added

Patrick Kwan, MD, from the Chinese University of Hong Kong. Dr. Kwan is

taskforce chair of the International League Against Epilepsy commission, which

will be presenting the first-ever global consensus definition of refractory

  epilepsy Tuesday.

"We believe its adoption into clinical practice can have a significant

impact  in improving patient care by providing clinicians a framework to

recognize and  promptly refer patients fulfilling the definition to specialist

centers."

The new definition will be presented during a special symposium at the

meeting and will be reported by Medscape Neurology.

The presenters have disclosed no relevant financial relationships.

American Epilepsy Society (AES) 63rd Annual Scientific Conference: Media

briefing. Presented December 4, 2009.





Authors and Disclosures

Journalist

Allison Gandey

Allison Gandey is a journalist for Medscape. She is the former science

affairs analyst for the Canadian Medical Association Journal. Allison, who has

a  master of journalism specializing in science from Carleton University,

has  edited a variety of medical association publications and has worked in

radio and  television. She can be contacted at  agandey@webmd. net.



Medscape Medical News © 2009 Medscape, LLC

Send press  releases and comments to _news@medscape. net_

(mailto:news@medscape. net) .





[Non-text portions of this message have been removed]

























[Non-text portions of this message have been removed]

#16662 From: "eCard from BlueMountain.com" <rhondadbe@...>
Date: Sat Dec 12, 2009 5:24 am
Subject: Rhonda has sent you an eCard
rhondadbe
Online Now Online Now
Send Email Send Email
 
Rhonda (rhondadbe@...) has sent you an eCard.

To view your eCard, choose from the options below.

Click on the following link:
http://www.bluemountain.com/view.pd?i=220644773&m=7153&rr=y&source=bma999


For your security, if you'd prefer not to click on links within this email:
   1.  Type http://www.bluemountain.com/?source=bma999&rr=y into your web browser
   2.  Locate the eCard pickup button in the upper left-hand area of the page
   3.  Enter the following code --> 2206447737153


Please do not reply to this email.  To help resolve your issue or question, go
to:
http://www.bluemountain.com/help/index.pd
We have an extensive help center that may answer your questions, or you can
choose to email us from there.

To read about email protection, type http://www.bluemountain.com/emailprotection
into your web browser.


Thank you!
Your friends at BlueMountain.com

[Non-text portions of this message have been removed]

#16661 From: Ashley Joffrion Withers <charmedbrown_eyes@...>
Date: Thu Dec 10, 2009 3:55 am
Subject: Re: make your on video for ep/brain disorder...
charmedbrown...
Offline Offline
Send Email Send Email
 
my husband was reading it out loud when i was typing -  it's stated like this:
win up to $1,500 in prizes.  He's a little "out the box" tonight, lol :)


Ashley

--- On Wed, 12/9/09, Ashley Joffrion Withers <charmedbrown_eyes@...>
wrote:


From: Ashley Joffrion Withers <charmedbrown_eyes@...>
Subject: make your on video for ep/brain disorder...
To: "ep. approach" <epilepsyapproach@yahoogroups.com>, "ep. approach1"
<epilepsyapproach1@yahoogroups.com>, "epilepsy group"
<epilepsysupportandeducation@yahoogroups.com>, "epilepsy group"
<epilepsy@yahoogroups.com>
Date: Wednesday, December 9, 2009, 9:45 PM







This is really a great idea/contest that is being done.  You can make a short
video about brain disorder/epilepsy & there is a prize for $1500.
here's the page
 
http://www.thebrainmatters.org/go/about/neurofilmfestival
 
 
If you get the Neurology Now magazine you will see the post there.
 


 
Ashley





[Non-text portions of this message have been removed]

#16660 From: "Adriana Rozo" <parallelworld@...>
Date: Thu Dec 10, 2009 4:07 pm
Subject: RE: [Epilepsy Support and Education] unnecessary seizures
parallelworld@...
Send Email Send Email
 
My Dr. send the prescription as I'm pregnant as better, but
unfortunately the insurance didn't want to cover it. Do you know why
peter? Do you think this has to so with all the insurances or just with
mine that is blue cross blue shield? Maybe you know something...

Ok, Peter you taker and have a HAPPY HOLYDAY'S!

Best

Nina
-----Original Message-----
From: epilepsysupportandeducation@yahoogroups.com
[mailto:epilepsysupportandeducation@yahoogroups.com] On Behalf Of Peter
Sent: Monday, December 07, 2009 9:20 PM
To: epilepsysupportandeducation@yahoogroups.com
Subject: Re: [Epilepsy Support and Education] unnecessary seizures

Anyone beyond Keppra going generic and Keppra XR coming out know any new
advances in treatment. Nice article but I want the meat. :)


On Mon, Dec 7, 2009 at 8:08 PM, <mfroof@...> wrote:

>
>
> This was from Medscape today:
>
>
>
>
> From _Medscape Medical News_ (http://www.medscape.com/news)
> Epilepsy Patients Having Unnecessary Seizures
> Allison Gandey
>
> December 4, 2009 (Boston, Massachusetts) - Complete freedom from
seizures
> is not possible for everyone, but specialists presenting here at the
> American Epilepsy Society 63rd Annual Scientific Conference say that
goal
> is more
> realistic than most people think.
> "We are very fortunate to have many new diagnostic tests and
treatments,"
> Steven Schachter, MD, president of the epilepsy society, told
reporters
> attending a media briefing today. "But a consequence of all this
progress
> has
> been a widening of the treatment gap between what is currently being
done
> and what is possible."
> Significant advances in epilepsy have taken place during the last 15
years,
>
> but despite these developments, Dr. Schachter said, "prescribing
practices
> have remained pretty much unchanged."
> The result: uncontrolled epilepsy diminishing quality of life and
> increasing the risk of disability and death.
> An estimated 45% of people with epilepsy in the United States continue
to
> have seizures despite treatment, report the Centers for Disease
Control and
>
> Prevention. The numbers internationally are even more staggering -
> three-quarters of the global population with epilepsy receives no
treatment
>
> whatsoever, says the World Health Organization.
> "Progress has been so rapid, it has been hard for physicians to keep
up,"
> Edward Hogan, MD, from Washington University in St. Louis, Missouri,
said
> at
> the briefing.
> Eric Hargis, MD, president and chief executive officer of the Epilepsy
> Foundation, added that communication problems can also factor in.
"People
> are
> often not forthcoming about providing information on how their
seizures are
>
> affecting their lives," he said. "Physicians need to ask."
> Dr. Hargis pointed out that patients may say their epilepsy is fine
and yet
>
> they are still having seizures. "This may mean they are not driving
and
> their work and personal relationships could be affected."
> Eliminate Seizures
> Dr. Hargis said that people often assume that this is what it is like
to
> have epilepsy and they settle. He suggests that clinicians and
patients
> need
> to raise their expectations and work to eliminate seizures.
> Dr. Hargis noted that patients with epilepsy face other hurdles as
well. He
>
> says that most will experience adverse events from treatment - and
many of
> these effects will be debilitating. "In some cases," Dr. Hargis said,
> "drug toxicity and mood disorders will affect quality of life even
more
> than
> the frequency or severity of seizures." These issues must be
addressed, he
> emphasized.
> Drug toxicity and mood disorders will affect quality of life even more
> than the frequency or severity of seizures.
> Variations in defining refractory epilepsy have not helped matters,
added
> Patrick Kwan, MD, from the Chinese University of Hong Kong. Dr. Kwan
is
> taskforce chair of the International League Against Epilepsy
commission,
> which
> will be presenting the first-ever global consensus definition of
refractory
>
> epilepsy Tuesday.
> "We believe its adoption into clinical practice can have a significant
> impact in improving patient care by providing clinicians a framework
to
> recognize and promptly refer patients fulfilling the definition to
> specialist
> centers."
> The new definition will be presented during a special symposium at the
> meeting and will be reported by Medscape Neurology.
> The presenters have disclosed no relevant financial relationships.
> American Epilepsy Society (AES) 63rd Annual Scientific Conference:
Media
> briefing. Presented December 4, 2009.
>
>
> Authors and Disclosures
> Journalist
> Allison Gandey
> Allison Gandey is a journalist for Medscape. She is the former science
> affairs analyst for the Canadian Medical Association Journal. Allison,
who
> has
> a master of journalism specializing in science from Carleton
University,
> has edited a variety of medical association publications and has
worked in
> radio and television. She can be contacted at
agandey@...<agandey%40webmd.net>
> .
>
> Medscape Medical News C 2009 Medscape, LLC
> Send press releases and comments to
_news@...<_news%40medscape.net>_
>
> (mailto:news@... <news%40medscape.net>) .
>
>
> [Non-text portions of this message have been removed]
>
>
>


[Non-text portions of this message have been removed]



------------------------------------

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NOTE:
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Yahoo! Groups Links

#16659 From: Wendy Anne <ima.da.wendy@...>
Date: Thu Dec 10, 2009 5:47 am
Subject: Re: [Epilepsy Support and Education] Re: Coughing after VNS operation?
wendyz08
Online Now Online Now
Send Email Send Email
 
*1 Humidifier to get moisture in throat by staying in  bedrooom with door
half shut*
*    and with humdifier on.....cool water
*
*2 drink lots and lots of fluids to help loosen up stuff in throat*
*3 dont be embarrassed spit it out in klenex   get him 2 or 3 boxes of
klenex and a bag or       lined trash can*
*4 Robitusssan DM expectorant to loosen up stuff in throat so you can spit
it up*
*5 keep others away and wash hands with soap and warm water*
*6 get santizter for bedroom for easy access*
*7 anyone with epilepsy needs to stay away from alchohol based over the
counter  because it absorbs the seizure med  causing someone with epilepsy
to seize*
*8 keep door knobs clean*
*
*
*me and my kids have been sick *



On Wed, Dec 9, 2009 at 9:28 PM, Nagitar <nagitar35_1969yort@...>wrote:

>
>
> I just got over the exact same thing last week. What started out as a
> simple cough turned into over a week of non stop coughing. Nothing over the
> counter I took would get rid of the cough. I had no runny nose, temperature,
> or any other feverish signs. The only major problem I had was that the
> Nyquil I took reacted very oddly with my medication. It subsided the day of
> my doctor's appt. He told me it was a virus and that many people have been
> seeing him for the exact same thing. His advice was to take an expectorant
> to loosen the mucus and ride it out. When all was said and done I was fine
> but I had a seizure. I think the sleep disturbances for that long just
> affected me very oddly.
>
> Troy
>
>
> --- In
epilepsysupportandeducation@yahoogroups.com<epilepsysupportandeducation%40yahoog\
roups.com>,
> Harold <harold739@...> wrote:
> >
> > A young lady wrote me:  Now I can not stop coughing it's like I have
> these fits of coughing. It started out  I first had to just clear my throat.
> Now I have these fits of coughing then it subsides for a little while then
> it starts again.!
> > Has this happen to anyone in our groups? Thank You in Advance and God
> Bless, Harold
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>


[Non-text portions of this message have been removed]

#16658 From: "Nagitar" <nagitar35_1969yort@...>
Date: Thu Dec 10, 2009 2:28 am
Subject: Re: Coughing after VNS operation?
nagitar35_19...
Offline Offline
Send Email Send Email
 
I just got over the exact same thing last week. What started out as a simple
cough turned into over a week of non stop coughing. Nothing over the counter I
took would get rid of the cough. I had no runny nose, temperature, or any other
feverish signs. The only major problem I had was that the Nyquil I took reacted
very oddly with my medication. It subsided the day of my doctor's appt. He told
me it was a virus and that many people have been seeing him for the exact same
thing. His advice was to take an expectorant to loosen the mucus and ride it
out. When all was said and done I was fine but I had a seizure. I think the
sleep disturbances for that long just affected me very oddly.

Troy

--- In epilepsysupportandeducation@yahoogroups.com, Harold <harold739@...>
wrote:
>
> A young lady wrote me:  Now I can not stop coughing it's like I have these
fits of coughing. It started out  I first had to just clear my throat. Now I
have these fits of coughing then it subsides for a little while then it starts
again.!
> Has this happen to anyone in our groups? Thank You in Advance and God Bless,
Harold
>
> [Non-text portions of this message have been removed]
>

#16657 From: Wendy Anne <ima.da.wendy@...>
Date: Thu Dec 10, 2009 12:07 am
Subject: humidifier
wendyz08
Online Now Online Now
Send Email Send Email
 
*I always use a humidifier for me or my kids when any of us get a cough*
*and keep the person confined in their bedroom with the door partially*
*closed to make the mist stay in the room to help the person breath better*
*and to coat the throat with the mist of the humidifeir *
*and lots of water to drink along with robitusan expetorant but ask you
doctor*
*
*
*I never heard of cough being epilepsy related*
*
*
*
*


[Non-text portions of this message have been removed]

#16656 From: Peter <goobert@...>
Date: Wed Dec 9, 2009 11:53 pm
Subject: Re: [Epilepsy Support and Education] (unknown)
gilbertzcorn...
Offline Offline
Send Email Send Email
 
Your link is bad on my end can you please tell me what you are trying to
say. Bottom text doesn't translate either is this a real message or just
spam.
http://translate.google.com/translate?js=y&prev=_t&hl=en&ie=UTF-8&layout=1&eotf=\
1&u=http%3A%2F%2Fsites.google.com%2Fsite%2Fxhjbuphxey%2F9fvefkgfjy%3Fpli%3D1&sl=\
auto&tl=en


On Wed, Dec 9, 2009 at 3:01 PM, Susana Maria Rosende
<suemrose61@...>wrote:

>
>
> http://sites.google.com/site/xhjbuphxey/9fvefkgfjy
>
>


[Non-text portions of this message have been removed]

#16655 From: "Craig" <headspin54601@...>
Date: Wed Dec 9, 2009 9:11 pm
Subject: Re: [Epilepsy Support and Education] Coughing after VNS operation?
headspin54601
Online Now Online Now
Send Email Send Email
 
It may not have to do with the VNS.  If it is a constant dry cough that came
on sudden, it could be the H1N1 virus.  She may want to call a nurse's
hotline, or go to a walk-in clinic to get it checked out.  If a fever comes
on suddenly, go into the ER immediately.

     ______________
Craig Sheffield
http://groups.yahoo.com/group/The_Bible_and_Life/
Ephesians 2:8-9
Epilepsy Support and Education - Moderator

"America needs God more than God needs America. If we ever forget that we
are One Nation Under God, then we will be a Nation gone under."


— President Ronald Reagan, Aug. 23, 1984
"If you don't read the newspaper you are uninformed; if you do read the
newspaper you are misinformed." --American author and humorist Mark Twain
(1835-1910)
SUPPORT OUR SOLDIERS!! (No matter how you feel about war!)

-------Original Message-------

From: Harold
Date: 12/8/2009 2:10:19 PM
To: epilepsychat@yahoogroups.com;  epilepsysurgerygroup1@yahoogroups.com
Cc: epilepsysupportandeducation;  epilepsy_surgery@yahoogroups.com
Subject: [Epilepsy Support and Education] Coughing after VNS operation?


A young lady wrote me:  Now I can not stop coughing it's like I have these
fits of coughing. It started out  I first had to just clear my throat. Now I
have these fits of coughing then it subsides for a little while then it
starts again.!
Has this happen to anyone in our groups? Thank You in Advance and God Bless,
Harold

[Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]

#16654 From: Susana Maria Rosende <suemrose61@...>
Date: Wed Dec 9, 2009 9:01 pm
Subject: (No subject)
suemrose61
Offline Offline
Send Email Send Email
 
#16653 From: Rhonda Benz <rhondadbe@...>
Date: Wed Dec 9, 2009 8:39 pm
Subject: This is an interesting website
rhondadbe
Online Now Online Now
Send Email Send Email
 
I just took action on this issue and thought you might find it interesting too.

Click on this URL to take action now
http://capwiz.com/efa/utr/2/?a=14446191&i=96948011&c=

If your email program does not recognize the URL as a link,
copy the entire URL and paste it into your Web browser.


-------------------------------------
Powered by Capitol Advantage, LLC
http://www.capitoladvantage.com
"Connect and Be Counted"
-------------------------------------

#16652 From: "sunshine66053" <sunshine66053@...>
Date: Wed Dec 9, 2009 1:22 pm
Subject: Re: Coughing after VNS operation?
sunshine66053
Offline Offline
Send Email Send Email
 
yes i have those to i turn my neck just the right way and i get to coughing and
they turn  me up 3 times now omg it took me  YEAR TO GET USE TO IT,SHE SO SHE
WILL GET USE TO IT

#16651 From: mfroof@...
Date: Tue Dec 8, 2009 9:24 pm
Subject: Depakote and birth defects
mfroof
Offline Offline
Send Email Send Email
 
From _Medscape  Medical News_ (http://www.medscape.com/news)  > _Alerts,
Approvals and Safety Changes_ (http://www.medscape.com/index/section_3093_0)
> _Medscape  Alerts _ (http://www.medscape.com/index/section_2904_0)
FDA Reminds Healthcare Professionals of Valproate Link to Birth Defects
Emma Hitt, PhD
Posted: 12/03/2009

December 3, 2009 — Fetal exposure to valproate sodium (Depacon,  Abbott),
valproic acid (Depakene, Stavzor, Abbott), and  divalproex sodium (Depakote,
Depakote CP, Depakote  ER, Abbott) is associated with birth defects,
according to the US Food and  Drug Administration (FDA).
A drug information update sent today reminded healthcare practitioners of
the  possibility of birth defects, including neural tube, craniofacial, and
cardiovascular defects, and stated that they should "inform women of
childbearing potential about these risks, and consider alternative therapies,
especially if using valproate to treat migraines or other conditions not
usually  considered life-threatening."
Women of childbearing potential should receive valproate only when it is
essential to manage their medical condition, the FDA states. "Those who are
not  actively planning a pregnancy should use effective contraception, as
birth  defect risks are particularly high during the first trimester, before
many women  know they are pregnant."
The FDA will be working with manufacturers to institute labeling changes
and  are requiring a patient medication guide for each antiepileptic drug,
including  valproate.
According to the FDA, the rates for neural tube defects in babies exposed
to  valproate during the first trimester are 30 to 80 times higher than those
  observed in the general US population. In addition, in pregnant women with
  epilepsy, valproate monotherapy is associated with a 4-fold higher rate of
major  malformations than other antiepileptic drug monotherapies.
More information is available on the FDA's _MedWatch Web site_
(http://www.fda.gov/Drugs/DrugSafety/PostmarketDrugSafetyInformationforPatientsa\
ndProvide
rs/DrugSafetyInformationforHeathcareProfessionals/ucm192649.htm) .
Pregnant women using valproate or other antiepileptic drugs should be
encouraged to enroll in the North American Antiepileptic Drug Pregnancy Registry
  by telephone at 1-888-233-2334 or on the registry's _Web site_
(http://www.aedpregnancyregistry.org/) .
In addition, adverse events related to valproate should be communicated to
MedWatch by telephone at 1-800-FDA-1088, by fax at 1-800-FDA-0178, online
at _http://www.fda.gov/medwatch_ (http://www.fda.gov/medwatch) , or by mail
to 5600 Fishers  Lane, Rockville, Maryland 20852-9787.




Authors and Disclosures
Journalist
Emma Hitt, PhD
Emma Hitt is a freelance editor and writer for Medscape.

Disclosure:  Emma Hitt, PhD, has disclosed no relevant financial
relationships.




Medscape Medical News © 2009 Medscape, LLC
Send press  releases and comments to _news@..._
(mailto:news@...) .




[Non-text portions of this message have been removed]

#16650 From: Harold <harold739@...>
Date: Tue Dec 8, 2009 7:26 pm
Subject: Coughing after VNS operation?
harold739
Offline Offline
Send Email Send Email
 
A young lady wrote me:  Now I can not stop coughing it's like I have these fits
of coughing. It started out  I first had to just clear my throat. Now I have
these fits of coughing then it subsides for a little while then it starts
again.!
Has this happen to anyone in our groups? Thank You in Advance and God Bless,
Harold

[Non-text portions of this message have been removed]

#16649 From: Peter <goobert@...>
Date: Tue Dec 8, 2009 2:20 am
Subject: Re: [Epilepsy Support and Education] unnecessary seizures
gilbertzcorn...
Offline Offline
Send Email Send Email
 
Anyone beyond Keppra going generic and Keppra XR coming out know any new
advances in treatment. Nice article but I want the meat. :)


On Mon, Dec 7, 2009 at 8:08 PM, <mfroof@...> wrote:

>
>
> This was from Medscape today:
>
>
>
>
> From _Medscape Medical News_ (http://www.medscape.com/news)
> Epilepsy Patients Having Unnecessary Seizures
> Allison Gandey
>
> December 4, 2009 (Boston, Massachusetts) — Complete freedom from seizures
> is not possible for everyone, but specialists presenting here at the
> American Epilepsy Society 63rd Annual Scientific Conference say that goal
> is more
> realistic than most people think.
> "We are very fortunate to have many new diagnostic tests and treatments,"
> Steven Schachter, MD, president of the epilepsy society, told reporters
> attending a media briefing today. "But a consequence of all this progress
> has
> been a widening of the treatment gap between what is currently being done
> and what is possible."
> Significant advances in epilepsy have taken place during the last 15 years,
>
> but despite these developments, Dr. Schachter said, "prescribing practices
> have remained pretty much unchanged."
> The result: uncontrolled epilepsy diminishing quality of life and
> increasing the risk of disability and death.
> An estimated 45% of people with epilepsy in the United States continue to
> have seizures despite treatment, report the Centers for Disease Control and
>
> Prevention. The numbers internationally are even more staggering —
> three-quarters of the global population with epilepsy receives no treatment
>
> whatsoever, says the World Health Organization.
> "Progress has been so rapid, it has been hard for physicians to keep up,"
> Edward Hogan, MD, from Washington University in St. Louis, Missouri, said
> at
> the briefing.
> Eric Hargis, MD, president and chief executive officer of the Epilepsy
> Foundation, added that communication problems can also factor in. "People
> are
> often not forthcoming about providing information on how their seizures are
>
> affecting their lives," he said. "Physicians need to ask."
> Dr. Hargis pointed out that patients may say their epilepsy is fine and yet
>
> they are still having seizures. "This may mean they are not driving and
> their work and personal relationships could be affected."
> Eliminate Seizures
> Dr. Hargis said that people often assume that this is what it is like to
> have epilepsy and they settle. He suggests that clinicians and patients
> need
> to raise their expectations and work to eliminate seizures.
> Dr. Hargis noted that patients with epilepsy face other hurdles as well. He
>
> says that most will experience adverse events from treatment — and many of
> these effects will be debilitating. "In some cases," Dr. Hargis said,
> "drug toxicity and mood disorders will affect quality of life even more
> than
> the frequency or severity of seizures." These issues must be addressed, he
> emphasized.
> Drug toxicity and mood disorders will affect quality of life even more
> than the frequency or severity of seizures.
> Variations in defining refractory epilepsy have not helped matters, added
> Patrick Kwan, MD, from the Chinese University of Hong Kong. Dr. Kwan is
> taskforce chair of the International League Against Epilepsy commission,
> which
> will be presenting the first-ever global consensus definition of refractory
>
> epilepsy Tuesday.
> "We believe its adoption into clinical practice can have a significant
> impact in improving patient care by providing clinicians a framework to
> recognize and promptly refer patients fulfilling the definition to
> specialist
> centers."
> The new definition will be presented during a special symposium at the
> meeting and will be reported by Medscape Neurology.
> The presenters have disclosed no relevant financial relationships.
> American Epilepsy Society (AES) 63rd Annual Scientific Conference: Media
> briefing. Presented December 4, 2009.
>
>
> Authors and Disclosures
> Journalist
> Allison Gandey
> Allison Gandey is a journalist for Medscape. She is the former science
> affairs analyst for the Canadian Medical Association Journal. Allison, who
> has
> a master of journalism specializing in science from Carleton University,
> has edited a variety of medical association publications and has worked in
> radio and television. She can be contacted at
agandey@...<agandey%40webmd.net>
> .
>
> Medscape Medical News © 2009 Medscape, LLC
> Send press releases and comments to _news@...<_news%40medscape.net>_
>
> (mailto:news@... <news%40medscape.net>) .
>
>
> [Non-text portions of this message have been removed]
>
>
>


[Non-text portions of this message have been removed]

#16648 From: mfroof@...
Date: Mon Dec 7, 2009 9:08 pm
Subject: unnecessary seizures
mfroof
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This was from  Medscape today:




From _Medscape  Medical News_ (http://www.medscape.com/news)
Epilepsy Patients Having Unnecessary Seizures
Allison Gandey


December 4, 2009 (Boston, Massachusetts) — Complete freedom from seizures
is  not possible for everyone, but specialists presenting here at the
American  Epilepsy Society 63rd Annual Scientific Conference say that goal is
more
realistic than most people think.
"We are very fortunate to have many new diagnostic tests and treatments,"
Steven Schachter, MD, president of the epilepsy society, told reporters
attending a media briefing today. "But a consequence of all this progress has
been a widening of the treatment gap between what is currently being done
and  what is possible."
Significant advances in epilepsy have taken place during the last 15 years,
  but despite these developments, Dr. Schachter said, "prescribing practices
have  remained pretty much unchanged."
The result: uncontrolled epilepsy diminishing quality of life and
increasing  the risk of disability and death.
An estimated 45% of people with epilepsy in the United States continue to
have seizures despite treatment, report the Centers for Disease Control and
Prevention. The numbers internationally are even more staggering —
three-quarters of the global population with epilepsy receives no treatment
whatsoever, says the World Health Organization.
"Progress has been so rapid, it has been hard for physicians to keep up,"
Edward Hogan, MD, from Washington University in St. Louis, Missouri, said at
the  briefing.
Eric Hargis, MD, president and chief executive officer of the Epilepsy
Foundation, added that communication problems can also factor in. "People are
often not forthcoming about providing information on how their seizures are
affecting their lives," he said. "Physicians need to ask."
Dr. Hargis pointed out that patients may say their epilepsy is fine and yet
  they are still having seizures. "This may mean they are not driving and
their  work and personal relationships could be affected."
Eliminate Seizures
Dr. Hargis said that people often assume that this is what it is like to
have  epilepsy and they settle. He suggests that clinicians and patients need
to raise  their expectations and work to eliminate seizures.
Dr. Hargis noted that patients with epilepsy face other hurdles as well. He
  says that most will experience adverse events from treatment — and many of
these  effects will be debilitating. "In some cases," Dr. Hargis said,
"drug toxicity  and mood disorders will affect quality of life even more than
the frequency or  severity of seizures." These issues must be addressed, he
emphasized.
Drug toxicity and mood  disorders will affect quality of life even more
than the frequency or severity  of seizures.
Variations in defining refractory epilepsy have not helped matters, added
Patrick Kwan, MD, from the Chinese University of Hong Kong. Dr. Kwan is
taskforce chair of the International League Against Epilepsy commission, which
will be presenting the first-ever global consensus definition of refractory
  epilepsy Tuesday.
"We believe its adoption into clinical practice can have a significant
impact  in improving patient care by providing clinicians a framework to
recognize and  promptly refer patients fulfilling the definition to specialist
centers."
The new definition will be presented during a special symposium at the
meeting and will be reported by Medscape Neurology.
The presenters have disclosed no relevant financial relationships.
American Epilepsy Society (AES) 63rd Annual Scientific Conference: Media
briefing. Presented December 4, 2009.




Authors and Disclosures
Journalist
Allison Gandey
Allison Gandey is a journalist for Medscape. She is the former science
affairs analyst for the Canadian Medical Association Journal. Allison, who has
a  master of journalism specializing in science from Carleton University,
has  edited a variety of medical association publications and has worked in
radio and  television. She can be contacted at  agandey@....




Medscape Medical News © 2009 Medscape, LLC
Send press  releases and comments to _news@..._
(mailto:news@...) .




[Non-text portions of this message have been removed]

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