Marina

I absolutely agree with you about the heart and seizures

I have much irrg heart beats and then chest pain sharp and short
after multiple absence seizures as I am nocturnal epilepsy

my veeg shows left lobe epilepsy
my EEG last week said normal
my echo shows prolapsed mitral valve

my neuro said it was just my heart at nite time and not all were seizures

now why then does the keppra reduce 100s of nite seizures to
only about 8 at nite time now?

my heart will still go crazy after a seizures
along with sharp chest pains occasionally

spoke with neuro she wanted me in for a hospital stay to do a
veeg on me

I said if you hook up my  heart at the same time
she said you will have to get a separate test for your heart from
cardiologist

I said but that is crazy I think you should hook my brain up and
my heart at the same time to get a accurate reading and see
how the seizures and heart irrg,etc go hand in hand

This has been going on all my life so what is new?

that I know that you say what you are saying and I agree


Wendy

--- On Wed, 7/15/09, Dawn Iversen <dawn-eric@...> wrote:

From: Dawn Iversen <dawn-eric@...>
Subject: Re: [Epilepsy Support and Education] Re: Advice Needed
To: epilepsysupportandeducation@yahoogroups.com
Date: Wednesday, July 15, 2009, 8:51 AM

















Nina, I would like to know more...please.



Dawn Iversen



____________ _________ _________ __

From: Adriana Rozo <parallelworld@ comcast.net>

To: epilepsysupportande ducation@ yahoogroups. com

Sent: Tuesday, July 14, 2009 10:18:23 AM

Subject: RE: [Epilepsy Support and Education] Re: Advice Needed



If I were you I will go first to a holistic nutritionist, as must of the

seizure disorder have to do with allergies, I said this from personal

experience after having seizures disorder for 31 years, now I'm

completely new person and I have to take very little medicine and no

more jerks at night and when I wake up and no more tiredness etc..

medicines will make her worst for sin number of reasons, but if the diet

doesn't help, you might have to put her in meds but with the diet this

is a good time for her to over come them as she doesn't have any mayor

scare tissue in her brain from the seizures, before is too late like my

case too much scare tissue on my brain to make better, so I have to

depend on med's for the rest of my life. Chemicals are another mayor

factor as well. It is very hard to find this allergies with conventional

med's my were done holistically and does the way I find out my seizures

came from allergies. the only place that I know it have this special

equipment to detect allergies is in Vancouver Canada -the place that

change my life-



Parasites also play a mayor role in this.



If you want more info about this diet let me know and I WILL LOVE TO

HELP YOU!



Best



Nina



-----Original Message-----

From: epilepsysupportande ducation@ yahoogroups. com

[mailto:epilepsysup portande ducation@ yahoogroups. com] On Behalf Of halua8

Sent: Tuesday, July 14, 2009 10:17 AM

To: epilepsysupportande ducation@ yahoogroups. com

Subject: [Epilepsy Support and Education] Re: Advice Needed



--- In epilepsysupportande

<mailto:epilepsysup portandeducation %40yahoogroups. com>

ducation@yahoogroup s.com, "Kristi Nelson" <cnknelson@. ..> wrote:

>

> Hi Everyone,

>

> My daughter has been experiencing myoclonic jerks when she is sleep

deprived. We discovered this after picking her up from a sleepover. She

is 14. A CAT scan and blood work came back fine. An eeg came back

abnormal. The neurologist wants to put her on Keppra XR. She has not had

a seizure yet. Is it absolutely necessary for her to be on medication? I

would greatly appreciate advice. My daughter has always been a healthy

child. We do not have a family history of epilepsy, so this is all very

new and scary to us.

>

HELLO THERE,



JUST WANTED TO SHARE THIS WITH U PLEASE.



I WAS 14 MY SELF WHEN I FIRST STARTED GOING ON MEDS . NOW, I WENT

THROUGH ALL TYPE OF EXAMS IN AUSTRALIA AND IN THE END THEY SAID THAT IT

WAS EPILEPSY OF CRYPTOGENETIC NATURE OR IDIOPATHIC (WHICH SIMPLY MEANS

WITHOUT CAUSE).

LATELY THEY FOUND OUT THAT MY HEART HOLES DID CLOSE UP AND THAT I AM 49.

SO I HAVE UNDERGONE A SMALL HEART OPERATION SEALING HOLES (POF) AND

SINCE THEN I HAVE BEEN MUCH BETTER. NOW WHAT HAS THIS GOT TO DO WITH

EPILEPSY YOU SAY?



WELL SINCE EVERYONE IS SPREADING OPINIONS HERE AND THERE, I MUST POINT

OUT THE FOLLOWING:



1) THE POF IS SOMETHING WE ARE BORN WITH, ALL OF US



2) THE HOLES CLOSE UP LATEST WHEN WE ARE CHILDREN OR AS SOON AS WE ARE

BORN AS WE LEARN HOW BREATH AUTONOMOUSLY.



3) IF THEY DO NOT CLOSE UP IT MAY CAUSE A WILD BLOOD FLOW WHICH MAY HIT

THE BRAIN, LUNGS AND SO ON CAUSING STROKES WHY?



4) THIS WILD BLOOD FLOW CAUSES A LACK OF OXYGEN FROM WITHIN



5) THEREFORE IF YOU HAVE LACK OF OXYGEN, YOU BRAIN SUFFERS



AND YOUR FITS DO BECAME MUCH MORE FREQUENT AND HARMFUL



FOR YOUR SELF.



6) BY TAKING THE NECESSARY BLOOD FLUIDIFICATION TABLETS YOU MAY HAVE

LESS FITS BECAUSE SIMPLY YOUR BLOOD IS NOT SO THICK AND THE BRAIN AND

ALL OTHER ORGANS SUFFER LESS.



PLEASE CHECK THE HEART AS WELL. YOU WILL NEVER KNOW YOU MIGHT FIND OUT

SHE DOES NOT HAVE EPILEPSY BUT SHE FAINTS AND HAS FITS JUST BECAUSE HER

BLOOD DOES NOT OXYGENATE HER PROPERLY. THANKS



PLEASE TAKE THIS AS AN ADVICE NOT A PRESCRIPTION. TALK WITH UR

SPECIALISTS ABOUT IT



THANKS A LOT



MARINA



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