i think it is necessary. when i was first diagnosed with epilepsy, i wasn't
having actual seizures...they started off as bad migraines actually. eventually
i had a mild one at home. my mom didn't believe it...she thought it was just a
bad reaction 2 barbecued meat. i was not only placed on a medicine i almost died
from taking, but had an abnormal eeg. that was when i was diagnosed with
epilepsy. so no, u don't have 2 have seizures right off the bat. i think being
on medicine will do her good.

Little Puss! Little Puss! Here Kitty, Kitty, Kitty....

--- On Tue, 7/14/09, halua8 <halua8@...> wrote:


From: halua8 <halua8@...>
Subject: [Epilepsy Support and Education] Re: Advice Needed
To: epilepsysupportandeducation@yahoogroups.com
Date: Tuesday, July 14, 2009, 7:16 AM








--- In epilepsysupportande ducation@ yahoogroups. com, "Kristi Nelson"
<cnknelson@. ..> wrote:
>
> Hi Everyone,
>
> My daughter has been experiencing myoclonic jerks when she is sleep deprived.
We discovered this after picking her up from a sleepover. She is 14. A CAT scan
and blood work came back fine. An eeg came back abnormal. The neurologist wants
to put her on Keppra XR. She has not had a seizure yet. Is it absolutely
necessary for her to be on medication? I would greatly appreciate advice. My
daughter has always been a healthy child. We do not have a family history of
epilepsy, so this is all very new and scary to us.
>
HELLO THERE,

JUST WANTED TO SHARE THIS WITH U PLEASE.

I WAS 14 MY SELF WHEN I FIRST STARTED GOING ON MEDS . NOW, I WENT THROUGH ALL
TYPE OF EXAMS IN AUSTRALIA AND IN THE END THEY SAID THAT IT WAS EPILEPSY OF
CRYPTOGENETIC NATURE OR IDIOPATHIC (WHICH SIMPLY MEANS WITHOUT CAUSE).
LATELY THEY FOUND OUT THAT MY HEART HOLES DID CLOSE UP AND THAT I AM 49. SO I
HAVE UNDERGONE A SMALL HEART OPERATION SEALING HOLES (POF) AND SINCE THEN I HAVE
BEEN MUCH BETTER. NOW WHAT HAS THIS GOT TO DO WITH EPILEPSY YOU SAY?

WELL SINCE EVERYONE IS SPREADING OPINIONS HERE AND THERE, I MUST POINT OUT THE
FOLLOWING:

1) THE POF IS SOMETHING WE ARE BORN WITH, ALL OF US

2) THE HOLES CLOSE UP LATEST WHEN WE ARE CHILDREN OR AS SOON AS WE ARE BORN AS
WE LEARN HOW BREATH AUTONOMOUSLY.

3) IF THEY DO NOT CLOSE UP IT MAY CAUSE A WILD BLOOD FLOW WHICH MAY HIT THE
BRAIN, LUNGS AND SO ON CAUSING STROKES WHY?

4) THIS WILD BLOOD FLOW CAUSES A LACK OF OXYGEN FROM WITHIN

5) THEREFORE IF YOU HAVE LACK OF OXYGEN, YOU BRAIN SUFFERS

AND YOUR FITS DO BECAME MUCH MORE FREQUENT AND HARMFUL

FOR YOUR SELF.

6) BY TAKING THE NECESSARY BLOOD FLUIDIFICATION TABLETS YOU MAY HAVE LESS FITS
BECAUSE SIMPLY YOUR BLOOD IS NOT SO THICK AND THE BRAIN AND ALL OTHER ORGANS
SUFFER LESS.

PLEASE CHECK THE HEART AS WELL. YOU WILL NEVER KNOW YOU MIGHT FIND OUT SHE DOES
NOT HAVE EPILEPSY BUT SHE FAINTS AND HAS FITS JUST BECAUSE HER BLOOD DOES NOT
OXYGENATE HER PROPERLY. THANKS

PLEASE TAKE THIS AS AN ADVICE NOT A PRESCRIPTION. TALK WITH UR SPECIALISTS ABOUT
IT

THANKS A LOT

MARINA



















[Non-text portions of this message have been removed]