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Nocturnal seizure drug doses   Message List  
Reply | Forward Message #15199 of 16679 |
Re: [Epilepsy Support and Education] Re: Nocturnal seizure drug doses

Mine were pretty well under control until 2000, then I started having Catamenial
(hormonal) seizures I know what you mean about not driving. Suddenly I was
unable to drive to work and that made things rather difficult here. I had driven
since I was 16 and then at 40 I had to stop driving....that was hard. I had to
find diffferent ways to get to work.
My Neuro and OB/GYN worked with me and tried to find something that controlled
them, but mine were hard to control. My Neuro suggested me going to an
Epileptologist and looking into surgery. I did and went through all the tests
and it was the best thing I ever did. I had my surgery July 5, 2005 and have had
no seizures since then. It has been awesome....even when my seizures were
controlled I had a seizure occaisionally. I just called my Neuro if they
happened too often and he adjusted my med...no biggie.
Good luck getting disability. Keep in mind that sometimes you won't get it the
first time...but don't give up. I've heard that from other people online.


 

--- On Sun, 2/1/09, ashlee <sugarbear_lol@...> wrote:


From: ashlee <sugarbear_lol@...>
Subject: Re: [Epilepsy Support and Education] Re: Nocturnal seizure drug doses
To: epilepsysupportandeducation@yahoogroups.com
Date: Sunday, February 1, 2009, 2:05 PM






Yeah mine only last a few minutes too, but when i come out of it i am so tired,
my body hurts all over and my eyes and head hurt so bad, i sleep almost all day
too.  That is how i know that i had one, but i still ask how bad it was and what
happen just to know, and also to tell my nuerologist and my lawyer, i'm tring to
get disablity for it because of the fact that i can't drive, i have alot of
trouble tring to find a job and many other things that it effects.   Hope things
go well for you.  Ashlee

____________ _________ _________ __
From: rhonda b <rhondadbe@yahoo. com>
To: epilepsysupportande ducation@ yahoogroups. com
Sent: Saturday, January 31, 2009 6:22:55 PM
Subject: Re: [Epilepsy Support and Education] Re: Nocturnal seizure drug doses

I never knew when I was going to have a seizure either. I would have no clue
what happens when I have one, I always would ask people afterwards so I could
tall my Neurologist what I was doing. Of course it would take time before I
could ask because I could never talk for a few minutes even though my seizures
were very short...1-2 minutes. It always affects that part of my brain.

 

--- On Sat, 1/31/09, ashlee <sugarbear_lol@ yahoo.com> wrote:

From: ashlee <sugarbear_lol@ yahoo.com>
Subject: Re: [Epilepsy Support and Education] Re: Nocturnal seizure drug doses
To: epilepsysupportande ducation@ yahoogroups. com
Date: Saturday, January 31, 2009, 4:43 PM

i also have the same thing, i bite my cheek and my tounge as well.  I also don't
know what you mean by forgeting your past stories.  also, do you know when your
seizures are coming, awake or asleep?   or remember anything about them?   I
have no clue when mine come people tell me and it shocks me because i know
nothing about when it happens. 

____________ _________ _________ __
From: breezee.abbott <breezee.abbott@ yahoo.com>
To: epilepsysupportande ducation@ yahoogroups. com
Sent: Saturday, January 31, 2009 12:52:19 AM
Subject: [Epilepsy Support and Education] Re: Nocturnal seizure drug doses

I have bite my tonge when having a tonic-clonic seizure. Mostly I bite
my cheek. it takes days to get better. I do not know how long I bite it
but I do.I do not know what you mean about forgeting the past stories.
Breezee

--- In epilepsysupportande ducation@ yahoogroups. com, "job.samy"
<job.samy@.. .> wrote:
>
> Are u biting ur tong when having the sezure. For how long the seizure
> last. When waking up have u forgotten the past stories.
>

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[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]


















[Non-text portions of this message have been removed]




Sun Feb 1, 2009 7:29 pm

rhondadbe
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Forward
Message #15199 of 16679 |
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I was wondering if others, who also get nocturnal seizures as their only type of seizures, take a higher dosage of their drug at nighttime. I have read where...
Doris
keepsmiling1023
Offline Send Email
Jan 30, 2009
4:06 pm

Are u biting ur tong when having the sezure. For how long the seizure last. When waking up have u forgotten the past stories....
job.samy
Offline Send Email
Jan 31, 2009
5:39 am

I have bite my tonge when having a tonic-clonic seizure. Mostly I bite my cheek. it takes days to get better. I do not know how long I bite it but I do.I do...
breezee.abbott
Offline Send Email
Jan 31, 2009
5:55 am

done this and hate this God bless you dont worry ... From: breezee.abbott <breezee.abbott@...> Subject: [Epilepsy Support and Education] Re: Nocturnal...
wendy k
wendyz08
Online Now Send Email
Jan 31, 2009
11:46 am

Just something I have found out... and have done something about it.. Because 99.9% of my seizures are nocternal I had my dentist fit a mouth guard to fit my...
MVONDRAK@...
melissavondrak
Offline Send Email
Jan 31, 2009
7:32 am

yes, i do bite my tounge when i have my seizures in my sleep.  maybe not as bad as yours but i have had some pertty scarey times with it.  when you got that...
ashlee
sugarbear_lol
Offline Send Email
Jan 31, 2009
10:11 pm

i also have the same thing, i bite my cheek and my tounge as well.  I also don't know what you mean by forgeting your past stories.  also, do you know when...
ashlee
sugarbear_lol
Offline Send Email
Jan 31, 2009
10:11 pm

i have several different seizures.  i take the same amount of medication in the day and night.  the only thing different that i take at night is a medication...
ashlee
sugarbear_lol
Offline Send Email
Jan 31, 2009
10:12 pm

I never knew when I was going to have a seizure either. I would have no clue what happens when I have one, I always would ask people afterwards so I could...
rhonda b
rhondadbe
Online Now Send Email
Jan 31, 2009
11:22 pm

Yeah mine only last a few minutes too, but when i come out of it i am so tired, my body hurts all over and my eyes and head hurt so bad, i sleep almost all day...
ashlee
sugarbear_lol
Offline Send Email
Feb 1, 2009
7:19 pm

Mine were pretty well under control until 2000, then I started having Catamenial (hormonal) seizures I know what you mean about not driving. Suddenly I was...
rhonda b
rhondadbe
Online Now Send Email
Feb 1, 2009
7:29 pm

I do also have the Nocturnal seizures and I was so sick of biting my tounge and cheep that I went to the dentist and had him make me a mouth card that fits my...
MVONDRAK@...
melissavondrak
Offline Send Email
Feb 2, 2009
1:24 am

My youngest daughter and I have nocturnal seizures. She taking Zonagran. i am looking for a new neuro. He said it was "all in my head" although my wife has...
anthony mcmillan
addaddy71
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Feb 2, 2009
1:50 am

The many experiences and opinion shared are valuable to me. Thanks. Doris ... nighttime....
Doris
keepsmiling1023
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Feb 2, 2009
5:49 am

Listen when i said i forgot every stories that mean:   If the day before the seizure i was asked to do something , on the day of the seizure i forgot the...
Samy Job
job.samy
Offline Send Email
Feb 2, 2009
5:30 pm

      I saw : MVONDRAK@...  U went to the dentist and had him make u a mouth card that fits yr teeth perfectly and u wear it to bed every night...
Samy Job
job.samy
Offline Send Email
Feb 2, 2009
5:31 pm
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