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Reply | Forward Message #15099 of 16685 |
Re: [Epilepsy Support and Education] craig

Yes, there is good public transportation, and if you are disabled, you can
get free passes for the busses, plus there are other busses especially for
the handicapped that will take you to and from your appointments. I take
them a lot. You just need to call 24 hours in advance, and then call from
the hospital when you are done with your appointment. It is free depending
upon the type of Medicare you are under. Otherwise, some people have to pay
a co-pay. All of the public busses go to all of the clinics in all of the
areas, so if you cannot take the medical busses, the public busses will take
you there. Where I live, I should just walk, because I am within walking
distance of 2 major hospitals, but I need to exercise before I can walk that
far. I live in La Crosse, Wisconsin and there is a lot of medical
facilities here and connecting cities, plus we are one hour away from the
Mayo Clinic in Rochester, Minnesota.

  ______________
Craig Sheffield
http://groups.yahoo.com/group/The_Bible_and_Life/
Ephesians 2:8-9
Epilepsy Support and Education - Moderator

"America needs God more than God needs America. If we ever forget that we
are One Nation Under God, then we will be a Nation gone under."


— President Ronald Reagan, Aug. 23, 1984
"If you don't read the newspaper you are uninformed; if you do read the
newspaper you are misinformed." --American author and humorist Mark Twain
(1835-1910)
SUPPORT OUR SOLDIERS!! (No matter how you feel about war!)

-------Original Message-------

From: wendy k
Date: 1/6/2009 6:46:42 AM
To: epilepsysupportandeducation@yahoogroups.com
Subject: [Epilepsy Support and Education] craig

Craig
do you live where there is good publc transportation if it is okay to ask?
I think you area is so good for medical care
I am talking to a friend here about best places to live where there is
good health care
your is one of top of the list

thanks
wendy

--- On Mon, 1/5/09, Craig <Headspin@...> wrote:

From: Craig <Headspin@...>
Subject: Re: [Epilepsy Support and Education] Emergency Room Doctors
To: epilepsysupportandeducation@yahoogroups.com
Date: Monday, January 5, 2009, 5:57 PM

Most ER doctors are good at First Aid; PERIOD. They are not qualified to

give any type of Neurological advice or tell you whether or not you have

epilepsy. If they do; RUN. The doctors in the ERs in our area know their

limits. They are set up like a triage unit. They will patch you up, and

send you to a REAL doctor for a proper diagnosis. The nice part is that

they take patient polls, and change for the better according to what the

patients desire. There is a lot of competition to which helps also. There

are two major hospitals within close proximity, and they want each other's

business. This is good for the patient. They stick to the rules, and if a

doctor get's out of line, you have your choice of many others.

  ____________ __

Craig Sheffield

http://groups. yahoo.com/ group/The_ Bible_and_ Life/

Ephesians 2:8-9

Epilepsy Support and Education - Moderator

"America needs God more than God needs America. If we ever forget that we

are One Nation Under God, then we will be a Nation gone under."

— President Ronald Reagan, Aug. 23, 1984

"If you don't read the newspaper you are uninformed; if you do read the

newspaper you are misinformed. " --American author and humorist Mark Twain

(1835-1910)

SUPPORT OUR SOLDIERS!! (No matter how you feel about war!)

-------Original Message----- --

From: centralkyartist

Date: 1/5/2009 6:50:03 AM

To: epilepsysupportande ducation@ yahoogroups. com

Subject: [Epilepsy Support and Education] Emergency Room Doctors

Any advice would be helpful (sorry so long)

I had a seizure about 6:00 on Sunday Evening. I hit my head pretty

hard against a door and after the seizure I had a great deal of neck

pain. We were at my husband's parents house in another town. My

husband was concerned with the neck pain so he wanted me to go on to

the ER at the hospital there. I also had another seizure on the way

to the hospitalin the car. Once there they put on a collar for my

neck. I started shaking some on the left side. I explained to the

nurse that I had complext multi-focal seizures. She was a young

nurse and had been trained in these seizures and totally understood.

They took me back to a room and in a few minutes I went into another

seizure. As I was coming out of the seizure and was already able to

start speaking the doctor came into the room, picked up my left arm

dropped it, hitting my elbow on the bed rail and walked out of the

room telling my husband it was not a real seizure or I would have

hit my self in the face???????? ?

My husband took me immediately out of that hospital. I told the

doctor he was not a neurologist and could not make a diagnosis of

fake seizures on the fact that post-ictal he dropped my left arm on

the bed rail. I refused to sign that I was leaving against medical

advice. I told them they could figure that out when I walked out the

door. I was not going to sign a paper just to cover them. I told

the ER Doc to get back to me when he became a neurologist.

On the twenty minute drive home I had another seizure. So my

husband took me to the hospital where we live. Same procedure

collar for my neck. My left leg start trembling again and I asked

if I could take my emergency Ativan before I had another grand-mal

as I had already had several seizures. They immediately started to

get an IV so they could give me Ativan. I had two more grandmals

there in the ER. I was taken to CT to make sure my neck and head

were not injured in the fall. I was given 2 mg of Ativan. They found

my Dilantin levels had dropped to 3 and administered Dilantin IV.

This is the second ER doc that I have come across that does not

believe in Complex Multifocal seizures. They say that I am faking

despite the positive EEG on record and that I am taking four seizure

medications. One doctor went so far to say that there is no such

thing as complex seizures they are all fake except grand-mals.

Also, another situation that I am having; is my primary care

physician insisted that I file for disability after I was in her

office getting my face stitched up from falling. Ever since I have

filed my neurologist has turned strange. He dismisses my seizure

journal. He used to see me once a month and now he fills my

prescriptions and sees me every three months, despite my husband

telling him that I am still having grand-mals in my sleep three to

four times a week. (not sure how you fake seizures in your sleep)

I tried to work and not tell them I had seizures, because the

neurologist says I can work. While at work I had an absence

seizure, which was witnessed by my immediate manager, during which

time I cut my finger severely enough to need five stitches. I was

immediately fired. When I told the neurologist about this he said

that it did not sound like a seizure to him and maybe I should see a

psychologist. He has completely done a turn around since I filed

for disability.

This is the neurologist who first found the complex seizures two

years ago. Now he has become a jerk. He answers no questions that

I ask and when he asked me a question, when I start to answer he

starts talking over me about his dog. I am tired of hearing about

this guys dog.

My primary care physician is the only one I trust. Does anyone have

any ideas what I should do? I have come to hate doctors and not

trust them. I have gotten to where I have the attitude of just

leave it alone, go get my meds refilled and just deal with the

seizures I am still having.

Thank you for letting me vent.

Alesia

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Tue Jan 6, 2009 10:11 pm

headspin54601
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Message #15099 of 16685 |
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Nov 28, 2007
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Hey Craig, Yeah, finding the right doctor is crucial. I finally found a great doctor here in the Bay Area last year and man what a difference to have someone...
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Nov 30, 2007
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headspin54601
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Nov 30, 2007
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well ear infection is gone but you believe this? it may have spread to the lymph nodes! that is why it hurts to my tempral and prareital and mastoid areas! it...
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Nov 30, 2007
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Dec 1, 2007
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headspin54601
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Nov 29, 2007
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wow you too CRaig! sorry Im slow! I ve had epilepsy since birth also wendy Craig <Headspin@...> wrote: I've had epilepsy...
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huronmermaid48
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Nov 30, 2007
8:13 am

Craig do you live where there is good publc transportation if it is okay to ask? I think you area is so good for medical care I am talking to a friend here...
wendy k
wendyz08
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Jan 6, 2009
12:46 pm

Yes, there is good public transportation, and if you are disabled, you can get free passes for the busses, plus there are other busses especially for the...
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Jan 6, 2009
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Mar 1, 2009
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