--- In epilepsyalternatives@yahoogroups.com, angel_lts
<no_reply@y...> wrote:
> I have the VNS. I have had it since 2001. It is placed in my chest.
> It was shut off 11 months later. It didn't work for me for I got
> sleep apnea from it. But don't worry that is very rare. So rare
that
> it has never had to anyone else. But I can turn it on when I need
> it. It is a security blanket for me. It has saved my butt several
> times so I still like it and I am glad I still have it. The nice
> thing about mine is I will never need my battery changed since it
is
> turned off. So good luck to you and your cousin.
> Lisa
>
>
> --- In epilepsyalternatives@yahoogroups.com, "catlovercg2002001"
> <catlovercg2002001@y...> wrote:
> > Hi all:
> >
> > Just wanted to find out what personal experiences you all may
have
> > had with the vns. I am looking into it as an option for my cousin
> > with epilepsy and would love some personal opinions. I've heard
> great
> > things about how it can improve quality of life, and for Caroline
> > who's 9-I think this may be a good alternative for her. Greatly
> > appreciate your thoughts!

You had sleep apnea from it? Really, that must have been difficult
for you-why is the VNS a security blanket for you if it's not turned
on, just knowing that you have the option of turning it on if you
want to in the future? Thanks for sharing..