--- In epilepsyalternatives@yahoogroups.com, foxhillers@a... wrote:
> In a message dated 1/14/04 4:17:09 PM Eastern Standard Time,
> catlovercg20002001@y... writes:
>
> > >
> > >>
> > >I am using a low grains diet for my son with added brain fats
like
> > virgin
> > >cocnut oil, fish oil and flaxseed oil mixed into yoghurt and am
> > looking for a doc
> > >to help us withdraw him again safely from the AEDs which are
> > causing his body
> > >to deteriorate. He's only had one seizure in the last eight
> > months.......
> > >the fewest in many years, so I think, for him, this is a good
> > sign. Also look
> > >at the Ketogenic diet for similarities.
> > >Hope this helps
> > >mjh
> > >
> > >
> > >MJH
> > >
> > >
> > >[Non-text portions of this message have been removed]
> >
> > MJH-sounds like a very interesting diet-how did you hear about
it? It
> > must be a hard for him to maintain. Is he on any medications or
has
> > he had the vns or other surgeries? I'm so glad to hear that his
> > seizures have been minimal!
> >
> >
> I have a long interest in nutrition and food allergies and it just
seemed to
> me to be a sensible thing to do...... limits carbs from grains and
avoid ALL
> JUNK CARBS, increase good brain fats and absolutely minimize all
other fats and
> oils.
>
> It is not hard to maintain, nothing hard about not buying those
things in the
> grocery store. Can't eat what's not available in the pantry.
>
> Yes, Charlie is on 1000 mg Depakote and 500 mg Lamictal plus
numerous
> supplements.
>
> He has had about 30 neurosurgical procedure but not VNS as it just
does not
> make sense to me in that the vagus nerve is in the gut..... so we
know there is
> a gut/brain connection and there are other far less drastic avenues
to travel
> in this regard.
>
>
> MJH
> "The Basil Book"
> http://foxhillfarm.us/FireBasil
>
>
> [Non-text portions of this message have been removed]

Sounds like a very sensible diet for him. Wondering-the vegas nerve
is located in the gut? I thought it was closer to the spine and
traveled up to the brain? What other procedures has he had-have they
been effective-or not as much so in comaprison to the diet.