Hi Sandra,
Welcome to the group!
Being 12 is such a difficult age! Making the transition from child to teenager,
with all of the peer expectations, must make your son feel very vulnerable when
he has his seizures.
My daugher doesn't have seizures, but she had great success with NAET for her
allergies. (She's 19 now.) Her accupuncturist wants me to begin a program
because she feels certain she can help with my seizures. I do feel the need to
work with a medical neurologist along with any alternative approaches in order
to document any progress, real or perceived, that I am making.
I agree that it's important for your son to be self-motivated when it comes to
any behavior modification approaches you implement. The bio- or neuro-feedback
might be a great way to go when he is willing to initiate the mechanism without
your prompting.
At his age, diet could become a real challenge. His peers are going to want to
"chow down" on junk food, which could be disastrous for him. It sounds like you
have a good handle on things, though, so I'm sure you'll be attuned to
nutritional needs that arise during this time of growth -- physical and social
-- in his life.
Out of curiousity, has your doctor looked at thyroid or hormone panels recently?
I just wonder if they might have an impact on his seizure activity.
Again, welcome to the group, and best wishes. Keep us posted!
Carrol
hotmail.com> wrote: Hi:
I'm also new. I also belong to a few other groups (epilepsycured, epilepsy,
and epilepsy-kids).

My 12 year old son has had epilepsy since he was 6 1/2. He has simple
partial seizures which seem to come from the left temporal lobe. We have
tried various drugs and have had various successes. We have tried the
Ketogenic diet which didn't work. We are looking for ways other than drugs
to help control his seizures. He is a fairly normal 12-year-old and just
wishes he didn't have seizures to complicate his life. He finds them very
embarassing.

At the moment we are trying NAET (Nambudripad's Allergy Elimination
Technique) since his seizures increase during times when his seasonal
allergies are acting up. We figured that if we can cure him of his
allergies then at least that will get rid of some of his seizures.

Since reading a book by Adrienne Richard and Joel Reiter I have taught him
relaxing breathing and he has used it a few times to prevent a seizure.
However, since he is an active kid, he often doesn't think to do the
breathing without me reminding him. We are also looking into neuro-feedback
as a possibility when he's a bit older. We think he needs to be a little
more self-motivated to do some of these things and get the maximum benefits.

If anyone here has any other suggestions of things we could try, we would be
very interested. We're always looking for alternatives.

Sandra


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