Hi Lori,
You might want to check out the epilepsycured group also (
http://groups.yahoo.com/group/epilepsycured/ ). There are quite a lot
of parents in this group who may be in similar situations and can
share their efforts with you. Do you watch diet and nutrition pretty
well to make up for any vitamin deficiencies that might be caused by
the epilepsy drugs? Is the ketogenic diet an option for your son?
Thanks for writing. I'm glad you're here too!
Zoe