> Hi. I am new to this site. I have joined other support groups but
they
> do not have the same feelings as I do on alternative treatment. It
was
> a ketogenic website group. No one had any idea what I was talking
> about when I was explaining the herbs, supplements, and diet.
> Hopefully I will be able to find more help here. First of all, my
> daughter is 4 and was diagnosed with epilepsy nearly two years ago.
> She has progressively gotten worse due to all the meds (7). She now has
> hundreds of seizures a day, has lost the ability to walk, talk, crawl
> and even stand. We have recently been seeking forms of alternative
> treatment. She takes a number of different herbs including Black
> Cohosh, Arnica, Brain and nerve coctail, virginia snake root and
> several others. We have also been giving her supplements such as
> B-Complex, Vit. E, Omega 3, calcium and several others. We are
> currently testing her for food allergies by eliminating wheat,
gluten,
> lactose, sugar, soy and corn. She usually has hundreds of
"head-drops"
> a day, but she has improved over the last week. We have read a lot of
> good things about supplements like helping with seizure control or
> even eliminating them completely. We are looking in to every
> possibility. The doctors have run out of drugs and are talking brain
> surgery with a prognosis of mental retardation. I have to do
something
> and find something that works for her. I would love to hear from
> someone who has been through a similar situation. I could really use
> some support and advice. The doctors are 'bout useless at this point.
> I have had to do all my own research via books and the internet. I
> don't understand why these other less invasive options aren't
> explained to us. Please help. We are in a desperate situation and
just
> want our daughter back.
> Miranda