I hope I can help. If I am understanding you right he
has his
siezure and then has the light head afterward getting
over it.
I use to have epilepsey, but had a operation. Back in
1993 I
had my front rightal lobe removed that helped 99.5
percent. I still have to take meds but I only have a
ora which you know is a warning of a attack fixing to
come on. It goes away and I am fine. With what you are
saying you might want to check into have a operation
done on him. It really improves lives. I had a very
understanding nurse in school. I didn't have the
problems you and your son are having with my school. I
am so much better that I have gone to college and
graduated in a field called auto cad. Whitch is
designing houses and buildings. I hope this letter
helps you out. Hope things get better.

--- Mike Mchugh <mcpitza@...> wrote:

> Sorry you are having to battle this Dee...
>
> I had similar problems in the past. What has been
> helpful for me is to contact the Epilepsy Foundation
> and have them come out to the school. They will have
> a trained nurse come and educate all of the staff
> for an in-service training free of charge or they
> will talk one on one with who ever is created the
> problem for your son.
>
> I hope this will help you as it helped us.
>
> Michael
> ----- Original Message -----
> From: tequilarose413
> To: epilepsy-testimonials@yahoogroups.com
> Sent: Wednesday, February 01, 2006 6:30 AM
> Subject: [epilepsy-testimonials] Dear
> Listmates..Sorry..I just NEED TO VENT
>
>
> Good Morning Listmates,
>
> I am writing today because I REALLY NEED TO VENT!!
>
> Kyle has been attending the same school for he
> passed 8 yrs. NEVER
> ONCE DID THEY EVER HAVE TO send him off to the
> hospital for seizure
> activity.
> WELL..this past year..since they have gotten a new
> nursing staff,
> this woman calls for EVERY FREAKING SEIZURE!!
> So..I either have to go to the school..every other
> day to pick him
> from there...OR I have to go every month or so to
> the Hospital to
> pick him up from the EMERGENCY ROOM!
>
> The house Doctor EVEN SAID, RIGHT IN FRONT OF THE
> School Social
> Worker, that it is REALLY UNNECESSARY FOR THIS
> CHILD TO GO THRU THIS
> AS OFTEN AS HE HAS.
> He has a seizure disorder...He's had seizures his
> whole little 12 yrs
> of life..
> He has about a dozen a day!!
> Some days NOT as many...some days NOT AT ALL..but
> on the average
> about 12..for sake of arguement.
>
> I have told the nurse, that she is supposed to
> wait 15 minutes before
> administering the Diastat...BUT SHE IS SO GUNG
> HO..and ready to stick
> him with it!
> AND SHE has also called my son's neuro, and
> "suggested" that she
> increase the dosage of Diastat, and she wants the
> order changed to 5
> minutes within the start of his
> seizure...WHICH...She has been told a
> million times by the doctors..Neuro & Ped, NOT TO
> MENTION MYSELF!!
> That Kyles seizures are CLUSTERS..NOT ONE
> PROLONGED SEIZURE!!
> the doctors didn't even want to prescribe the
> diastat..but did so ,
> to pacify the school. BUT NOW THE NURSE IS STEPPED
> OVER HER
> BOUNDRIES.
> She has been pushing me into putting him on
> medication!
> Which he has not been on meds in about 5 yrs!
> SO...I don't care who she is, or who she thinks
> she is or what she
> thinks she knows about seizures...but I am his
> mother...and I SAY NO
> MEDS!!
> she doesn't have a clue about seizures!
> NOT A CLUE!!
> Because she was not aware of CLUSTERS, and she is
> timing them from
> the beginning of the seizure and WHAT SHE THINKS
> IS PART OF THE
> SEIZURE IS POST ICTLE!
> She DIDN'T KNOW WHAT POST ICTLE WAS!!
> WHAT KIND OF NURSE IS SHE??
> I could do a MUCH BETTER JOB THAN HER, and I'm not
> SCHOOLED FOR IT!
> I've got ON THE JOB EXPERIENCE!I could be a
> freakin' nurse!
> Each of "US" Parents could be Doctors!!
> With all that we have gone thru with our children
> Im digging through the old posts...I'm looking for
> any that contain
> info on School Matters, and problems that others
> have had with their
> schools & School Districts.
> I have not been happy with this school for QUITE A
> WHILE...and SO I
> GUESS I will have to look for another school!
> I TOTALLY understand, that the school has to do
> what they have to
> do..
> there are rules and regulations that they need to
> follow...
> BUT when they have Kyle's RECORDS...they have his
> seizure history.
> AND IT CLEARLY STATES, that his seizures along
> with the post ictle
> state..lasts for about 15-20!!
> NOT THE SEIZURE ALONE...but with the post ictle
> state as well!
> That woman should really go back to school..
> Anyway...IF ANYONE Has gone through anything
> similiar...I'd greatly
> appreciate any info you could send my way..
>
> Have a blessed day
> and thank you for listening...
> I hate spilling my guts..I am quite angry..and
> just really needed a
> shoulder.
> WHICH I KNOW I CAN ALWAYS come here for one. OR
> SEVERAL..lol
>
> love
> hugs
> &
> blessings
> Dee
>
>
>
>
>
>
> Community email addresses:
> Post message: epilepsy-testimonials@onelist.com
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>
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>
>
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>
>
>
>
>
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