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Dear Listmates..Sorry..I just NEED TO VENT   Message List  
Reply | Forward Message #166 of 195 |
Re: [epilepsy-testimonials] Dear Listmates..Sorry..I just NEED TO VENT

I realize I never post on here, and only rarely read the messages that come to my inbox but I am starting to get worried.

I had my first seizures when I was 6 months old. They came and went every few years - my parents hid the fact that I had epilepsy from me - my mother would rather believe that i was mentally ill than that I had epilepsy - even was checking me into a mental institution as a result of what she should have been fully aware was a seizure.

 

When I was 14 I had three seizures in school and was put on medicine. I had a great doctor - Imad Jarjour in Pittsburgh. After 2 1/2 years I told him I wanted off the meds and he agreed. He kept an eye on me for a while and then told me I no longer had epilepsy. In the beginning he told me that my feelings of de ja vu were really mini seizurs that I had been having (I started keeping a dream journal so I know that my dreams really did come true, even if it was only a minute here or there, and rarely about anything significant.) After being put on the medicine I didn't have any dreams come true for a long time, so I agreed they must have been the result of epilepsy.

I just graduated college in December and as a result I don't have any health insurance. I had a few dreams come true last semester, and now they are coming true several times a week, however briefly - something as simple as realizing I was eating fruit loops, while posting on a thread vary similar to a dream I had last month (I haven't eaten cereal in years) was enough to bring that strange feeling that I was told was de ja vu back.

I am getting really worried that these might be a sign of returning seizures. But since I don't have any health insurance at all, I am reluctant to go to the doctors. i am not sure what I should do.

 

 

 



 

----- Original Message -----
From: "Delores F."
To: epilepsy-testimonials@yahoogroups.com
Subject: Re: [epilepsy-testimonials] Dear Listmates..Sorry..I just NEED TO VENT
Date: Sun, 5 Feb 2006 04:33:25 -0800 (PST)

thank you Michael,
 
I will try to contact them on Monday...but I doubt if they will be able to send someone to the school on such short notice.
Maybe I can postpone the meeting until I can get someone from the Epilepsy Foundation to be there AND/OR an Advocate.
 
I was told that the Advocates may not be able to make the meeting on Thursday, because it is such short notice...I fear that I will have the same problem with the Epilepsy Foundation as well...
BUT...all I can do is give it a shot.
I have nothing to lose..{except for my mind.. ;)  }
 
thank you so very much for your support..
hugs
&
blessings,
Dee


"When Life Gives Ya Lemons...Make lemonade"
and if a friend has Vodka...
Have a Party!


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Sat Feb 11, 2006 4:55 pm

turnble@...
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Message #166 of 195 |
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Good Morning Listmates, I am writing today because I REALLY NEED TO VENT!! Kyle has been attending the same school for he passed 8 yrs. NEVER ONCE DID THEY...
tequilarose413
Offline Send Email
Feb 1, 2006
11:30 am

Sorry you are having to battle this Dee... I had similar problems in the past. What has been helpful for me is to contact the Epilepsy Foundation and have them...
Mike Mchugh
mcpitza
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Feb 1, 2006
12:11 pm

I am also sorry that you are having this problem with your son's school and the nurse that is there. I am now seizure free, after successful surgery in 1991,...
apinsley
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Feb 2, 2006
11:22 am

thank you Michael, I will try to contact them on Monday...but I doubt if they will be able to send someone to the school on such short notice. Maybe I can...
Delores F.
tequilarose413
Offline Send Email
Feb 5, 2006
12:33 pm

I hope I can help. If I am understanding you right he has his siezure and then has the light head afterward getting over it. I use to have epilepsey, but had a...
Thomas Havins
thavens76901
Offline Send Email
Feb 12, 2006
11:56 pm

Thomas, I also suffered from seizures until 1991, when, I too, had surgery at Yale-New Haven Hospital. I am seizure free, off all meds. Mine was also right,...
apinsley
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Feb 13, 2006
2:11 am

I realize I never post on here, and only rarely read the messages that come to my inbox but I am starting to get worried. I had my first seizures when I was 6...
Adrianne W.
turnble@...
Send Email
Feb 11, 2006
4:56 pm

Adrianne, You should still be covered under your parents' insurance, because your seizures were diagnosed before you turned 18. I was. I suffered from...
apinsley
Offline Send Email
Feb 13, 2006
2:16 am

Hi everyone... My son experienced seizures for about 8 months, from the age of 2 on, and it took us that long to get them to stop. He's been seizure free since...
Andy Hussong
andyhussong
Offline Send Email
Feb 11, 2006
5:35 pm
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