Ok i have never met anyone with ehlersdanlos and i have had this for 25 years! I'm not sure if ehlersdanlos suffers have the same problems I have. I was told...
Hi my name is Anna and I am kinda new here. I have VEDS (Or our genetisist thinks we might possibly have a new type of EDS) and so do all four of my children....
hello adamsv4jesus, here are some dr's i look't up for u in ur state it may be a bit of a drive im in the long run its well worth it! good luck and god bless! ...
My rheumologist sent me to PT for help with exercises and to be fitted for splints. They know nothing about Ehlers Danlos and don't seem to be interested in...
My son is turning 3 this month and has battled chronic loose stools for the last two years at least. He also has another medical condition that is treated with...
Hey I'm in 10th grade and have eds my biggest thing right now is that I'm having a difficult time with my grades, because I have fallen behind. Due to the fact...
In response to this kid failing school... I have had eds for 26 years... I missed so much school I dropped out freshman year. I think it would be best if you...
It would be nice if you sent information that could help someone in pain and not send us to smut dating sites. As I am a female I have no interest in looking...
I totally agree with you. I didn't join this group to get spammed. ... From: Amy Mathison <idealistic.thought@...> Subject: Re: [Ehlers Danlos Support...
I have no idea if someone moderating the information before it is sent out. I thought I could get in touch with people dealing with some of my same issue....
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