Hi there, i am in the dx process right now. i finally had someone listen to me and not brush me off. My new chiro asked me a ton of questions and said "i think...
Hi & welcome. My name is Lisa Schoenberg & have been involved with the Ehlers Danlos National Foundation for @ 20 years & have been invloved on several lists...
Sue, I agree with you. I do not eat junk food and it depends on what kind of excercise i do but my chiropractor and my doc are the best. Sue3307@... wrote:...
Lisa, I am just glad to finally understand that I am not crazy!! Thank you, Shelley foundit1999 <lisa.cherry2sky@...> wrote: Hi & welcome. My name is...
my doctor told me the spasm i have are my body being in shock and wanting to shut down on me he says the only thing i can do about it is sleep but that doesnt...
-Hi, my name is Megin and I also have Fibromyalgia and was just recently dx with EDS-Hypermobility. I know how frustrating it is to get dx'd with anything such...
Andy, I have Mitral Valve prolapse and I get palpations I was told to cut down on my caffiene to see if that helps and it has. Hope this helps, hang in there. ...
Thanks Megin I will check that out. It might be beneficial to me since I have no co-insurance and the bills are just stacking up on us. lost scout2811...
Thank you for the welcome Lisa.:o) I will copy over your email addy for future questions. I apologize to everyone for taking so long to get back here. Life got...
Hi Andy, I am on disability, and it was no easy task. I was 38 at the time, and it took about 3 1/2 years, and a few denials. The best thing you can do to...
thanks for the info ... From: Michelle Santiago <mydiva01@...> To: ehlersdanlossupportclub@yahoogroups.com Sent: Tuesday, March 27, 2007 5:56:37 AM ...
EDS Today is looking for faces: if anyone would like to be in this special issue (as the "REAL" faces of EDS) and for their permission to use their ...
I just wanted to write a short post updating everyone on my situation. I was offered and accepted the job I wanted in Iowa. I will be starting my new job on...
Welcome to Iowa! ************************************** See what's free at http://www.aol.com. [Non-text portions of this message have been removed]...
Ehlers-Danlos Syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders. It is a progressively debilitating syndrome that can cause...
Julia would like to invite you to join her circle of friends. Check her circle of friends here: http://juliafriends55224.googlepages.com/juliafriendcicle.htm...
good luck I hope things will work for you and doug will be better then ever stay in touch we are all praying for you! ... From: Barbara Davis <barb@...> ...
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