Hello everyone. I just wanted to introduce myself and say hello. I was recently diagnosed with EDS and with Fibromyalgia. Those seem to be just two of my...
Hello - My name is Linda and I too have Ehlers-Danlos and was just recently diagnosed with Fibromyalgia in August. My biggest problem is the constant pain - I...
I was just recently diagnosed with EDS.. and am still trying to find good care for myself.. so I have not even begun to test my 9 year old yet. I am praying...
Hi All & welcome Catina. I see you already have some great advice. I just also wanted to pitch in & say that, "NO, you're not crazy". But it is something that...
... Hello I am new here and I have fibro and ehlers too. My kids have yet to be tested. I am just relieved to have an answer to my dibilitating pain!! All the...
dont see a chiropractor they increase the flexibility and therefore increase the pain i have been through alot of things and i can tell you through experience...
I have had great experience with Chiropractors. He has great when something comes undone he helps me get them back in place. If my knee, wrist or back ...
... thank you. I did stop seeing him and I was in sooooo much pain yesterday I just wanted to die. But thank you sweetie i did not know that it would make it...
... Maybe that is why i am in so much pain because i have not been to him lately. ... something ... or back ... greatly ... out the ... You are real ... ...
A lot of my pain come from spasms, not like cramps but more like irratable muscles. Once you gets things back together I am sore but the miserable pain is...
Now my son is in so much pain today he could not go to school. I have yet to see if he has it but my guess is yes. His spine is able to move all around he even...
Hi As with any other Doctor, therapist, etc., it's advisble to check around a lot & do some "surfing". I think it's fairly common knowledge that the all time...
Hi As with any other Doctor, therapist, etc., it's advisble to check around a lot & do some "surfing". I think it's fairly common knowledge that the all time...
My Chiropracter tries gentle pressure and if that doesn't do it then he uses an activator. He explains it that the bone shifts the muscles don't like being...
Hi there, i am in the dx process right now. i finally had someone listen to me and not brush me off. My new chiro asked me a ton of questions and said "i think...
Hi & welcome. My name is Lisa Schoenberg & have been involved with the Ehlers Danlos National Foundation for @ 20 years & have been invloved on several lists...
Sue, I agree with you. I do not eat junk food and it depends on what kind of excercise i do but my chiropractor and my doc are the best. Sue3307@... wrote:...
Lisa, I am just glad to finally understand that I am not crazy!! Thank you, Shelley foundit1999 <lisa.cherry2sky@...> wrote: Hi & welcome. My name is...
my doctor told me the spasm i have are my body being in shock and wanting to shut down on me he says the only thing i can do about it is sleep but that doesnt...
-Hi, my name is Megin and I also have Fibromyalgia and was just recently dx with EDS-Hypermobility. I know how frustrating it is to get dx'd with anything such...
Andy, I have Mitral Valve prolapse and I get palpations I was told to cut down on my caffiene to see if that helps and it has. Hope this helps, hang in there. ...
Thanks Megin I will check that out. It might be beneficial to me since I have no co-insurance and the bills are just stacking up on us. lost scout2811...
Thank you for the welcome Lisa.:o) I will copy over your email addy for future questions. I apologize to everyone for taking so long to get back here. Life got...
Hi Andy, I am on disability, and it was no easy task. I was 38 at the time, and it took about 3 1/2 years, and a few denials. The best thing you can do to...
thanks for the info ... From: Michelle Santiago <mydiva01@...> To: ehlersdanlossupportclub@yahoogroups.com Sent: Tuesday, March 27, 2007 5:56:37 AM ...
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