hi all. this is my first post here, so i suppose i should briefly introduce myself. my name is margeaux and i'm a 26/f living on the coast of maine. over the...
My name is Dawn...I'm 19 years old...I was diagnosed with Ehlers-Danlos Syndrome a little while ago...however shortly after I was diagnosed...I lost my...
Hey Dawn Welcome, My name is Crystal I'm 22 years old I have Vascular EDS along with many other things. Have you been told what type of EDS you have? Where do...
This four step guide will give you the foundation you always wanted. Learning the basics in handling stocks. This guide will help anyone, interested in getting...
Ive never been in a group before so forgive me if i dont know what im doing. I've been tested and treated for 12 years now and finally found out i had EDS this...
Ive never been in a group before so forgive me if i dont know what im doing. I've been tested and treated for 12 years now and finally found out i had EDS this...
My sediments exactly.. The best thing I have found that me go a ha! is this article _http://rheumatology.oxfordjournals.org/cgi/content/full/40/5/487_ ...
Also the CEDA (Canadian ED Assoc) on yahoo is really good. But when you subscribe you might want to send the mail to another email box like an separate ...
This four step guide will give you the foundation you always wanted. Learning the basics in handling stocks. This guide will help anyone, interested in getting...
http://forums.go.com/abcnews/Primetime/forum?start=0&forumID=10&byThread=true It is up to you now. Write tonight. Tomorrow is too late. Let them know you...
My email to the link that Lexie gave: Please understand Gary is not a "normal" EDSer. Yes he shows well on TV. Sensationalism. But he is not who we are....
I'm furious at ABc. We are not freaks. They didn't be their research and we are not circus freaks. Contact ABC and demand they reshoot the show with true...
FYI - I will post the action alert that the American Pain Foundation is formulating so that we can respond in mass as to how EDS was depicted on last night's...
Cindy, I applaud you for trying to help educate the country on EDS and now applaud you again for standing up to ABC and letting others know how wrong they...
Here is the link for the APF Action Alert that has a template and sample wording to make responding to the ABC Primetime Medical Mysteries program easy for...
The good that came of all this? Do you know what it is? All groups came together for the first time that I know of. We all came together as the whole EDS...
This four step guide will give you the foundation you always wanted. Learning the basics in handling stocks. This guide will help anyone, interested in getting...
Hello everyone. I just wanted to introduce myself and say hello. I was recently diagnosed with EDS and with Fibromyalgia. Those seem to be just two of my...
Hello - My name is Linda and I too have Ehlers-Danlos and was just recently diagnosed with Fibromyalgia in August. My biggest problem is the constant pain - I...
I was just recently diagnosed with EDS.. and am still trying to find good care for myself.. so I have not even begun to test my 9 year old yet. I am praying...
Hi All & welcome Catina. I see you already have some great advice. I just also wanted to pitch in & say that, "NO, you're not crazy". But it is something that...
... Hello I am new here and I have fibro and ehlers too. My kids have yet to be tested. I am just relieved to have an answer to my dibilitating pain!! All the...
dont see a chiropractor they increase the flexibility and therefore increase the pain i have been through alot of things and i can tell you through experience...
I have had great experience with Chiropractors. He has great when something comes undone he helps me get them back in place. If my knee, wrist or back ...
... thank you. I did stop seeing him and I was in sooooo much pain yesterday I just wanted to die. But thank you sweetie i did not know that it would make it...
... Maybe that is why i am in so much pain because i have not been to him lately. ... something ... or back ... greatly ... out the ... You are real ... ...
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