Kathrine, Sorry we are from Michigan, I can't ever find anyone here with the same thing either! But if you need a friend I am here. I have 3 kids and all...
Hi Katherine, I have EDS-3. I live in Chanhassen, MN and am a senior in High School. How old is your daughter? Julia H. Katherine <hipsfish@...> wrote:...
Hi I originally posted last July after being diagnosed by a Rheumatologist. I have seen an expert on EDS from Philadelphia who says I don't have EDS because I...
Hi Sandi, do you get things like head ache's constant body pain or neck problems??? I do a ton of searching constantly and I have a few ideas but I need more...
Angie, Thanks so much for replying. I am in the healthcare field here in New Jersey I work with many neurologists and I am an MRI tech so if there is...
Hi, all, especially Sandi, Your case pretty much mirrors mine. They diagnosed me in pretty much the same way. To rule out heart anurisms they did a scan of...
Hi Sandi, Very interesting! I have had a horrible day sorry. You know it is one of those days when you need a friend and nobody is home. Well we got kind...
Angie, My heart goes out to you and your children. I am so sorry that when you finally got the answers to your questions that it is something so serious....
Hi Sandi and Angie, I have been following your e-mails back and forth and just want to jump in and say hello and how sorry I am for the news you have just ...
Hi Sandi, Thank you. But we see only the best of the best neurolgist here at Detroit. We actually see a genetic neurologist. Yeah there is such a thing....
Hi Linda thank you! Yes most certianly I will take a look at any info! I am sorry to hear about your friends newborn. I was diagnoised with diabetes at age...
Hi I was wondering if anyone has had Carpal tunnel surgery. I have been seeing an orthopedist who feels that my wrists are the only thing wrong with me. I...
Hi Angie. I am so glad that you found a Dr. that you are comfortable with. I think that is half the battle. I am not familiar with mitochondrial dx is that...
Hi, I had carpal tunnel surgery in 1999. I could not hold a gallon of milk, my hand would just lock up and I dropped it in the middle of my kitchen! Fun!...
Before you consider surgery for CTS, read this: http://www.uggen.net/mike/writing/conditions/cts.htm Make sure you do the Phalen's test yourself and be SURE it...
Hi Barb, I tried the Phalen test. Wow, I definitely have CTS on the right side. Owww I see what they mean by excrutiating or I have no pain tolerance. So...
Sandi, No, I am not sorry. I was not expecting the pain that I had though. My surgeon had to clean out 13" of tunnel, and I wish I was better informed,...
Hi Sandi, Not to my knowledge. It is a cell abnomality. Sometimes these peopl that have this have red straking fibors in thier muscles so they are doing a...
I wouldn't do it. "Normal" people are worse off a lot of the times after surgery. I would hate to take the risk and make symptoms worse. Have you tried...
Hi Trista, Thanks for sharing your experiences. I can see how the scar thing could be a problem. I guess if I knew for sure it would help I would just go...
Hi Sue, I haven't tried any PT I guess your right I need another opinion other than an Ortho Surgeon. I actually went to a neurologist for a nerve conduction ...
hi all. this is my first post here, so i suppose i should briefly introduce myself. my name is margeaux and i'm a 26/f living on the coast of maine. over the...
My name is Dawn...I'm 19 years old...I was diagnosed with Ehlers-Danlos Syndrome a little while ago...however shortly after I was diagnosed...I lost my...
Hey Dawn Welcome, My name is Crystal I'm 22 years old I have Vascular EDS along with many other things. Have you been told what type of EDS you have? Where do...
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